This area provides a comprehensive list of sites that we feel are of interest to the TelAbility community. Use the search interface above to search by keyword or category for sites related to your area of interest. We are constantly reviewing and adding new links so please check back often.

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21st Century Eloquence: Voice Recognition Information has an informational page that has a voice recognition forum, FAQ, a glossary of terms and the latest news and developments in voice recognition technology.

A Child's Guide to Epilepsy From Epilepsy Canada, an international non-profit organization devoted to promote and support research into all aspects of epilepsy, and to create awareness and understanding about epilepsy through educational programs. This website, geared towards children, teaches about why and how seizures happen, how seizure medicines work, and seizure "first aid". On the top of the web page, go to Kidz Korner and click on "a child's guide to epilepsy"

A Guide to Medical Information and Support on the Internet This guide provides you with the knowledge and resources for utilizing the internet to access general medical information and support groups. Written and maintained by Judy Bakstran, this site offers information on how to access and use medical chats, doctors online, listservs, newsgroups, medline, and more.

AAP's Section on Computers and Other Technologies (SCOT) This is the home page of the Section on Computers and Other Technologies (SCOT) of the American Academy of Pediatrics. This site contains information on Section activities, including educational programs, an on-line newsletter, and additional projects from the Executive Committee and membership.

ACCESS North Carolina: A Guide to Travel Site Accessibility The 2012 edition of this travel guide was produced by ACCESS North Carolina, a program of the NC Department of Health and Human Services. Distribution is coordinated by the NC Department of Commerce through its Division of Travel and Tourism. Sites in this book are also found in the North Carolina Travel Guide produced by the Division of Travel and Tourism. Travel attractions were reviewed by the editor or volunteers as to their physical accessibility. The information in this edition reflects the impressions of site reviewers. Disclaimer

ADA National Access for Public Schools Project A project funded by the National Institute on Disability and Rehabilitation Research of the US Department of Education to help public elementary and secondary schools implement the Americans with Disabilities Act. This website contains information about: Technical assistance to school administrators, teachers, students, parents and the public Training programs Question and answer sheets and other resources A listserv on ADA and public school issues

ADD Resources A national non-profit organization that provides information and support to individuals with ADHD and their families. While much of the site is geared to adults with ADD, there are resources for children and parents, including links, articles, and more.

ADD Resources ADD Resources is a rapidly growing national non-profit organization whose mission is to help people with ADD/ADHD achieve their full potential through support and education. Their website offers 100 free and carefully chosen articles helpful to adults with ADD/ADHD and to parents of children with ADD/ADHD, a free monthly eNews, 100 links to other ADHD-related websites, the National ADHD Directory, and more.

ADD/ADHD Online Support Group Our objective is to promote awareness to AD/HD (Attention Deficit/Hyperactivity Disorder) and to provide information and as much free practical help as we can to those with the condition, both adults and children, their families in the UK and around the World via this website.

AIM for the Handicapped (Adventures in Movement for the Handicapped) The American Camping Association is a community of camp professionals and is dedicated to enriching the lives of children and adults through the camp experience. The Association accredits over 2,000 camps. ACA-accredited camps meet up to 300 standards for health, safety, and program quality. By choosing an ACA-accredited camp, you can be assured that many important questions have been asked and appropriately answered.

AMBUCS This company, headquartered in Greensboro, NC, designs and manufactures therapeutic tricycles (AmTrykes?) to enhance mobility and independence for people with disabilities who are unable to operate traditional bikes / bicycles. This website offers information about the organization and its chapters, a calendar of events, instructional videos, online catalogs, newsletters, and more.

ARC of North Carolina The ARC of NC advocates for improved quality of life for all individuals with mental retardation and other developmental disabilities in our state. This site offers an array of supports and services to individuals and families across North Carolina. There's an online discusion board and answer sheets, a link to the NC General Assembly website, and even a catalog of clothing with the ARC of NC insignia.

ARCH National Resource Center for Respite and Crisis Care Services Based in Chapel Hill, ARCH gives families and caregivers comprehensive information related to respite care. In addition to providing related-links and general fact sheets, the website includes a National Respite Locator Sevice to help families find respite care in their area quickly and easily.

ATV Safety Institute Riding ATVs (All Terrain Vehicles) has been linked to pediatric brain injury and disability. Since October 1st, 2006, all children in North Carolina have to be at least 8 years old and pass an ATV safety course in order to be legally able to ride. This website offers information about safety and responsibility when riding an ATV and gives information about taking an ATV RiderCourse.

Abilitations Products focus on movement,positioning, sensorimotor, exercise, aquatics and play.

Able Generation Able Generation designs products specifically for children with special needs, with a focus on children in the preschool age range (1-5, depending on size) with mild to moderate involvement. This website includes descriptions of each product, a price list, and order forms.

About Face International AboutFace is an international organization which provides information and emotional support to individuals with facial disfigurement, and to their families.

About Face USA A national non-profit organization dedicated to providing information, emotional support, and educational programs to individuals who have a facial disfigurement, and to their families. Conditions include cleft lip and/or cleft palate, crouzon syndrome, apert syndrome, moebius syndrome and others.

Access To Medical Care For People with Mobility Disabilities An online booklet designed to assist health care programs to better serve persons with disabilities, protect persons with disabilities and staff from injury, and comply with federal law. From the U.S. Department of Justice,Civil Rights Division,Disability Rights Section and the U.S. Department of Health and Human Services, Office for Civil Rights.

Access-Able Travel Source Access-Able Travel Source is dedicated to aiding travelers with disabilities and the mature traveler. They offer practical information needed to go cross town or around the world. The site includes information on transportation, accommodations, attractions, adventures, access and equipment. It is a little difficult to navigate this site but is fun to explore if you want to get some good tips on traveling with disabilities.

Accessible Housing Information from HUD This website, from the national center on Housing and Urban Development (HUD), helps explain the rights of people with disabilities who are seeking housing, and the responsibilities of those who house them. This site provides practical information about Section 504 of the Rehabilitation Act of 1973,information on modification funds, advocacy agencies, guidelines, disability rights in housing programs, accessible housing designs, model building codes, and a Q&A section.

Accessible Vans of America AVA rents and sells both full-size and lowered floor minivans, through a national owner-operated dealer network. Whether you need a van for business, vacation, a replacement vehicle, or to evaluate before purchasing, AVA can serve you.

Adapted Physical Education at PE Central In this section of PE Central we share information that should be helpful to those who are responsible for educating students with various disabilities. PE Central provides the latest information about contemporary developmentally appropriate physical education programs for children and youth.

Addressing Child Care Challenges for Children with Disabilities This Center on Law and Social Policy report (February 2003) offers background and recommendations regarding Congressional reauthorization of the Child Care and Development Block Grant and the Individuals with Disabilities Education Act (IDEA), which together provide resources for early childhood education for young children with disabilities in all states.

Adolescent Health Transition Project The Adolescent Health Transition Project is designed to help smooth the transition from pediatric to adult health care for adolescents with special health care needs. This site is a resource for information, materials, and links to other people with an interest in health transition issues. This program is housed at the Center on Human Development and Disability (CHDD),at the University of Washington, Seattle.

After the Injury A website designed to help severely injured children cope with emotional issues that can linger long after their accident. The Web site includes tip sheets, videos and planning guides to help families and victims. From the Center for Injury Research and Prevention at the Children's Hospital of Philadelphia.

Aicardi Syndrome Website Aicardi syndrome is a rare genetic disorder. The site provides information for parents, a newsletter, regional coordinators, email Support Groups, chat room, foundation information, events/conference updates, and a personal section to meet some of the girls afflicted with this disorder.

AirLifeLine AirLifeLine is a national non-profit charitable organization of over 1,000 private pilots who fly ambulatory patients who cannot afford the cost of travel to medical facilities for diagnosis and treatment. Our pilots donate their time, aircraft and fuel to make this air transportation service totally free of charge for patients who qualify.

Alexander Graham Bell Association for the Deaf and Hard of Hearing An international membership organization comprised of parents of children who are deaf and hard of hearing, adults with hearing loss, and professionals who serve children with hearing loss. This website offers information about the organization and its events, publications, periodicals, resources, and information about captioned movie loan programs.

All Kinds of Minds All Kinds of Minds undertakes applied research, product development, program design, and professional training to foster the understanding and optimal care of children with differences in learning. Based upon the work of Dr. Mel Levine and his colleagues, the Institute applies the latest knowledge, advanced technology and rigorous methods of validation within a collaborative approach that includes educators, clinicians, parents, and the children themselves. All Kinds of Minds is committed to broad national dissemination of its work, so as to exert a strong, positive influence upon both the academic experience and the development of children with differences in learning.

Allergic Child A national organization dedicated to improving the lives of families who have a child with life-threatening food allergy. This website describes the organization, offers information about all types of food allergies, offers referrals to support groups and allergists, promotes a children's book about peanut allergy, and more.

Alliance for Technology Access The Alliance for Technology Access (ATA) is a network of community-based Resource Centers, Developers, Vendors and Associates dedicated to providing information and support services to children and adults with disabilities, and increasing their use of standard, assistive, and information technologies.

Alpha-1 Association Mission Alpha-1-antitrypsin deficiency is a common hereditary disorder characterized by a reduction of serum levels of Alpha-1, emphysema, and occasionally liver disease. The alpha 1 association provides education, information, advocacy, and supports research.This site features research, links, information, and realted events.

Alternative Treatments for Attention Deficit Hyperactivity Disorder (ADHD) Online information from the Caring for Kids Website, a project of the Canadian Paediatric Society.

American Academy of Allergy, Asthma, and Immunology This website provides information about asthma and allergies, pollen counts, news releases, a coloring book for children, and much more.

American Academy of Audiology The American Academy of Audiology (AAA) helps members achieve career objectives, provides quality hearing care to the public, encourages professional development through education and research, and increases public awareness of hearing disorders and audiologic services. In addition to including information for professionals, this site also provides resources for consumers and students. Consumers can find an audiologist in their area, join email discussion lists, receive a newsletter, and obtain information about audiogram reading, hearing aids, hearing loss, and deafness.

American Academy of Child and Adolescent Psychiatry This site is designed to serve both AACAP Members, and Parents and Families. Information is provided as a public service to aid in the understanding and treatment of the developmental, behavioral, and mental disorders. You will find information on child and adolescent psychiatry, fact sheets for parents and caregivers, AACAP membership, current research, practice guidelines, managed care information, awards and fellowship descriptions, meeting information, and much more.

American Academy of Developmental Medicine and Dentistry Based in New Jersey, this national professional organization of dentists and physicians is dedicated to improving access to high quality medical and dental care for people who have developmental disabilities.

American Academy of Family Physicians The American Academy of Family Physicians (AAFP) is a national, non-profit medical association of more than 89,000 members (family physicians, family practice residents, and medical students). The AAFP was founded in 1947 to promote and maintain high quality standards for family doctors who are providing continuing comprehensive health care to the public. This website contains information about the organization and its policies. The Search the Website function can help you find more information about a specific condition.

American Academy of Pediatric Dentistry The American Academy of Pediatric Dentistry is dedicated to improving and maintaining the oral health of infants, children, adolescents, and persons with special health care needs.

American Academy of Pediatrics FOR PROFESSIONALS, this site includes announcements of upcoming conferences, an online directory of members, training opportunities, and new research; access to professional educational materials; online pediatric journals, newsletters and free access to MEDLINE, a medical article search engine, immunization and practice recommendations, advocacy tips,and publications. FAMILIES should look at the parent resource guide, child health information, managed care guide, and listings of AAP position papers on many areas pertaining to children with special needs (from the home page, go to "Publications" in the upper right hand corner - then go to "AAP Policy Statements").

American Academy of Pediatrics Immunization Schedule Provides a chart of the current immunization recommendations from the American Academy of Pediatrics, videos about immunizations, a personalized childhood immunization scheduler and more.

American Academy of Physical Medicine & Rehabilitation This site offers news about the medical specialty of physical medicine and rehabilitation. It provides information about state and federal legislation, and AAPM&R programs and events; For doctors, it offers educational activities that you can complete for CME credit, marketing tools, and practice guidelines. For consumers, it offers a definition of the specialty and its areas of expertise and allows you to find a board certified physician in your local community.

American Art Therapy Association, Inc., The The American Art Therapy Association (AATA) is a national association dedicated to the belief that the creative process involved in the making of art is healing and life enhancing. Founded in 1969 AATA is a not-for-profit organization of approximately 4,750 professionals and students that has established standards for art therapy education, ethics, and practice. AATA committees actively work on professional and educational development, national conferences, regional symposia, publications, governmental affairs, public awareness, research, and other activities that enhance the practice of art therapy.

American Association for Pediatric Opthamology and Strabismus This is the Home Page for the American Association for Pediatric Ophthalmology and Strabismus. This is designed to be a resource for Pediatric Ophthalmologists, Strabismologists, related personnel and our patients. The system is separated into divisions for various users. All are welcome to browse this site with over 90% open to all users.

American Cancer Society A national organization providing support and education about adult and pediatric cancer. This site contains information about different types of cancer and their treatments, helps you find a pediatric cancer center near you, provides information about clinical trials and more.

American Cleft Palate-Craniofacial Association/Cleft Palate Foundation This informative website is home to both the American Cleft Palate-Craniofacial Association (ACPA) and the Cleft Palate Foundation (CPF). ACPA is an international non-profit association of professionals who are involved in the treatment and/or research of cleft lip, cleft palate, and other craniofacial anomalies. Also a non-profit organization, CPF provides information to the parents of newborns with clefts or other craniofacial birth defects. Be sure to look for the free on-line publications available on this site.

American Dance Therapy Association, The Today's Dance/Movement Therapists are graduates of masters degree programs that integrate dancers' special knowledge of body, movement and expressive spirit with the healing skills of counseling, psychotherapy and rehabilitation. We help a wide range of people, from autistic children to seniors in their declining years, from the mentally ill to normal people who have lost touch with their inner truth, from people with spinal cord injuries to people who just have never felt quite at home in their bodies. When words alone are not enough, dance/movement therapists are there to help! Founded in l966, the American Dance Therapy Association works to establish and maintain high standards of professional education and competence in the field of dance/movement therapy. ADTA stimulates communication among dance/movement therapists and members of allied professions through publication of the ADTA Newsletter, the American Journal of Dance Therapy, monographs, bibliographies, and conference proceedings. ADTA holds an annual conference and supports formation of regional groups, conferences, seminars, workshops and meetings throughout the year.

American DanceWheels a non-profit organization in Bala Cynwyd, PA that seeks to provide people of all ages and abilities the opportunity to partner dance by pairing one person with an ambulatory disability with an able bodied partner. Their website contains information about the organization, news, videos, and more.

American Diabetes Association A national nonprofit health organization providing diabetes research, information and advocacy. The mission of the organization is to prevent and cure diabetes and to improve the lives of all people affected by diabetes. This website offers information about diabetes, links, an events calendar, research updates, and much more.

American Foundation for the Blind The American Foundation for the Blind is addressing the most critical issues facing the growing population of people who are blind or visually impaired: independent living, literacy, employment, and technology. Every seven minutes, someone in America will become blind or visually impaired. Since 1921, the American Foundation for the Blind?to which Helen Keller devoted more than 40 years of her life ?has been eliminating barriers that prevent people who are blind or visually impaired from reaching their potential. The American Foundation for the Blind is dedicated to addressing the critical issues of literacy, independent living, employment, and access through technology for the ten million Americans who are blind or visually impaired.

American Latex Allergy Association A.L.E.R.T. , Inc. is a national non-profit, tax exempt organization that has designed their website to help connect you with educational materials, support groups, publications and product information to assist you with your understanding of natural rubber latex allergy.

American Music Therapy Association The American Music Therapy Association (AMTA) is a national non-profit organization whose goal is to advance public awareness of the benefits of music therapy and increase access to quality music therapy services. This website describes the organization, provides information about careers in music therapy,available products and services, and upcoming events.

American Occupational Therapy Association The American Occupational Therapy Association (AOTA) is the nationally recognized professional association for over 60,000 occupational therapists and occupational therapy assistants. The mission of the association is to support a professional community of members and to develop and preserve the viability and relevance of the profession.

American Occupational Therapy Foundation This charitable, non-profit organization promotes research and excellence in education about occupational therapy. Scholarship information for OT students, current research, news and events, and an on-line version of the Occupational Therapy Journal of Research are all available on this website.

American Pediatric Society - Society for Pediatric Research American Pediatric Society - Society for Pediatric Research

American Physical Therapy Association Representing more than 70,000 physical therapists, physical therapist assistants, and students of physical therapy, the American Physical Therapy Association's mission is to advance the profession through practice, research, and education; effect beneficial legislation at state and federal levels; improve insurance reimbursement; and enhance the image of physical therapy.

American Physical Therapy Association Section on Pediatrics This website offers news, resources about government affairs, product information, meeting announcements, research assistance, and more to pediatric physical therapists across the country.

American Psychological Association Based in Washington, DC, the American Psychological Association (APA) is a scientific and professional organization that represents psychology in the United States. This well-stocked website describes the organization, has book and brochure sections, a section on children, youth and family issues, a section on disability issues, a conference calendar, continuing education materials for psychologists, online games for children (under "kidpsych") and much more.

American Rehabilitation Counseling Association ARCA is an organization of rehabilitation counseling practitioners, educators, and students who are concerned with improving the lives of people with disabilities. Its mission is to enhance the development of people with disabilities throughout their life span and to promote excellence in the rehabilitation counseling profession. ARCA's goal is to provide the type of leadership that encourages excellence in the areas of rehabilitation counseling practice, research, consultation, and professional development. ARCA is equally interested in eliminating environmental and attitudinal barriers so that more opportunities are available with regard to education, employment, and community activities to people with disabilities. These goals are addressed by ARCA through public education and legislative activities. One of ARCA's primary goals is to increase public awareness of rehabilitation counseling as a profession and to extend its influence by encouraging members to become involved in the association's outreach and educational efforts. Other goals are to help members develop their leadership skills through participation in ARCA's organizational activities and to work with state officials to develop appropriate licensure requirements.

American School Health Association The American School Health Association unites the many professionals working in schools who are committed to safeguarding the health of school-aged children. The Association, a multidisciplinary organization of administrators, counselors, dentists, health educators, physical educators, school nurses and school physicians, advocates high-quality school health instruction, health services and a healthful school environment. The mission of the American School Health Association is to protect and promote the health of children and youth by supporting coordinated school health programs as a foundation for school success.

American Sign Language Teachers Association The American Sign Language Teachers Association (ASLTA) promotes the exchange of information and ideas among teachers of the deaf and hard of hearing across the nation. In addition to newsletters and conference information, this website also offers guidelines for hiring an ASL teacher. Membership information, a code of ethics, and job announcements can be found here as well.

American Society for Deaf Children A nonprofit organization, the American Society for Deaf Children (ASDC) provides support, encouragement, and information to families raising children who are deaf or hard of hearing. The ASDC website includes legislative information, convention dates and descriptions, membership information, current news, and related links.

American Speech-Language-Hearing Association Geared towards speech language pathologists and audiologists, this website provides legislative updates, advocacy tips, continuing education opportunities, job announcements, bibliographies, research updates, graduate school information, and much more. Also has updated information on newborn hearing screenings.

American Therapeutic Recreation Association The American Therapeutic Recreation Association (ATRA) is the largest, national membership organization representing the interests and need of recreational therapists. Recreational therapists are health care providers using recreational therapy interventions for improved functioning of individuals with illness or disabling conditions. ATRA, was incorporated in the District of Columbia in 1984 as a non-profit, grassroots organization in response to growing concern about the dramatic changes in the health care industry. ATRA defines therapeutic recreation as "the provision of Treatment Services and the provision of Recreation Services to persons with illnesses or disabling conditions. The primary purposes of Treatment Services, which are often referred to as Recreational Therapy, are to restore, remediate or rehabilitate in order to improve functioning and independence as well as reduce or eliminate the effects of illness or disability. The primary purposes of Recreational Services are to provide recreation resources and opportunities in order to improve health and well being.

An IEP Team's Introduction To Functional Behavioral Assessment A free online publication that describes the IEP team's responsibility to do a functional behavioral assessment to identify the cause of a child's behavior in school and develop positive behavioral interventions and supports to address problem behavior. Prepared in 1998 By The Center for Effective Collaboration and Practice.

Angel Flight A non-profit charitable air medical transportation organization serving needy people and their families. Uses free airplane transportation to provide access to specialized medical evaluation, diagnosis, treatment and rehabilitation.

Angelman Syndrome Angelman Syndrome is a genetic disorder caused by abnormal function of the gene UBE3A.The angelman syndrome's foundation's mission is to advance the awareness and treatment of Angelman Syndrome through education, information exchange and research. The site provides information such as local contacts, regional representatives, an informative newsletter, listings of conferences and workshops and professional references.

Apple Disability Resources Computer technology resources for individuals with special needs.

ArcLink - Know the System This site contains a wealth of information for individuals with developmental disabilities and their families. Use this site to learn about support programs and how services are delivered in North Carolina, locate and research service providers, conduct a basic needs analysis, and research topics.

Arthritis in Children, Teens and Young Adults From the American Arthritis Foundation. This section of their website includes information about arthritis or rheumatic disease in children and young adults. Includes information about the American Juvenile Arthritis Organization (AJAO) and many resources and supports available nationwide.

Ask Dr. Greene An on-line resource established by a certified pediatrician to answer many of your child care related questions.

Asociacion de la Distrofia Muscular (Muscular Distrophy Association) (English description follows below.) Aqui encontrara informacion completa acerca de las enfermedades neuromusculares incluidas en el programa de la Asociacion de la Distrofia Muscular, incluso publicaciones, las noticias mas recientes sobre la investigacion, programas de tratamiento, salas de charla, informacion para ni?os y mas - todo en espa?ol. (Aunque no todo la informacion de este sitio se ofrece en espa?ol, todavia es un buen recurso para los hablahispantes.) This is a Spanish language site with information about Muscular Distrophy and neuromuscular related diseased from the Muscular Distrophy Association. It includes publications, recent research studies, information on treatment programs, chat rooms and information for children. Not all of the information on the site is in Spanish but it is still a valuable resource for Spanish Speakers.

Assessment of Maltreatment of Children with Disabilities A 2001 policy statement from the American Academy of Pediatrics' Committees on Child Abuse and Neglect and Children with Disaibilities.

Assistive Technology Exchange Post Hosted by Partnerships for Assistive Technology, this online exchange post puts AT equipment that is not currently being used into the hands of someone who can benefit from it. Updated monthly.

Assistive Technology Funding Booklets A complete set of assistive technology funding booklets published by United Cerebral Palsy and Neighborhood Legal Services, Buffalo, NY

Assistive Technology Training Online Project Funded by a grant from the United States Department of Education and located the SUNY-Buffalo's Center for Assistive Technology this website provides around the clock access to information on assistive technology applications that help students with disabilities learn in elementary school classrooms. This website offers a introduction to using AT, basic tutorials on different software programs, and links to other good resources

Association for Driver Rehabiliation Specialists A non-profit organization designed to support professionals working in the field of driver education /driver training and transportation equipment modifications for persons with disabilities through education and information dissemination. A useful resource for teenagers with disabilities who are making the transition to adulthood and are interested in learning how to drive a car.

Association for Spina Bifida and Hydrocephalus The United Kingdom's Spina Bifida Association. Through a network of professional Advisers backed up by specialists in mobility, continence management, education and medical matters, ASBAH provides advice and practical support to people with these conditions, and their families.

Association of Academic Physiatrists (AAP) The Association of Academic Physiatrists (AAP) serves as the national organization of physiatrists who are affiliated with medical schools. The AAP is a member organization of the Association of American Medical Colleges (AAMC). It promotes the advancement of teaching and research in Physical Medicine and Rehabilitation within academic environments. The organization acts as a sounding board and forum for the exchange of ideas and information relative to all phases of the art and science of Physical Medicine and Rehabilitation.

Association of Child Neurology Nurses The ACNN is an international not-for-profit organization of nurses and allied health personnel caring for children with neurological conditions. At this website, you can find information about the organization and its annual meeting.

Association of Children's Prosthetic Orthotic Clinics This organization is made up of professionals who are involved in clinics which provide prosthetic-orthotic care for children with congenital limb deficiency, amputees, or orthopaedic disabilities. It supports clinic teams through education, clinical research, and annual meetings. The website describes the organization, has a national clinic directory, provides a quarterly newsletter, and lists upcoming events.

Asthma and Allergy Foundation of America Home of the Asthma and Allergy Foundation of America. This site provides educational materials, news articles, an ask the allergist section, and more.

Attention Deficit /Hyperactivity Disorder Information From the National Institute of Mental Health. This website offers general information about AD/HD and lists other sources of information and support from the NIMH.

Augmentative Communication Inc. Publishers of Augmentative Communication News and Alternatively Speaking. Offers online articles and presentations concerning Augmentative and Alternative Communication.

Autism Resources List of links to local protection and advocacy organizations, social groups, educational resources, developmental disability planning councils, vocational rehabilitation centers, state insurance departments and organizations that provide parent training. Also included are links to national organizations and resources. Some information available in Spanish.

Autism Society of North Carolina The North Carolina chapter of the Autism Society of America. This website provides information on local resources, special events, summer camps, and an online bookstore

Autism Speaks A national, non-profit organization of parents, clinicians and scientists dedicated to finding effective treatments, prevention, and a cure for autism and related disorders. This website offers information about the orgnanization, its fundraising activities, its sponsored research and more.

AutismBuddy.com AutismBuddy aims to provide a FREE user-friendly website that provides high quality pintables and resources for teachers and parents for use with children with Special Educational Needs. You will find easy to download resources in many categories including booklets, puzzles and games, flashcards, worksheets, visual timetabling, activities, visual aids, emotions, teaching aids, matching and sorting, classroom display, clip-art, E-books and social skills and many more.

Automobile Restraints for Children with Special Needs (Quick Reference List) A list of current adaptive car seats for children with special needs developed by SafetyBeltSafe U.S.A., a national, non-profit organization dedicated to child passenger safety.

Axis Dance An Oakland, California-based dance company whose missions are 1)to create and perform contemporary dance that is developed through the collaboration of dancers with and without disabilities, 2) to teach dance and educate about collaboration and disability through community education and outreach programs and 3) to promote and support physically integrated dance locally, nationally and internationally. This website includes information about the organization, its performances, workshops and educational programs.

BEGINNINGS for Parents of Children Who are Deaf or Hard of Hearing, Inc. A Non-Profit Agency Providing an Objective Approach to Meeting the Diverse Needs of Families with Children Who are Deaf or Hard of Hearing and the Professionals Who Serve Them

Baby Jogger The website for the Baby Jogger company, located in Yakima, Washington. This page contains information about their Special Needs 5 stroller,a measurement chart and a listing of available local dealers where you can get "test drive" the stroller.

BabyCenter.com BabyCenter.com is a large and comprehensive source of information and resources on conception, pregnancy, and child development from infancy through toddler years. Content is focussed on typical development and experiences, and does not include information related to children with special needs. There is no biographical information on those who produce or review the content, but babycenter.com's self-description indicates that the site is the result of effort by parents, physicians, and other healthcare professionals. Much of the content is provided by various commercial sources (so remember they have a bias toward promoting their products in some way...), and the on-line store offers products from a number of companies. The website is easy to access for those familiar with navigating a website, and areas are well-labeled and cross-connected enough for most novice navigators as well. There were no text-only versions or accommodations for accessibility by those with disabilities. Informational content covers a wide variety of topics, which can be accessed by topic area or by the age or the child. There are printable versions of many of the information pages, and options to send some of those pages by email. There is a good "news" area, with synopses of current stories on research, product recalls, etc. Ask-the-Expert sections are preceded by a disclaimer regarding their inability to answer all questions, and the need to use expert opinions in a responsible manner. There are on-line chat rooms and bulletin boards, and several options for contacting babycenter.com, depending on your needs. Overall this is a great resource for finding information about typical pregnancy, infancy and early childhood issues and experiences. However, since the sources vary, it would be wise to cross-reference factual information, and to seek a second opinion from a more "local" expert (for instance your child's teacher, your doctor, etc.) if you have any questions.

Band-aides and Blackboards Goal is to help people understand what it's like to grow up with medical problems, from the perspective of the children and teens who are doing just that. Areas for parents, teens, and children.

Bard Interventional Products Through years of clinical experience and working with leaders in the field of gastrostomy feeding, Bard has developed products designed to meet the specific requirements and unique challenges of both adult and pediatric gastrostomy patients.

Beach Ability Beach Ability enables people with disabilities to better access the beach and participate in a variety of coastal recreation activities with the aid of adaptive equipment. A great resource for recreational equipment for teenagers and young adults making the transition to adulthood.

Beach Center on Families and Disabilities The Beach Center, located at the University of Kansas, is funded through a grant from the US Department of Education. This website contains research briefs, Beach Center Newsletters, fact sheets on behavioral management, products, and links to support organizations. Good general information about behavior management, autism, fathers of children with special needs, and sleep problems. Technical note - the graphics can take a while to download.

Beckwith-Wiedemann Support Network The BWSN is a non-profit organization created for parents, professionals, and others interested in the Beckwith-Wiedemann Syndrome. The major goals of the BWSN are (1) to provide information and peer support to the individuals and families affected by BWS, (2) to increase both public and professional awareness of BWS, and (3) to encourage research aimed at the cause, early detection (including prenatal), and treatment of BWS. This website provides information about the condition, and links to other websites of interest including a parents' forum.

Behavior Online a site for communication among mental health and behavioral scientists. This website includes biographies of the organization's board,transcripts of previous chat sessions (none since March 2000), threaded discussion lists and more.

Benefits for Children with Disabilites A link to a booklet is written primarily for the parents and caregivers of children with disabilities and adults disabled since childhood. It illustrates the kinds of Social Security and Supplemental Security Income (SSI) benefits a child with a disability might be eligible for and explains how we evaluate disability claims for children. Millions of children already get benefits from Social Security. This will help you decide if your child, or a child you know, is eligible for Social Security or SSI.

BlazeSports America Founded after the 2002 Atlanta Paralympic games, this orgnization provides community-based sports training and competition opportunities for children and adults who are wheelchair users, have a visual impairment, an amputation, or neurological or muscular impairment. Club support and clinics are offered in wheelchair tennis, wheelchair basketball, wheelchair racing, wheelchair rugby, swimming and field events. This website offers information about the organization, local club news, and more.

Boundless Playgrounds Boundless Playgrounds is a non-profit organization that works with communities to facilitate the development of accessible playgrounds. The organization's goal is to give children with physical, sensory, and/or developmental disabilities a chance to experience the joy and fun of a playground. While Boundless Playgrounds is not a playground equipment manufacturer, the organization does provide a wide range of consultant services as well as fundraising ideas. This website provides more specific information about the services they provide, current projects, news, and information on how to get involved.

Brachial Plexus Injury Information From the National Institute of Neurological Disorders and Stroke.

Brain Injury Association of America Home page of the Brain Injury Association of America. This site includes good general information about brain injury, national and statewide resource directories, news and updates, and advocacy information.

Brain Injury Association of North Carolina The website of the Brain Injury Association of NC. This site includes an overview of the organization, links to information about brain injury, a listing of association events, a chat room and a bulletin board service.

Brain Injury Partners: Navigating the School System A website designed to give parents of school-aged children with a brain injury the skills they need to become successful advocates. Funded by the National Institute of Child Health and Human Development and made in collaboration with the Brain Injury Association of America.

Breastfeeding Babies with Special Needs A primer on breastfeeding children with Down Syndrome, cleft palate and Pierre Robin syndrome, from BabyCenter.com

Breastfeeding a Baby with Down Syndrome Benefits of and tips that may help breastfeeding your baby with Down Syndrome

Bridge II Sports A non-profit organization that creates opportunities for children and adults who are physically challenged to play team and individual sports by providing equipment, developing sport teams and coaching. This website provides information about the organization, adapted sport-specific links, a calendar, a blog, and more.

Bridging Apps A Houston-based not-for-profit organization that seeks to bridge the gap between assistive technology and people with disabilities. This website offers links, forums, community boards as well as a special App tool (called Insignio) designed to help users identify apps that will help people with disabilities better communicate and function in different situations.

Building Blocks Feeding and Speech, Inc. Building Blocks Feeding and Speech, Inc is a feeding therapy practice in Wake Forest, NC that helps children who have difficulty eating. This website provides information about the practice and some information about feeding disorders.

Bullying and Teasing of Youth With Disabilities: Creating Positive School Environments for Effective Inclusion An informational webpage from the National Center on Secondary Education and Transition. Includes definitions of bullying and teasing, strategies to limit their occurrence and a list of resources for more information and support.

CF Awareness Foundation Based in New Jersey, this non-profit organization seeks to increase public awareness about cystic fibrosis. This website offers an overview of the organization and its events and sponsors and porvides links to several other websites about CF.

CHADD A National non-profit organization representing people with AD/HD (attentin deficit/hyperactivity disorder) that works to improve their lives through education, advocacy, and support. The website contains fact sheets, news releases, local chapter contact numbers (there are 11 in NC), research/ clinical trials information, advocacy tips for special education, and related links.

CHASE CHASE (the Chapel Hill Adaptive Sports Experience) is a student organization at UNC-Chapel Hill that provides those with disabilities an equal opportunity for recreation and sport. Our objectives are: to provide those with disabilities opportunities for enjoyable and healthy physical activity year-round, to promote greater awareness of the abilities and skills of those with disabilities, and to inform those around campus and within the community of ways to get involved with those with physical disabilities through adaptive sports and recreation. At this website, you can learn more about the organization, review its calendar of events, join its listserv, and more.

CLAS - Culturally & Linguistically Appropriate Services In collaboration with many colleagues representing diverse cultural and linguistic roots the CLAS Early Childhood Research Institute collects and describes early childhood/early intervention resources that have been developed across the U.S. for children with disabilities and their families and the service providers who work with them. The materials and resources available on this site reflect the intersection of culture and language, disabilities and child development. Through this site we intend to inform consumers (e.g., practitioners, families, and researchers) about materials and practices that are available and the contexts in which they might select a given material or practice. Parts of the site can also be read in Spanish.

CPParent A national listserv mailing list for discussions of issues related to the parenting of children with cerebral palsy. This website has information about the listserv, a link to subscribe to receive messages, an archive of previous messages, and links to other resources.

Calmoseptine Ointment A website from a California-based company that provides information about a barrier cream used for skin care around ostomy sites, g-tube sites, diaper rashes, and more.

Camp Discovery A summer camp for young people with serious dermatologic ( skin - related ) conditions. Sponsored by the American Academy of Dermatology

CanChild Centre for Childhood Disability Research CanChild is comprised of a multi-disciplinary team based at McMaster University in Canada who are working in the field of childhood disability. The aims of this research centre are to take a leadership role in identifying emerging issues for research, practice, policy and education. To conduct high-quality research effectively transfer knowledge into practice at clinical and health system levels. And provide education for consumers, service providers, policy makers and students. This website contains online publications, research discussion forum, and links. For a good review on hyperbaric oxygen, go to the "Keeping Currents" section, located in their "Publications and Products".

Candlelighters Childhood Cancer Foundation A national organization that provides support, education and advocacy for children and adolescents with cancer, survivors of childhood/adolescent cancer, their families and the professionals who care for them.

Canine Assistants A non-profit organization, Canine Assistants trains and provides service dogs for children and adults with physical disabilities or other special needs. Individuals interested in obtaining a service dog can obtain an application on-line. Be aware, however, that there is a waitlist.

Car Safety Seats: A Guide for Families From the American Academy of Pediatrics. This online guide offers information about types of car safety seats and provides manufacturer's phone numbers and websites.

Carolina Canines for Service This company trains and provides service dogs for Carolina Canines for individuals who experience functional limitations due to a variety of disabling conditions which include, but are not limited to the following: * Cerebral palsy * Spinal cord injury * Multiple sclerosis * Stroke * Traumatic brain injury * Seizure Disorders * Muscular dystrophy * Spina bifida This website describes the company, offers information about service dogs, has an online newsletter, gift shop, links page, and more.

Carolina Health and Transition Project Resources At this website, the Carolina Health and Transition Project offers downloadable summary guides for medical providers, families, youths and teens about transition to adult care for individuals with special health care needs. From the NC Office on Disability and Health.

Carolina Hyperbarics Oxygen Therapy Oxygen plays an important role in healing broken bones, soft tissue injuries and wounds, and in reducing the risk of infection. Hyperbaric Oxygen Therapy is a proven, medical treatment that can benefit patients with a variety of conditions and help speed healing. The treatment encourages the body to build new capillaries and reduce inflammation from injury, surgery or chronic illness. All of the expert services are provided in a luxurious, private setting by certified, experienced medical staff, in the worlds largest, most advanced, single person acrylic hyperbaric chambers.

Carolina Pediatric Dysphagia Carolina Pediatric Dysphagia is a feeding therapy practice with offices in Durham and Raleigh. It's website offers several handouts, and a poster about feeding difficulties.

Carolinas Cystic Fibrosis Chapter The website of the North Carolina chapter of the Cystic Fibrosis Foundation. At this website, you can get chapter contact information, listings of local chapter events, and information for volunteers.

Cary Speech Services The website for a private speech therapy practice in Cary, NC that includes information about the practice, articles written by staff, a page of links for kids, and more. Note: If you don't like to hear the "It's a Small World" song, turn down your computer's speakers before going to this site.

Cascade DAFO, Inc. Cascade DAFO, Inc. is the exclusive manufacturer of the Dynamic Ankle Foot Orthotic. DAFOs are custom made from casts of the child's lower extremity and can be personalized with different color padding, velcro straps, and ribbon trim. You can find us in Ferndale, Washington between Seattle and British Columbia. Just as doctors specialize, Cascade concentrates on high quality, low cost pediatric braces for the foot and ankle. Our system of bracing allows us to manufacture our braces efficiently, thereby lowering the cost per brace. Keeping costs reasonable is a practical way to control expenses when a child outgrows braces frequently. Cascade is home to several different ankle-foot orthotics, as well as knee braces and a hand/thumb/wrist stabilizing brace. Cascade has many different DAFOs specifically designed with the pediatric population's needs in mind.

Caswell County Partnership for Children A non-profit organization led by local volunteers, designed to provide programs and services for families and children in Caswell County, North Carolina. This website includes informatin about the Partnership and its programs, including contact information, an events calendar, and more.

Center For Children with Special Needs This web link will direct you to the resources page of the Center for Children With Special Needs (a Program of Children?s Hospital and Regional Medical Center in Seattle, WA) site. Although much of the information is specific to children in Washington state, the web page also includes a wealth of pertinent information ranging from diagnosis specific fact sheets, injury prevention, playground safety, and school and transitioning topics. Some of the materials are available in Spanish.

Center for Accessible Technology Center for Accessible Technology has articles about the latest developments in voice input technology of specific interest to users with disabilities.

Center for Medical Home Improvement Housed at Children's Hospital at Dartmouth-Hitchcock Medical Center, the Center for Medical Home Improvement strives to establish and support networks of parent/professional teams to improve the quality of primary care medical homes for children and youth with special health care needs and their families. At this website you can find lots of useful information and resources including an online newsletter, relevant website links, the medical home improvement kit, and more.

CenterWatch Clinical Trials Listing Service Provides a wealth of information related to clinical trials, such as a listing of more than 41,000 industry- and government-sponsored clinical trials as well as new drug therapies recently approved by the FDA.

Centers for Disease Control and Prevention An agency of the national Department of Health and Human Services, the Centers for Disease Control and Prevention (CDC)promotes health and quality of life by preventing and controlling disease, injury, and disability. In addition to general facts about the CDC, this website includes current health news, funding information, data and statistics, health topics, other sites, and on-line publications. Anyone planning to travel outside of the U.S. should be sure to check out the information for travelers. Also has information in Spanish.

Cerebral Palsy Info Central The goal of CPIC is to educate people about cerebral palsy, to provide a central place on the Internet for people to find information about cerebral palsy, and provide support to those who have cerebral palsy and their families and healthcare providers.

Cerebral Palsy Magazine A quarterly special-interest publication focusing on issues related to cerebral palsy. Includes articles written by professionals, parents and individuals (children, teenagers and adults) with CP, standard and alternative treatments, equipment and books reviews, insurance and billing, work, school and social issues, research, and more. This website, run by a husband and wife team in Michigan, allows you to order the magazine in paper or CD-ROM form.

Cerebral Palsy Resource Center The Bissell family includes two sons who have cerebral palsy. Their family webpage provides general information related to CP, book lists, information on hippotherapy, links to related listservs (including one specifically for fathers of children with special needs) and other resources.

Certified Child Safety Seat / Child Restraint Technician Contact Locator A state by state list of certified child restraint technicians who can make sure that your child's car seat is properly installed and is up to current safety standards. Sponsored by the National Highway Traffic Safety Association.

Challenged Athlete Fund Challenged Athletes Foundation to provides opportunities and support to people with physical disabilities to pursue an active lifestyle through physical fitness and competitive athletics. They provide stipends for adaptive sports equipment such as sport wheelchairs (basketball, tennis, rugby, soccer), monoskis, tandem bicycles, and sports prosthetics. They also provide mentorship and community outreach programs. This website offers information about the organization, directions for requesting funds, an events calendar, and more.

Cherab The Cherab Foundation is a nonprofit organization working to improve the communication skills and education of all children with speech and language delays and disorders, with an emphasis on verbal and oral apraxia. This website describes the organization, provides a link to their discussion list, and provides useful information and resources.

Child Care Law Center A national nonprofit legal services organization that uses legal tools to make high quality, affordable child care available to every child, every family, and every community. This website contains information about the organization, online versions of its quarterly newsletter, links to related websites, and more.

Child Care for Children with Special Needs An excerpt from the American Academy of Pediatrics' "Caring for Your Baby and Young Child: Birth to Age 5" (Bantam 1998)this page offers suggestions on finding appropriate day care services for a child with special needs.

Child Care for Children with Spina Bifida A brochure from the Spina Bifida Association of America (1998) that answers commonly asked questions about how the Americans with Disability Act (ADA) affects the inclusion of children with spina in day care centers.

Child Care plus+: The Center on Inclusion in Early Childhood This website offers a number of free and inexpensive resources to help facilitate the inclusion of young children with disabilities in early childhood programs.

Child Nutrition Web Page Web page for the US Department of Agriculture'sChild and Adult Care Food Program (CACFP). Through this program, children in child care settings have access to healthy meals and snacks. Day care centers and home day care providers can participate in the programs.

Child and Family Services This Section of North Carolina's Division of Mental Health, Developmental Disabilities and Substance Abuse Services provides services to children and youth with mental health needs across our state. This website includes information about the Section, a staff directory, a listing of local programs, a training calendar and much more.

Childhood Apraxia of Speech Association of North America (CASANA) Information about apraxia and dyspraxia of speech in children, from the not for profit Childhood Apraxia of Speech Association of North America. The most comprehensive site on this topic currently available. This website provides information about the organization, an extensive resource directory, links to community support groups and other related sites, a public message board, how to find a speech-language therapist, a monthly newsletter, calendar of events, and much more.

Childhood Immunization Support Program From the American Academy of Pediatrics. This web site features information for immunization health care professionals, including printable handouts, resources for parents and providers, the latest childhood immunization schedule, interactive games and videos and more.

Children Who Won't Go to School (Seperation Anxiety) An online fact sheet from the American Academy of Child and Adolescent Psychiatry. Offers tips to parents on how to recognize signs or seperation anxiety related to school.

Children and Adults with Attention-Deficit/Hyperactivity Disorder A National non-profit organization representing people with AD/HD (attentin deficit/hyperactivity disorder) that works to improve their lives through education, advocacy, and support. The website contains fact sheets, news releases, local chapter contact numbers (there are 11 in NC), research/ clinical trials information, advocacy tips for special education, and related links.

Children with Disabilities Website This Web site is part of a joint effort by several Federal agencies to promote a national agenda for children and foster positive youth development. The site provides information of interest to children with disabilities, their families, and service providers on learning disabilities, debilitating conditions, and physical disabilities and includes information on advocacy, education, employment, health, recreation, training, and housing.

Children with Spina Bifida A reource page for children with spina bifida designed by a parent for parents

Children's Cancer Web A Guide to Internet Resources for Childhood Cancer

Children's Defense Fund CDF provides a strong, effective voice for all the children of America who cannot vote, lobby, or speak for themselves. We pay particular attention to the needs of poor and minority children and those with disabilities. CDF educates the nation about the needs of children and encourages preventive investment before they get sick or into trouble, drop out of school, or suffer family breakdown.

Children's Flight of Hope Based at Raleigh-Durham airport, nonprofit organization provides free air transportation to and from distant medical facilities for children with critical medical needs. The site includes information about the program, requirements for applying and traveling in the program, testimonials, and more.

Children's Hemiplegia and Stroke Association A non-profit family focused organization which offers support and information for families of children who have hemiplegia, hemiparesis, or childhood, infant, or in utero stroke. This website includes information about the organization, medical and therapy information, a newsletter, chatroom , links, and more.

Children's Law Clinic A program of the Duke University School of Law the Children's Law Clinic provides free legal advice, advocacy, and legal representation to low-income children. The Children's Law Clinic is one of the few programs in North Carolina with expertise in special education and school discipline law. This website offers program and contact information.

Children's Neurobiological Solutions Foundation Neurological Disorders Disable 14 Million Children in the US: CNS is a nonprofit research foundation improving the lives of children disabled by neurological disorders through research focused on brain repair and regeneration.

Children?s Brain Tumor Foundation This website provides information and resources to assist you in accessing expert care to ensure quality of life for a child who has a brain or spinal cord tumor.

Circle of Inclusion The Circle of Inclusion Web Site is for early childhood service providers and families of young children. This web site offers demonstrations of and information about the effective practices of inclusive educational programs for children from birth through age eight.

Cleft Advocate Cleft Advocate supports, educates and inspries families affected by cleft lip/palate and other craniofacial anomalies.

Cleveland Clinic Foundation Children's Hospital for Rehabilitation- Games Computer games for children including, checkers, tic tac toe, save kid city, and flip the chips.

Clinical Center for Development and Learning A multidisciplinary research, technical assistance, and leadership training center dedicated to improving the lives of individuals with developmental disabilities. A component of the University of North Carolina School of Medicine, this nationally renowned center provides exceptional programs for people with developmental disabilities and their care providers. This website provides an overview of the center, descriptions of its programs, biographies of its faculty and staff, links to relevant websites, and other information

Closing the Gap - Computer Technology in Special Education and Rehabilitation A Minnesota-based organization that focuses on computer technology for people with special needs. Offers a bi-monthly newspaper, annual international conference and web site (with advertising). Published six times a year, the Closing The Gap newspaper highlights hardware and software products appropriate for people with special needs, and explains how this technology is being implemented in education, rehabilitation, and vocational settings around the world.

Cognitive and Developmental Disabilities Resources A listing of over 100 websites (in alphabetical order) from the Waisman Center at the University of Wisconsin at Madison.

Collaborative Early Intervention National Training e-Resource Based at the University of North Carolina at Greensboro, this nationwide program seeks to inform and support graduate-level professionals serving families with infants and toddlers who are deaf/hard of hearing through transdisciplinary web-based training modules. This website contains information about the program, lists of state contacts, related books and links, tips, and FAQs. Sponsored by the United States Department of Education.

College Transition and Access Located at the University of Washington, this organization helps people with disabilities successfully pursue academics and careers such as science, engineering, mathematics, and technology. Students with disabilities can maximize their independence. The website contains publications which address issues surrounding transition from high school to college and beyond for people with disabilities. The website contains information about DO-IT (Disabilities, Opportunities, Internetworking, and Technology), which helps high school and college students with disabilities explore careers and gain prerequisite knowledge to studies and employment.

Columbia Medical Mfg. Offers basic positioning, bathroom, and other supports for physically disabled children and adults.

Commonly Asked Questions About Child Care Centers and the ADA Answers to 30 frequently asked questions about child care centers and the Americans with Disabilities Act. From the United States Department of Justice.

Communication Aid Manufacturer's Association The Communication Aid Manufacturers Association (CAMA) is a not-for-profit organization of the world's leading manufacturers of augmentative and alternative communication (AAC) software and hardware products. This website provides information about the companies who make up this organization, and lists the more than thirty 1-day workshops offered throughout the United States each year.

Community Partnerships, Inc. Based in Raleigh, this private, nonprofit agency provides services to people with disabilities of all ages, children younger than three who are at-risk of developing a disability, and the families of people with disabilities. This website offers information about the organization, its programs (including early intervention and vocational rehabilitation services), and its upcoming events.

Congenital Cytomegalovirus Infection Information about cytomegalovirus (CMV) infection from the U.S. National Library of Medicine and the National Institutes of Health.

Consortium for Appropriate Dispute Resolution in Special Education The National Center on Dispute Resolution, CADRE uses advanced technology as well as traditional means to provide technical assistance to state departments of education on implementation of the mediation requirements under IDEA '97. CADRE also supports parents, educators and school administrators to benefit from the full continuum of dispute resolution options that can prevent and resolve conflict and ultimately lead to informed partnerships that focus on results for children and youth. This website contains handouts, audio clips, videos, calendars and more. Funded by the United States Department of Education, Office of Special Education Programs.

Consortium of Developmental Disabilities Councils CDDC is a member-driven organization that is committed to representing the diverse interests of Developmental Disabilities Councils and the people with disabilities that Councils were created to serve.

Construction And Renovation Endeavors This company, based in Cary, NC, builds custom wheelchair ramps and grab bar installations, in addition to many other home construction and repair needs.

Consumer Products Safety Commission Consumer Products Safety Commission, an independent Federal regulatory agency, helps keep American families safe by reducing the risk of injury or death from consumer products. Visit us often to share lifesaving information. Go to "Report unsafe products" to send us information on-line.

Cool Hub Caps A company that sells customized spoke guards for wheelchair users. This website offers an online product catalog, and directions to ensure a good fit.

Coping with Chemo A collection of online animated stories, called "webisodes" designed for teenagers with cancer. These webisodes use colorful graphics, animation, and an engaging storyline to help teens: ? Learn to cope with having cancer and undergoing treatment. ? Talk more openly about their illness and treatment with friends, family and the health care team. ? Maintain a positive outlook throughout treatment. ? Feel less isolated. ? Better manage interactions with friends and peers. From the Starlight Starbright organization.

Council for Exceptional Children An international professional organization dedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities, and/or the gifted. Sets professional standards, provides continual professional development, and helps professionals obtain conditions and resources necessary for effective practice. The website is a great resource for school related issues. Includes the federally funded Educational Resources Information Center on Disabilities and Gifted Education.

Counseling Families Who Choose Complementary and Alternative Medicine for Their Child With Chronic Illness or Disability A policy statement (March 2001) from the American Academy of Pediatrics which provides information and assistance for pediatricians when counseling families about complementary and alternative medicine (CAM).

Covenant with NC's Children Made up of more than 130 civic organizations, professional associations, advocacy groups and individuals who share an interest in improving the lives of children and youth in our state the Covenant works to ensure that children?s issues get a thorough hearing by the state legislature. The Covenant's Work Groups (including Early Childhood, Education, Health, and others)analyze the issues in their field and make recommendations for action to the full Covenant. At this website you can learn more about this organization, send messages to your representatives in the General Assembly as a "cyberlobbyist", get weekly updates of what's happening in the legislature and more.

Craniosupport This site offers support to families dealing with crainiosynostosis, it is the web home of a support organization for anyone who has had a craniofacial disorder affect their life

Creativity in Motion The website of Jennifer Pegram, an educational consultant and dancer who offers both private and semi-private dance classes as well as tutoring sessions in the areas of reading, writing, and math for students with special needs in grades Pre-K to 8 in Cary, NC.

Cumberland Hospital A hospital for children and adolescents located in Kent, Virginia with a focus on sub-acute rehab and care programs for patients with brain injury, neurobehavioral conditions, chronic illness and more.

Custom Weighted Vests An online company run by the parent of a child with sensory processing disorder, this website gives you information about custom made weighted vests and blankets that are said to improve attention and focus, body awareness and regulation.

Cystic Fibrosis Foundation This non-profit organization encourages the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease. Founded in 1955, the CFF works closely with medical professionals, reserchers, the government, people with CF, and families. This website includes an on-line pharmacy, fact sheets, additional resources, locations of CF centers across the country, and information on clinical trials. The CFF also offers free brochures and videos that can be ordered online.

D-B Link The National Information Clearinghouse On Children Who Are Deaf-Blind, is a federally funded information and referral service established to collect, develop and distribute information to help improve the education and lives of children and youth with vision and hearing impairments, ages birth to 21. On this website, you can find the DB-LINK Catalog database listing articles, books, and other materials, the DB-LINK Resource database listing agencies, organizations, and personnel, DB-LINK publications, bibliographies, and job opportunities for professionals in the field of deaf-blindness.

DanceAbility International DanceAbility International?s mission is to encourage the evolution of mixed-abilities dance by cultivating a common ground for creative expression for all people. The mission is accomplished through performance, educational programs, teacher training and workshops. This website has information about the organization, videos of dances, an online store and more.

Deaflinx Deaf Linx is designed to be a one-stop shop for legal deaf cultural resources, American Sign Language (ASL) resources, deaf education, and deaf services. Health care, government assistance, real estate access, insurance, and travel also may create issues that uniquely affect deaf people and their families. There are many resources available here to help you find the information and programs that can greatly improve the deaf community, as well to help deaf individuals and their friends and family navigate all of the concerns that may arise in these areas. Whether you were born deaf, suffer from degenerative hearing, or are the parent or loved one of a deaf child, Deaf Linx has valuable information to help you find the information you are looking for.

Deafness Research Foundation The Deafness Research Foundation participates in the hunt for causes, treatments, and prevention of deafness and hearing impairments. A non-profit organization, DRF dedicates most of its website to information on current research grants, but you can also find a bookstore, on-line access to publications, and related links on this site.

Dental Care for Children with Special Needs Financial Aid Program Sponsored by the Humanitarian Foundation of the Grottoes of North America, this program helps to provide free dental care to children who have Cerebral Palsy, Muscular Dystrophy, Mental Challenges or who have received an Organ Transplant. The program allows families to see their local dentists and helps to cover what insurance does not include. This webpage provides information about the program and how families can access these funds.

Department of Justice ADA Home Page Department of Justice ADA Home Page

DermAtlas.org An online atlas of over 7000 photographs and descriptions of skin, hair and nail abnormalities that can be searched by categories, diagnoses and body sites. While written for health care professionals, the information is available for anyone to view online.

Developmental Disabilities Nurses Association A national voluntary nursing specialty organization that works to promote standards for the enhancement of the practice of providing quality nursing care delivered to individuals with developmental disabilities. This website provides information about the organization, its certification program, products, and annual conference.

Developmental Disablities Training Institute Based at the University of North Carolina in Chapel Hill, the DDTI helps people with develomental disabilities transition through each stage of their lives by informing professionals about best practices and training them to provide better care for their clients.

Developmental Therapy Associates A private occupational and speech therapy clinic with offices in Durham and Cary, NC which specializes in sensory integration evaluation and treatment. This website offers information about clinic programs, an overview of sensory integration dysfunction, a quarterly newsletter and links to related websites.

Diagnostic Teaching Clinic at NCSU (Raleigh) A source for comprehensive psycho-educational assessments for students who exhibit learning and learning-related problems and have difficulties functioning in a regular school classroom.

Disability Link Barn A compilation of over 1700 unreviewed links of varying quality provided by Access Unlimited, a company specializing in accessible vehicles.

Disability Rights Advocates Founded in 1993, Disability Rights Advocates is a national and international non-profit organization dedicated to protecting and advancing the civil rights of people with disabilities. Operated by and established for people with disabilities, DRA pursues its mission through research, education, and legal advocacy. DRA's mission is to ensure dignity, equality, and opportunity for people with all types of disabilities throughout the United States and worldwide.

Disability Services at UNC-Chapel Hill The Department of Disability Services (DDS), a part of the Division of Student Affairs, works with departments throughout UNC-CH to assure that programs and facilities are accessible to every student in the University community. Additionally, DDS provides reasonable accommodations so students with disabilities who are otherwise qualified may, as independently as possible, meet the demands of University life. This website provides information about eligibility, services, and policies and procedures.

Disability World The web-zine of the International Disability Exchanges and Studies (IDEAS) Project 2000-2004, supported by the U.S. Department of Education National Institute on Disability and Rehabilitation.

Disability World en Espanol The spanish version of the bimonthly e-newsletter of international disability news and views.

Disabled Children's Relief Fund Non-profit organization that provides disabled children with assistive devices, rehabilitative services, and support for arts and humanities projects. DCRF provides disabled children with equipment, prostheses, and rehabilitative services throughout the United States. DCRF focuses special attention on helping children that do not have adequate health insurance, especially the physically challenged. In some cases, DCRF may be the last resort.

Disabled Sports USA DS/USA offers nationwide sports rehabilitation programs to anyone with a permanent physical disability. Activities include winter skiing, water sports, summer and winter competitions, fitness and special sports events. Participants include those with visual impairments, amputations, spinal cord injury, dwarfism, multiple sclerosis, head injury, cerebral palsy, and other neuromuscular and orthopedic conditions.

Division TEACCH Division TEACCH (Treatment and Education of Autistic and related Communication handicapped Children) is a comprehensive, community-based program dedicated to improving the understanding and services for autistic and communication handicapped children and their families across the state. This website decribes TEACCH's programs, lists its regional centers, and offers information and resources about autism, Asperger's syndrome, pervasive developmental disorders (PDD) and strategies for inclusion of children with autism-spectrum conditions.

Division of Vocational Rehabilitation The Division of Vocational Rehabilitation offers services to persons who have mental and/or physical disabilities whcih prevent them from getting and keeping a job. Finding and maintaining employment serves as the overall goal of a VR consumer. During the process of obtaining a job, VR can provide numerous services including assistive technology, transportation, rehabilitation technology, vocational assessment, supported employment, job coaching, on-the-job training, and much more. Be sure to check out the "VR Services to Consumer" link on this website. This link takes a consumer through the entire VR process and what he/she can expect at each step.

Division on Career Development and Transition DCDT is a part of the department of special education associated with the University of Illinois Urbana-Champaign which focuses on the career development of children, youth and adults of all ages and exceptionalities. DCDT also focuses on transition from school to adult life as a major component of the career development process. The website contains information on undergraduate and graduate programs, resaearch opportunities and student affiliate organizations.

Does your Child Have OCD? An online fact sheet from the Nemours Foundation that outlines the signs and symptoms of Obsessive Compulsive Disorder in children.

Dogs for the Deaf, Inc. Rescuing unwanted dogs and professionally training them to serve, Dogs for the Deaf provides new freedom for the hard of hearing and a new level of opportunity and enjoyment.

Down Syndrome: Health Issues Web site featuring essays authored by pediatrician on various aspects of Down Syndrome. Articles address causes, diagnosis, and health guidelines related to Down Syndrome.

Dr. Greene's Housecalls Dr. Greene is a pediatrician and internet physician from California who answers pediatric questions submitted by readers from all over the world. This website, one of the very first physician sites on the internet, provides bios about Dr. Greene and his website colleagues, FAQ sections, a dictionary of childhood medical conditions, online chatroom and bulletin boards, and more.

Dreams - A Short Video about People who have Down Syndrome An online video from the National Down Syndrome Society that features children and adults who have Down syndrome talking about their dreams and what they're proud of in their lives.

DynaVox Technologies DynaVox Technologies is a company that creates tools to make it easier for individuals challenged by significant speech, language, learning and physical disabilities to communicate and take control of their lives. At this website you can learn more about their products, funding resources, tech support, and more.

Dynamic Therapy A pediatric therapy practice located in Apex, NC, that provides pediatric occupational therapy, physical therapy and speech therapy services. At this website, you can learn more about the practice's services, location, and personnel.

Each of Us Remembers... Created by a group of parents and providers from United Cerebral Palsy of America, this printable 26 page booklet offers wonderful information by parents, for parents of young children recently diagnosed with cerebral palsy.

Early Childhood LINK Based within the Clinical Center for the Study of Development and Learning at UNC-Chapel Hill, the Early Childhood LINK program provides training and technical assistance to improve the ability of local providers to offer transdisciplinary early intervention services to young children with autism, hearing impairment, visual impairment/blindness and/or mental health challenges. While currently concentrating its training activities and services in Brunswick, Columbus, Duplin, New Hanover, and Pender counties, the LINK website offers information and resources about these low incidence disabilities to people across the state and beyond.

Early Childhood Music and Movement Association The Early Childhood Music & Movement Association is an organization of professional educators dedicated to uniting music and early childhood professionals for the benefit of children. This website describes the organization, lists its conference offerings, and provides links to relavant websites.

Early Intervention Training Center for Infants and Toddlers with Visual Impairment A collection of resources designed to build the capacity of colleges and universities to prepare personnel to serve infants and toddlers who are blind or have visual impairments and their families. At this website, you can find handouts, bibliographies, website links and more. Based at the Frank Porter Graham Child Development Institute.

Early Intervention and Early Childhood Libraries At this website, users can search North Carolina's Early Intervention and Early Childhood libraries by keyword (a list is provided), title or author and then contact them to borrow the materials. A short list of related websites is also provided.

Early and Periodic Screening, Diagnosis, and Treatment program (EPSDT) The Early Periodic Screening, Diagnosis, and Treatment (EPSDT) Program is the child health component of Medicaid. It's required in every state and is designed to improve the health of low-income children, by financing appropriate and necessary pediatric services. This website provides information about how EPSDT works with public health, families, managed care organizations, pediatricians, and other health providers.

Easter Seals UCP North Carolina Easter Seals UCP North Carolina creates opportunities, promotes individual choice and changes the lives of children and adults with disabilities by maximizing their individual potential for living, learning and working in their communities. Services include individual and family support, children's therapy, advocacy, recreation, equipment, and support groups. This website includes descripitons of their services, news about their programs, job opportunities, and more.

Educating Children with Autism A 2001 report from the National Academy of Sciences that explores education interventions for young children with autism. To read the report online, click on the icon in the upper left portion of this homepage.

Ehlers-Danlos National Foundation Based in Los Angeles, California, this national non-profit organization provides support and information to those with Ehlers-Danlos Syndrome through a quarterly newsletter, support groups, and published articles listed on the website. The website also has links to similar disorders and features a kid's corner to provide information to children in an easy to read manner.

Emerge - A Child's Place The website of a private pediatric occupational therapy practice in Chapel Hill and Durham, that serves children with sensory integration dysfunction, behavior challenges, feeding difficulties, and more. The website gives a brief overview of their philosophy, services, and locations.

Emergency Medical Services for Children A national initiative designed to reduce child and youth disability and death due to severe illness or injury. This orgnization works to ensure that state-of-the-art emergency medical care is available for all ill or injured children and adolescents and that they have access to the entire spectrum of emergency services, including primary prevention of illness and injury, acute care, and rehabilitation. Make sure you check out their section entitled "Rehabilitation and Children with Special Needs". It has an emergency medical form for children with special health care needs that can be downloaded using adobe acrobat (you can get this tool from the TelAbility Tools section).

Emergency Preparedness for Children with Special Health Care Needs This website describes the American Academy of Pediatrics' joint effort with the American College of Emergency Physicians to improve the quality of emergency care provided to children with special needs. The site also includes links to a specialized form that can be printed out and filled out by hand or can be completed on the computer in Microsoft Word that will provide important information about the child to help their health care providers better care for them in case of an emergency.

Employment Assistance Referral Network This program , sponsored by the US Department of Labor's Office of Disability Employment Policy, is designed to assist employers in locating and recruiting qualified workers with disabilites. A good way to help young adults with disabilities make the transition to work.

Enabling Devices-Toys for Special Children Enabling Devices, a division of Toys for Special Children, Inc., is a New York based company dedicated to developing affordable play, learning, and assistive devices to help people with disabling conditions. This site allows you to learn about and purchase their many toys and assistive technology products.

Entristar Gastrostomy Button This gastrostomy button (g-button) from Tyco Healthcare Company is another option for feeding children who don't tolerate BARD or MICKEY g-buttons.

Epilepsy Foundation A national, charitable organization dedicated to work for children and adults affected by seizures through research, education, advocacy and service. This website contains information about the organization, conferences, answers to common questions about seizures (including a section in Spanish), news, chat rooms, research information, and much more.

Epilepsy Foundation of North Carolina Maintained by the Charlotte chapter, this website offers contact information about this organization serving children and adults with seizure disorders and lists some articles from the Charlotte Epilepsy Advocate newsletter.

Equus Heals Located in the Sandhills Region of NC, this non-profit organization provides individualized sessions of therapeutic horseback riding (hippotherapy) and other modalities for children with special needs. Established in 2000. The program has been designed around the NARHA (North American Riding for the Handicapped Association)Standards and Guidelines for Accreditation. The website describes the programs, including therapeutic and educational opportunities, contact information, and links to similar organizations. (Editor's Note: We've found that the host for this website puts an ad onto each new webpage when it opens. Although this does not affect the quality of the website, it can get a little irritating for frequent visitors)

Evaluating Managed Care Plans for Children with Special Needs A product of the Children with Special Health Care Needs Continuing Education Institute at Children's Hospital, Columbus, Ohio.

Everybody's Airline Directory Travel advisory site that lists the world's major airlines with information on their arrangements for disabled passengers. Issues covered include carriage of wheelchairs or guide dogs, ability to provide oxygen, boarding procedures, seating arrangements, and the ability to cater for special dietary requirements, as well as whether medical clearance is requires and if information on emergency procedures is available in different formats such as Braille or large print.

Exceptional Children's Assistance Center The ECAC is a federally funded, statewide education, advocacy, and training program for families with school aged children who have disabilities. Their website includes information about their various programs, a listing of upcoming workshops, materials available from their lending library, and related links.

Exceptional Parent Magazine The online version of a magazine devoted to parenting children with physical or mental handicaps. Good resources for equipment, mobility, etc.

Excite A popular search engine

FEAT of North Carolina Families for Early Autism Treatment (FEAT) is a not-for-profit organization of parents and professionals founded to help families with children with the diagnosis of autism or pervasive developmental disorder (PDD) and to promote the use of Applied Behavioral Analysis (ABA) in their treatment. This website describes the organization, offers resources in our state, has links to relevant websites, an events calendar, and more.

Families for Early Autism Treatment of North Carolina FEAT of NC is a not-for profit organization that provides resources and support to families with autistic children. This website describes the organization, offers information about autism and the use of applied behavior analysis in its treatment, listings of ABA tutors, links to related websites, and more.

Families of Spinal Muscular Atrophy This non-profit organization of families of children with spinal muscular atrophy (SMA) focuses on supporting each other and raising funds for research designed to find a cure for this condition. This website has information about SMA, lists local chapters (including the NC chapter headquartered in Cary), provides updates on research activities, has a section of SMA-related links, and lists pen-pals for children with SMA.

Family Center on Technology and Disability This program is designed to assist organizations and programs who serve families of children with disabilities by providing information and support on accessing and using assistive technology. It is run through the United Cerebral Palsy Associations and their project partners, Alliance for Technology Access (ATA), the Parent Advocacy Center on Education (PACER), Academy for Educational Development (AED), and InfoUse. This link will take you to their front page where you can choose between their text-only or graphical websites.

Family Centers Web Discussion Group The purpose of the Family Center's Web Discussion Group is to facilitate communication and collaborative efforts among organizations that serve families of students with disabilities. The Discussion Group will be an on-line arena for individuals to discuss topics related to technology. Discussions will be moderated by the Family Center staff.

Family Support Network of North Carolina This organization provides information about disabilities, services and agencies which serve families of children who have special needs. Their Central Directory of Resources is a computerized database housing over 15,000 files of information and materials that may be helpful to families of children who have or are at risk for developmental disabilities. Contains links about resources, organizations,special education, advocacy, and assistive technology. Be sure to look at their listings of local Parent to Parent Support Groups to find one near you. To contact them by phone, call 1-800-852-0042.

Family Support Network of Western North Carolina A parent-to-parent program for families of children with special needs who live in Western North Carolina. This website provides information about the organization, its many programs, links to disability related websites, fact sheets, and more.

Family Village A wonderful program for anyone with a disability, this website integrates information, resources, and communication opportunities on the internet for persons with disabilities, for their families, and for those that provide them services and support. Includes informational resources on specific diagnoses, communication connections, adaptive products and technology,adaptive recreational activities, education, worship, health issues, disability-related media and literature.

Family Voices Family Voices, a non-profit organization, acts as a national clearinghouse for information to improve the health care of children with special needs. This website includes information on policy issues, publications, state resources, and related links. Be sure to explore the "Advocate's Corner" when browsing this site and look into their information on ways to improve the transition to adulthood for children with special needs.

Family Voices-North Carolina Many groups focus on particular childhood illnesses or populations. Others represent children and adults, or concentrate on specific reform proposals. Until Family Voices was formed, there was no national organization that spoke for all children with special health needs. Family Voices believes that children with special health needs face common problems caused by fundamental inadequacies in our health care system. Family Voices does not support any specific health care reform plan. Instead, the role of Family Voices is to advocate for the inclusion of a set of basic principles in every health care reform proposal.

Family and Advocates Partnership for Education The Family & Advocates Partnership for Education is a new project which aims to inform and educate families and advocates about the Individuals with Disabilities Education Act of 1997 and promising practices.

Fatherhood Initiative A program of the United States' Department of Health and Human Services. This website includes an incredible amount of information on fatherhood ranging from ways to improve opportunities for low-income fathers to a "Toolkit for Fatherhood."

Federal Interagency Coordinating Council The Federal Interagency Coordinating Council will assure that all children ages zero to eight with or at risk for developing disabilities and their families benefit from an integrated, seamless system of services and supports that is family centered, community based, and culturally competent. As a result of this system, children with disabilities will have their physical, mental, health, developmental, and learning needs met in order to reach their full potential. The Federal Interagency Coordinating Council facilitates successful outcomes for young children with disabilities and young children at risk for developing disabilities and their families by: * effectively developing federal interagency policies, * identifying and recommending strategies for the coordination of federal program and fiscal resources, * minimizing fragmentation and duplication in programs and activities at the federal level, * developing strategies for the coordination of the provision of federal technical assistance and support activities, * exemplifying partnerships across federal programs, * ensuring that all supports and services are designed and implemented in a culturally competent, appropriate, and respectful manner, and ensuring that all children, regardless of culture, have maximum access to the full range of supports and services that are due them by federal law.

Federation for Children with Special Needs Based in Massachusetts, The Federation provides technical assistance,information, and support services to help families of children with special needs. There is a focus on special education and this site is a great resource for advocacy tips, IEP's and general information about IDEA (the Individuals with Disability Education Act). The site also has a text-only version available through the homepage.

Federation of Families for Children's Mental Health A National parent-run organization focused on the needs of children and youth with emotional, behavioral or mental disorders and their families. This website provides a description of the organization, a listing of affiliates (there are at least two in NC), and links to relevant sites.

Fetal Diagnosis and Treatment at Vanderbilt University Medical An electronic patient information brochure for the Fetal Diagnosis at Treatment Unit at Vanderbilt University. This program has been performing fetal surgery for spina bifida. This site contains updated statistics, information about the program, and a virtual tour of the surgical process.

First Words Project FIRST WORDS Project is a model early identification and intervention program based in the Department of Communication Disorders at Florida State University. Staffed by speech-language pathologists and interdisciplinary consultants, they are funded to evaluate the communication development of children from 6 to 24 months of age in Leon County, Florida. This website describes their project and it's local activities, but also provides handouts on speech milestones, resources for child care providers, and links to other relevant sites.

First in Families of North Carolina First In Families of North Carolina believes: people with disabilities and their families should have the right to make independent choices and decisions about their lives; service delivery systems should be customer focused, flexible and incorporate the principles of self-determination. All of the First in Families Projects in NC offer funding to directly support families with children with developmental disabilities or delays. (Click on the "Projects" button for contact information to request an application.) First In Families of North Carolina supports program concepts and policies framed by dignity, cultural sensitivity, informed choice and personal control of resources by individuals with developmental disabilities and their families. It provides leadership to guide innovations in the service delivery systems for individuals with disabilities and their families; and supports the development of cohesive policies through the state.

Flaghouse The Special Populations catalog has everything from standers to scissors from many manufacturers.

Focus Families Focus Families helps parents and caregivers with children who have Optic Nerve Hypoplasia (O.N.H.) and Septo-Optic Dysplasia, (S.O.D.), also known as deMorsier syndrome. The website provides information about the organization, an online glossary of terms, a calendar of events, parent support resources, and more.

Food and Nutrition Information Center The Food and Nutrition Information Center (FNIC) is one of several information centers at the National Agricultural Library (NAL), part of the United States Department of Agriculture's (USDA) Agricultural Research Service (ARS). You can access all of FNIC's resource lists and databases, as well as many other food and nutrition related links from this award winning site. Follow these links to learn more about FNIC and how to borrow library materials.

Frank Porter Graham Child Development Institute The Frank Porter Graham Child Development Institute is one of the nation's oldest multidisciplinary institutes for the study of young children and their families. Research and education activities focus on child development and health, especially factors that may put children at risk for developmental problems. This website offers information about the institute and its many programs, investigators, publications, and products.

Frequently Asked Questions About Brain Injury In Children And Adolescents A list of FAQs about brain injury in children and adolescents. Answers provided by Marilyn Lash, a social worker and co-chair of the Special Interest Group on Children and Adolescents for the Brain Injury Association of America.

Frequently Asked Questions about CMV General information about cytomegalovirus (CMV) from the U.S. Centers for Disease Control (CDC).

Funding of AT Booklet series A complete set of assistive technology funding booklets published by United Cerebral Palsy and Neighborhood Legal Services, Buffalo, NY.

GCF Global Learning GCF Global Learning is a training program of the GCF Community Foundation, administered by Goodwill Industries of Eastern NC. Offering free web-based computer classes, GCF also has a partners program for organizations interested in using their curriculum to teach basic computer skills.

Gaining and Growing Homepage Originating from Washington state, this website is designed to provide information to community health professionals who work with premature infants, especially those with very low birthweight (<1500 g) in hopes that assuring adequate nutritional status will improve outcomes and family life for these children. Offers the following informational resources: Nutrition Assessment; Nourishing the Very Low Birth Weight Infant After Discharge; Feeding the Very Low Birth Weight Infant at Home; What Parents Say About Feeding Preterm Infants; Decision Trees for Clinical Services; Case Studies; Resources for Nutritional Services; Gaining and Growing Brochure which can be downloaded using Adobe Acrobat (Available from the TelAbility Tools section).

General Information About Disabilities This web page contains a handout from the National Information Center for Children and Youth with Disabilities (NICHCY), which gives an overview and definitions of different categories of disabilities. It also describes what qualifies a child for services through IDEA (the Individual with Disabilities Education Act).

Generations Tadpole Assistive Technology Lending Library Based in the Murdoch Center in Butner, NC, Generations-Tadpole lends and delivers low-tech assistive technology devices and toys to families and professionals all across North Carolina. At this website, you can learn more about this organization, search its inventory and borrow materials for free.

Genetic Alliance, Inc. The Genetic Alliance is an international coalition representing more than 300 consumer and health professional organizations with millions of members--all working together to promote healthy lives for everyone impacted by genetics. The Alliance supports individuals with genetic conditions and their families, educates the public and advocates for consumer-informed public policies.

Genetics Home Reference An excellent web site for consumer information about genetic conditions. Each condition and gene summary provides a basic discussion of that topic and links to outside resources for more information. In addition, each genetic condition page links to summaries for genes that are related to that condition. From the National Library of Medicine.

Global Early Intervention Network An internet community for everyone who cares about early intervention. Hosted by Northeastern University.

Google A popular search engine

Governor's Advocacy Council for Persons with Disabilities This state run organization seeks to provide for statewide protection and advocacy program; investigate complaints; pursue legal remedies for protection; review and recommend changes in laws; aid and assist local advocacy program; and advise and assist on employment issues. At this website you can learn more about the organization, disability rights, events, read newsletters and more. Site also available in spanish.

Greater Raleigh Spina Bifida Support Group A new website (started in 2010) from a group of families and providers who care for children with spina bifida in the Triangle region of North Carolina. Here you can find more information about the organization and mission, a calendar about upcoming local events relevant to the group, a blog, photos and other information about group members.

Growth Charts for Children with Down Syndrome An online reference containing growth charts for boys and girls with Down Syndrome. Developed by Greg Richards with oversight by Dr. Len Leshin, a pediatrician and parent of a child with Down Syndrome.

Growth Charts from the CDC New pediatric growth charts from the Center for Disease Control are updated versions that allow you to follow changes in a child's height, weight, head size and Body Mass Index.

HEATH Resource Center The HEATH Resource Center of The George Washington University, Graduate School of Education and Human Development is the national clearinghouse on postsecondary education for individuals with disabilities. Support from the U.S. Department of Education enables HEATH to serve as an information exchange about educational support services, policies, procedures, adaptations, and opportunities at american campuses, and help youth make the transition to adulthood.

Halloween Costumes Instructions and ideas for making halloween costumes for children in wheelchairs. From the Bridge School in Hillsborough, California.

Halloween Safety Tips Safety tips about pumpkin carving, costume wearing, trick or treating, and more, from the American Academy of Pediatrics.

Hatchbacks Footwear A great idea for children who wear braces, these shoes (up to size 3/adult size) open up in the back, making it much easier to fit a foot wearing a brace into and out of the shoe. This website gives you information about their products, allows online shopping and also provides a list of stores in your state that carry their products.

Haverich Adaptive Cycles A manufacturer of tricycles, bicycles and tandems for adults and children with mobility impairments. US affiliate located in New Hampshire, this website contains photographs and information about their bikes and accessories.

Health Care Transitions: College and Beyond A 24-minute online video that tells the story of a young man with arthrgryposis and what it's taken for him to succesfully completes college and make the transition to adulthood. From the Institute for Child Health Policy in Florida.

Health Choice This website describes North Carolina's Health Choice program, a health insurance program for all children and families who make too much to qualify for medicaid, but cannot afford private insurance.

Health Guide for Adults with Spina Bifida An online 76-page Adobe Acrobat pamphlet from the Spina Bifida Association of America. Great for adults with spina bifida and for teenagers about to make the transition to adulthood.

Health Supervision for Children with Down Syndrome Published in 2001, this policy statement from the American Academy of Pediatrics is a guideline designed to help pediatricians care for children with Down Syndrome.

Health on the Net Foundation This group advances the development and application of internet and related technologies. Promulgates a Code of Conduct for the provision of authoritative and reliable information.

Healthy Childcare America The Healthy Child Care America Campaign and the Blueprint for Action are the result of a strong shared vision of the Child Care Bureau and the Maternal and Child Health Bureau. This vision is two-fold: (1) Create and maximize linkages between health care providers and the child care community; and (2) develop comprehensive and coordinated services to benefit children across the country.

Healthy and Ready to Work This is the website for a federally supported program that promotes a comprehensive system of family centered, culturally competent, community-based care for children with special health care needs may need assistance in making the transition from pediatric to adulty health care and to post-secondary education and/or employment. It provides information about the program, a calendar, related links and other materials.

High Five Buddies Program @ Studio Five Dance Company Dance classes for children with special needs that are free of charge. Instructors and student/dance volunteers help students learn dance, work on motor skills and have positive social interactions. Held at High Five Dance Studios in Fuquay Varina, NC For more information, call 919-577-9955 or click on the link below.

Hogan & Allen PLLC A law firm in Raleigh, NC that provides estate planning and special needs trusts for people with disabilities.

Horse Sense of teh Carolinas, Inc Located in Marshall NC, this program provides equine assisted psychotherapy and equine assisted learning ot improve the emotional and psychological health of clients. The website outlines their program, describes equine assisted psychotherapy, provides a calendar of events, and more.

Horse and Buddy Located in Apex, NC, this non-profit organization is dedicated to providing therapeutic horseback riding including sport, recreation, therapy, and education to people with special needs, while encouraging bonding between horse and rider. This website includes information about the program and its staff.

Horsefeathers of NC Located in Clemmons, NC, this non-profit organization provides animal assisted therapy, (including hippotherapy-therapeutic horseback riding) for people with mental, emotional and physical disabilites. This website includes program and contact information, a calendar of events,and photos of recent outings.

Howell Centers, Inc. The homepage of Howell Centers, a private, non-profit corporation serving nearly 550 developmentally disabled children and adults in a variety of ICF/MR certified facilities and group homes across the State of North Carolina from the coast to Charlotte.

Hydrocephalus Association A nonprofit organization, the Hydrocephalus Association seeks to provide support, education, and advocacy for individuals, families, and professionals caring for people with hydrocephalus.This website provides in depth information on hydrocephalus,a national directory of people with hydrocephalus and Hydrocephalus Support Groups, a newsletter, scholarship information, and much more.

Hydrocephalus, Syrinx, Myelomeningocele Resource Guide A page of links and descriptions of resources related to spina bifida and hydrocephalus. Provided by the Massachusettes General Hospital's Neurosurgery section.

Hyperbaric Oxygen Therapy for Brain Injury, Cerebral Palsy, and Stroke An evidence report from the US Department of Health and Human Service's Agency for Healthcare Research and Quality (2003).

I Am Your Child I Am Your Child is a national public awareness and engagement campaign to make early childhood development a top priority for our nation.

IDEA Practices IDEA Practices informs families, professionals, and the public about the Individuals with Disabilities Education Act (IDEA). This website provides information about the act, and up-to-date revisions in the law.

IDEA '97 The Law The full text (available in wordperfect and adobe acrobat formats) of the 1997 Individuals with Disabilities Education Act, covering infant/toddler, and school services. From the United States' Office of Special Education and Rehabilitation Services.

IDEA Center for Universal Design Located at the University of Buffalo, this organization is dedicated to improving the design of environments and products by making them more usable, safer and appealing to people with a wide range of abilities throughout their life spans. This website offer electronic newsletters, bright ideas and product suggestions, links to related sites and more.

IDEA News Updated information designed to answer questions about the Individuals with Disabilities Education Act, inform professionals, families and the public about IDEA '97 and strategies to improve educational results for children and youth with disabilities. This website describes this organization and its members, offers a monthly online newsletter (the IDEA News), provides numerous links, documents, and other resources related to school and special education services. Sponsored by the US Department of Education.

Identifications of Swallowing Patterns Associated with Dysphagia An online tutorial that uses Quicktime videos to teach speech language pathology students about different types of feeding and swallowing disorders. A nice example of what modified barium swallow studies look like. From the Division of Communication Sciences and Disorders at the University of Minnesota at Duluth.

Immunization Action Coalition A nonprofit organization based in St. Paul, Minnesota and supported in part by the Centers for Disease Control (CDC), the Immunization Action Coalition seeks to boost immunization rates and prevent disease through increased community awareness of, and responsibility for, the appropriate immunization of children and adults against all vaccine-preventable diseases. This site includes print materials, updates on immunizations, links to related sites, membership information, and quizzes to test your immunization/vaccination knowledge. Some materials are available in Spanish.

Immunize North Carolina This website, from the Immunization Branch of the North Carolina Department of Public Health, contains information for parents and providers about immunization and vaccines in North Carolina. Includes schedules, laws, event listings, and even a Kids Club section with an activity book that can be downloaded from the site.

Individuals with Disabilities Education Act (IDEA) Hosted by the U.S. Department of Education, this site contains: an overview of the bill, a summary of the bill, and a brief set of frequently asked questions; speeches; training modules and technical assistance on various topics related to IDEA '97.

Infantile Spasms Information This website, sponsored and run by the Child Neurology Foundation, is designed to educate the medical and general community about Infantile Spasms (West Syndrome), a rare seizure disorder. The website offers videos, information about treatment options, and a list of local hospitals where diagnosis and treatment can be performed

Institute for Child Health Policy The Institute for Child Health Policy is a state-wide Institution of Florida's State University System, headquartered at the University of Florida with affiliates at other state institutions across Florida. The Institute focuses its attention on issues related to children in managed care with an emphasis on children with special health care needs. Access, utilization, cost, quality and family involvement are this program's principal areas of interest. This excellent website contains information about the program, policy statements and other products, presentations from other programs funded through the federal Maternal and Child Health Bureau, and a large arrray of useful links. Be sure to look through their set of resources available to help young adults with disabilities transition to work and adulthood.

Insulin Pumpers An international family oriented organization that provides information and support for adults and children with diabetes and their families interested in insulin pump therapy. You'll find chat rooms, links, and even a special section devoted to children with diabetes and the stories about how an insulin pump has changed their lives.

International Association for Disability and Oral Health The International Association for Disability and Oral Health (formerly the International Association of Dentistry for the Handicapped) and still known as the IADH exists to serve as a focus for national academies, associations, societies and federations as well as individuals striving to improve access to, and the quality of, oral health for people with disabilities.

International Brain Injury Association, The The International Brain Injury Association (IBIA) is dedicated to the development and support of multidisciplinary medical and clinical professionals, advocates, policy makers, consumers and others who work to improve outcomes and opportunities for persons with brain injury. The IBIA was created in response to the growing demand from professionals and advocates throughout the world for collaboration and more information on all aspects of brain injury, from prevention to long-term care issues. The IBIA works to develop positive relations and interactions between individuals, families, groups, organizations, institutions, diverse cultures and nations. The IBIA strives to provide international leadership for creative solutions to the issues associated with brain injury.

International Center for Diasbility Resources on the Internet, The The International Center for Disability Resources on the Internet (ICDRI) is a non-profit center based in the United States and designated as a 501 (c)(3) entity. Their overarching vision is the equalization of opportunities for persons with disabilities. As an internationally recognized public policy center organized by and for people with disabilities, ICDRI seeks to increase opportunities for people with disabilities by identifying barriers to participation in society and promoting best practices and universal design for the global community. ICDRI?s mission includes the collection of a knowledge base of quality disability resources and best practices and to provide education, outreach and training based on these core resources. ICDRI makes this information available in an accessible format on their web site. In addition, ICDRI provides Accessibility Oversight Consulting Services as a fee-for-services offering for government, university and private sector clients.

International Center for Spinal Cord Injury An interdisciplinary program at the Kennedy Krieger Institute in Baltimore, Maryland that focuses on rehabilitation and restoration for children with paralysis. This website describes their program, staff, facilities, research, and more.

International Child Amputee Network I-CAN (International Child Amputee Network)provides information and support contacts to families of children with absent or underdeveloped limbs.

International Rett Syndrome Association Over 500 pages of information about Rett Syndrome and the IRSA.

Internet Healthcare Coalition This coalition strives to provide healthcare resources on the internet by seeking to educate consumers, professionals, educators, marketers, the media and public policymakers.

Internet Resources for Special Children The IRSC web site is dedicated to communicating information relating to the needs of children with disABILITIES on a global basis. The bulk of this website is a directory of links to other websites. The online communities section contains threaded discussion lists, and a search engine makes it easier to find specific sites and information.

Island Dolphin Care A not-for-profit organization located in Key Largo, Florida that provides dolphin-assisted therapy to critically ill, disabled, and special needs children.

Jacob's Ladder A private practice in Clayton, NC that specializes in behavioral management strategies for children (ages 2-8) and their families. In addition to psychoeducational groups, programs also include Floor Time,Theraplay, and Parent-child Relationship therapies. Takes Medicaid and Healthchoice. Spanish - speaking receptionists and therapists available.

Jim Mullen Foundation Computer Giveaway Application An application for free computer equipment from a national, non-profit organization based in Chicago, Illinois. Helpful for people who need computers for augmentative communication, vocational training, and more.

JobReady JobReady / School-To-Work, a service of the North Carolina Department of Commerce, is an educational approach that combines classroom courses, high academic standards, and real life learning to prepare our youth for college and / or cutting-edge careers . Local partnerships in all one hundred counties of North Carolina are developing systems that assist all students in progressing successfully through each grade level so they are ready for the next step of their educational preparation and eventually able to compete in a global economy.

Journal Watch - Pediatrics and Adolescent Medicine Journal Watch Pediatrics and Adolescent Medicine keeps clinicians up to date on the most important research appearing in the literature. Launched in February 2002, the publication serves a community of generalist and specialist physicians, nurses and nurse practitioners, and other healthcare professionals. Journal Watch Pediatrics and Adolescent Medicine is published biweekly on the web and ten times a year in print

Juvenile Diabetes Research Foundation of Eastern North Carolina The mission of JDRF is to find a cure for diabetes and its complications through the support of research. The Triangle/Eastern NC Chapter of JDRF covers 51 counties in eastern North Carolina, ranging from the Triangle region to the coast. At this website, you can find more information about the organization, browse its calendar of events, read about clinical trials, and much more.

KIDBASE (Kids Information Database Access System for Emergencies) The website for North Carolina EMS program that enables parents of children with special needs to fill out a medical information sheet that can be used by emergency personnel to optimize care for a child with disabilities. This information sheet was developed by the American Academy of Pediatrics and the American College of Emergency Physicians especially for the use of medically fragile children. The sheet includes the name and address of the child as well as the medical diagnosis, baseline information, current medications, and any emergency medical plans that may already be in place. Copies of this information sheet are then given to the local EMS agency who will keep them on file. This website provides information about the program, and links to the medical information sheet.

Kaleidoscapes Homeschooling discussion forum.

Keeping Children with Special Needs Safe in the Home In 2010, Safe Kids USA partnered with MetLife Foundation to create an online video series designed to help parents and caregivers prevent unintentional injury to children with special health care (CSHCN) needs. The videos focus on a range of topics including fire and burn prevention, drowning, choking and fall prevention. Safety guidelines and step-by-step instructions are included to help parents and caregivers make safety improvements in the home.

Keeping Pace Shoes A Boston-based company that sells children's shoes that fits easily and quickly over a brace/afo without being oversized. This website describes their company, their products, offers FAQs and more.

KidSCope KidSCope is an early intervention program that provides specialized mental health services to young children with or at risk for developmental disabilities in Orange and Chatham counties. This website provides more information about this and other programs of The Chapel Hill Training-Outreach Project, Inc.

Kids on Wheels Magazine This website provides more information about this magazine for children and adults who are wheelchair users, an online advice column, message boards, and much more

KidsHealth-Playground Safety KidsHealth is a project of The Nemours Foundation, dedicated to improving the health and spirit of children. The Foundation also supports important clinical research aimed at translating advances in science into practical ways of improving health care for infants, children, and teens. At the Kids Health site, The Nemours Foundation provides high-impact educational projects that positively affect the health of children, creating award-winning family-friendly health information in a number of formats, including print, video, and online.

LD Online The website of The Learning Project, sponsored by PBS station WETA in Washingtom,DC. This exceptional website is a wonderful source of information about learning disabilities and resources available to optimize students' learning experiences. You can participate in special education bulletin board discussions and online chat rooms, shop their LD resource store, or subscribe to their newsletter. Also available in spanish.

La Leche League International A resource to help families continue breastfeeding their children. Can search the site for "special situtations" and "disabilities" for more information, including materials in Spanish.

Lash and Associates A for-profit company located in North Carolina focusing on the neurological, psychological, communicative, psychosocial and educational impact of brain injuries among children, youth and young adults. This websites lists their informative publications directed towards families, survivors, health care professionals, rehabilitation specialists, educators and community staff caring for people with brain injury.

Learning Disabilities Association A national, nonprofit organization, the Learning Diabilities Association (LDA) works to advance the education and general welfare of children and adults who have learning disabilities. LDA seeks to accomplish its mission through advocacy, education, research, service, and collaborative efforts. This website includes general facts and information about learning disabilities, resources, membership information, and a bookstore. Also be sure to check out the link to our state's LDA page.

Let's Face It Let's Face It USA is a nonprofit network that links people with facial disfigurement and all who care for them to resources that can enrich their lives. These resources include organizations and resources that focus on the many aspects of facial disfigurement as well as general information on genetics. The resources are also grouped by specific conditions (i.e., cleft palate, crouzon syndrome, moebius syndrome, cancer, etc.). There are also specific Parent and Educator Resources containing a wealth of information for parents and educators. Finally, the Facial Surgery and Recovery page contains resources for pain control, eating, prosthetics, and legal resources.

Let's Play Project This model demonstration project from the University at Buffalo Center for Assistive Technology and Virginia Commonwealth University, provides families of children with disabilities with useful resources to help them play through the use of assistive technology. This wonderful web site includes lessons about the role of play in a child?s life, illustrated handouts about adapting toys for use by children with special needs, links to toy catalogs, websites, and lots of other resources.

Lifestyle Accelerator The work of a dedicated North Carolina parent, this is a website for adults with and families of children who have spina bifida where you can view articles, instructional videos, participate in threaded discussion groups (community forum) and more.

Longwood Herbal Taskforce Devoted to approximately 85 herbs and dietary supplements, this website features in-depth monographs, clinican information, and patient fact sheets written by faculty, staff and students from Children's Hospital(Boston), the Massachusettes College of Pharmacy and Health Sciences, and the Dana Farber Cancer Institute.

M-CHAT Scoring Sheet The Scoring sheet for the Modified Checklist for Autism in Toddlers (M-CHAT) screening tool. From FirstSigns.org

MEDLINE MEDLINE is the National Library of Medicine's database of references to more than 11 million articles published in 4300 biomedical journals. When you search MEDLINE: You will find information about articles on your topic (the author, title of the article, name of the journal, date published, page numbers)Many of the listings also have short summaries of the article (abstracts)Sometimes you will find a link to the full text of the article Please note that most of the articles you will find listed in MEDLINE are written for health professionals. Articles are for educational use only and are not intended to replace advice from a health professional.

MUMS - Mothers United for Mutual Support MUMS is a national Parent-to-Parent organization for parents or care providers of a child with any disability, rare disorder, chromosomal abnormality or health condition. MUMS aims to provide support to parents in the form of a networking system that matches them with other parents whose children have the same or similar condition. Their database includes over 15,700 families from 48 countries, covering over 2700 disorders, very rare syndromes or undiagnosed conditions. Their newsletter allow families to share and speak out about issues affecting their lives. This website describes the origins and goals of this organization, provides information about various conditions, and includes a directory of hyperbaric oxygen therapy (HBOT) providers.

Maple Syrup Urine Disease Family Support Group The MSUD Family Support Group is a nonprofit organization of parents of children with MSUD, adults with MSUD, health-care professionals and others interested in MSUD. This website contains information about the organization, information about MSUD, a list of contacts and much more

March of Dimes The Mission of the March of Dimes is to improve the health of babies by preventing birth defects and infant mortality. This is carried out through programs of research, community services, education and advocacy.

Mariposa School News The home page of the Mariposa School (located in Cary, NC) which provides intensive individualized instruction to children with autism. This website offers information about the school and its programs, handouts from the school's training manual, useful links and resources and more.

Markell TM2000 Series Shoes Although a bit pricey, these shoes have added depth to help AFO braces fit inside.

Medicaid Managed Care Guide From Families USA. This site provides information on how states monitor their medicaid managed care programs, and enables families and their providers to be better advocates within this health insurance system.

Medical Home Policy Statement An updated policy statement about medical homes (ways that medical providers can provide the best care) for children with special needs from the American Academy of Pediatrics.

Medical Home Return on Investment Calculator A free online calculator that can be used by physician groups, hospitals and other stakeholders to assess the potential financial impact of proposed medical home programs, based on target population characteristics, estimated impacts on hospital admissions and other service use, and overall program costs. From the Center for Health Care Strategies, Inc.

Meningitis Foundation of America An international non-profit organization based in the USA, the Meningitis Foundation of America supports sufferers of meningitis and their families, educates the public and medical community to promote early diagnosis and treatment, and encourages the development of vaccines. This website includes information on symptoms, treatment, support/discussion forums, and prevention of this disease.

MetDesk MetDESK (MetLife's Division of Estate Planning for Special Kids) is an internal unit within MetLife which provides information and assistance to families of children with special needs to help them with their financial planning. This information is important in planning for your child's future and especially helpful for adolescents with disabilities who are making the transition to adulthood. Some of the topics covered include: Government benefit eligibility requirements for SSI and Medicaid Types of special needs trusts Guardianship, Conservatorship and Client Self-Determination and Empowerment Issues Appropriate funding vehicles ? including life insurance, to guarantee your child's future quality of life

Modified Checklist for Autism in Toddlers (M-CHAT) A screening instrument which helps identify young children who are at risk for having an autism spectrum disorder (ASD). A scoring checklist is free and available separately on TelAbilty as well as at www.FirstSigns.org

Mosaic Down Syndrome on the Web Run by Linda Beets, the mother of a daughter with mosaic down syndrome, this website offers information and support to families of children with this type of down syndrome.

Mountin' Hopes Therapeutic Riding Center Located in Mars Hill, NC (right across the border from Tennessee), this non-profit center provides hippotherapy/ therapeutic horseback riding for children and adults with special needs. This website describes this program, provides news and updates about special events, and more.

Mountin' Hopes Therapeutic Riding Center Located in Mars Hill, NC (right across the border from Tennessee), this non-profit center provides hippotherapy/ therapeutic horseback riding for children and adults with special needs. This website describes this program, provides news and updates about special events, and more.

Muscular Dystrophy Family Foundation Based in Indianapolis, Indiana, this national not for profit organization provides adaptive equipment and emotional support to individuals and families with muscular dystrophy. They also offer camping scholarships, school and work advocacy services and more.

My Baby's Hearing A website from Boys Town National Research Hospital in Omaha, Nebraska that is designed to answer parents' questions about: * Infant hearing screening and follow up testing. * Steps to take after diagnosis of hearing loss. * Hearing loss & hearing aids, language & speech. * Parenting issues. Funded by a grant from the National Institutes on Deafness and Other Communication Disorders.

NAFCC A National organization providing support to family child care associations. The quarterly newsletter described on the website is available for its members.

NAMI North Carolina NAMI NC (formerly The North Carolina Alliance for the Mentally Ill) is a grass-roots organization providing support, education and advocacy for the families and friends of people with serious mental illness, and for persons with serious mental illness. This website describes the organization and its membership, bulletin boards for its 32 statewide affiliates, a suggested reading list, links to related websites and more. Use the navigation bar on the left of its screen or the site's search engine to locate several sections specifically for children's issues, including an online edition of the INSIGHTS newsletter.

NBIA Disorders Association A national non-profit organization based in El Cajon, California that offers families, physicians, and support providers information about an inherited disease called Neurodegeneration with Brain Iron Accumulation (NBIA). This website contains information about the organization, an FAQ section, a link to their Listserv, upcoming events, research updates, and more.

NC Medicaid Dental Provider List This list from the NC Division of Medical Assistance, is available as an Excel file or PDF. It lists, by county, all the dentists in NC who take Medicaid as payment. Be sure to check if the dentist you find takes care of children with special needs.

NC Office on the Americans with Disabilities Act This website provides information about the ADA and describes NC's office, a part of the NC Department of Administration.

NINDS Infantile Spasms Information Page From the National Institute of Neurological Disorders and Stroke. This page provides a brief overview of infantile spasms.

NOMC Europeds NOMC Europeds, based in Michigan, offers a therapy program based on the use of the Adeli suit, an as yet unproven, intense physical therapy program from Poland designed to improve the physical skills of children with neuromotor disorders. This website includes a detailed description of the mission of the program as well as of the services provided, and more information about this and other alternative therapies.

National Ability Center The National Ability Center is dedicated to the development of lifetime skills for persons with disabilities and their families, by providing affordable, quality sports and recreation experiences. The benefits of these experiences build self-esteem and confidence, enhancing active participation in all aspects of community life.

National Adoption Information Clearinghouse The National Adoption Information Clearinghouse maintains an adoption literature database; a database of adoption experts; listings of adoption agencies, crisis pregnancy centers, adoptive parent support groups and search support groups; excerpts and full texts of State and Federal laws on adoption; and other adoption-related services and publications.

National Alliance for Autism Research Based in Princeton, New Jersey, this national, non-profit organization is dedicated to find the causes, prevention, treatment and, ultimately, cure of the autism spectrum disorders. This website offers information about the organization, and updates on research findings (and funding).

National Association for Down Syndrome Based in Chicago, Illinois, this non-profit organization provides support for families of people with Down Syndrome through conferences and family networking. This website describes the organization, offers a bimonthly newsletter, provides many links to other related websites and offers contact numbers for people living inside and outside the Chicago area. Note: Their products section includes posters and videos (including an exercise video for people with Down Syndrome).

National Association for the Education of Young Children A 75 year old national organization working to improve the quality of educational and child care programs for children from birth through third grade. The website contains a description of the organization, its programs, and a conference calendar.

National Association of Developmental Disabilities Councils NADDC is the national organization of Developmental Disabilities Councils that advocate and work for change on behalf of people with developmental and other disabilities and their families. NADDC promotes national policy to enhance the quality of life for all people with developmental disabilities. NADDC works with Congress and others in the reauthorization of the Developmental Disabilities Act, to strengthen Councils' systems change and advocacy role.

National Association of Private Schools for Exceptional Children The National Association of Private Schools for Exceptional Children (NAPSEC) strives to provide children with access to private special education. The NAPSEC website includes membership information, a free referral service, information on the current legislation, and links to products and services.

National Association of School Nurses for the Deaf Official website of the National Association of School Nurses for the Deaf. Includes the NASND newsletter whcih is published up to four times a year and includes National and Regional news, school and personal news submitted by members, and health articles.

National Association of School Nurses, The NASN's core purpose is to advance the delivery of professional school health services to promote optimal learning in students.

National Association of School Psychologists The mission of the National Association of School Psychologists (NASP) is to promote educationally and psychologically healthy environments for all children and youth by implementing research-based, effective programs that prevent problems, enhance independence, and promote optimal learning.

National Association of the Deaf Founded in 1880, the National Association of the Deaf (NAD) is the oldest and largest organization representing people with disabilities in the United States. Programs and activities include grassroots advocacy and empowerment for people with hearing impairment, captioned media, certification of American Sign Language professionals; certification of sign language interpreters; deafness-related information and publications,legal assistance, policy development and research, public awareness, and youth leadership development.

National Ataxia Foundation A national organization dedicated to improving the lives of persons affected by ataxia through support, education, and research. This website offers information about the organization, FAQs about ataxia, research opportunities, educational conferences and more.

National Attention Deficit Disorder Association Serving the needs of people with ADD/ADHD since 1989

National Campaign for Hearing Health This national program, sponsored by the Deafness Research Foundation, advocates for improved detection, prevention, intervention, and research into hearing impairment. This site provides great resources for parents of children with hearing loss as well as helpful information on how to become an advocate for the cause of hearing health.

National Center for Biotechnology Information- Online Mendelian Inheritance in Man This searchable database is a catalog of human genes and genetic disorders.

National Center for Complementary and Alternative Medicine The National Center for Complementary and Alternative Medicine (NCCAM) conducts and supports research and distributes information on complemenatary and alternative medicine to medical professionals and the public. This site includes information for consumers, investigators, and practitioners.

National Center for Learning Disabilities Based in New York, this organization seeks to provide information, support, and advocacy to help improve the achievement of people with learning disabilities. This site includes a description of the organization, research news, IDEA updates, information about special education, and a resource locator for school programs throughout the country.

National Center on Birth Defects and Developmental Disabilities Contained within the national Centers for Disease Control (CDC) this Center aims to improve the health of children and adults by preventing birth defects and developmental disabilities, promoting optimal child development, and promoting health and wellness among children and adults living with disabilities. This website contains information, links and funding opportunities related to developmental disabilities, ADHD, autism, cerebral palsy, early childhood development, hearing impairment, mental retardation, and vision impairment.

National Center on Financing for Children with Special Health Care Needs Based at the Institute for Child Health Policy in Florida, this organization seeks ensure that all families of CSHCN will have adequate private and/or public insurance to pay for the services they need. This site includes information about the project, issue briefs, educational handouts, and links to useful resources.

National Center on Physical Activity and Disability Located in the Department of Disability and Human Development at the University of Illinois at Chicago, this national organization encourages and supports people with disabilities who want to participate in some form of regular physical activity. The website includes information about the organization and lots of reports, resources, links, and discussion groups focused on sports and exercise for people with disability.

National Center on Secondary Education and Transition Headquarted at the University of Minnesota, this program seeks to increase the capacity of national, state and local agencies and organizations to improve secondary education and transition results for youth with disabilities and their families. The website includes information about the program, publications, event listings, related websites, and more.

National Child Care Information Center This federally funded program provides legislative updates, general information and state contacts for child care services.

National Congenital CMV Registry Based at Baylor College of Medicine in Houston, TX, this program works to learn more about children born with symptoms of congenital cytomegalovirus (CMV) disease. They track trends over time, identify risk groups, and lay groundwork for evaluation of future intervention programs. Aside from research, the National Congenital CMV Disease Registry also provides an outreach program consisting of this web site, written educational material, and an annual newsletter (though none for the past few years). They also run a parent support network as a forum where parents of children congenitally infected with CMV can contact other parents dealing with the challenges of raising a child born with CMV.

National Council on Disability The National Council on Disability (NCD) is an independent federal agency making recommendations to the President and Congress on issues affecting 54 million Americans with disabilities. NCD is composed of 15 members appointed by the President and confirmed by the U.S. Senate. NCD's overall purpose is to promote policies, programs, practices, and procedures that guarantee equal opportunity for all individuals with disabilities, regardless of the nature of severity of the disability; and to empower individuals with disabilities to achieve economic self-sufficiency, independent living, and inclusion and integration into all aspects of society. This website features information on advocacy, IDEA, inclusion, and self-determination.

National Down Syndrome Congress This national non-profit organization aims to be the national voice for state and local groups, individual members, persons with Down syndrome, and all other interested persons. It serves as a clearinghouse on Down syndrome by collecting, creating, and disseminating information via the functions of the National Down Syndrome Congress Center, the annual convention, and the Down Syndrome News.

National Down Syndrome Society A national not-for-profit organization that increases public awareness about Down syndrome and seeks to discover its underlying causes through research, education and advocacy. This website provides information about the organization, its conferences, and programs and offers information resources, advocacy news, research opportunities, a bookstore, website links and more.

National Early Childhood Technical Assistance Program NECTAS is a national technical assistance consortium working to support states, jurisdictions, and others to improve services and results for young children with disabilities and their families.

National Fatherhood Initiative The National Fatherhood Initiative seeks to improve the lives of children by helping men to become better fathers. A non-profit organization, NFI enables fathers by distributing information, conducting public awareness campaigns, organizing community fatherhood forums, providing resource material, and publishing a quarterly newsletter. This website includes access to numerous on-line resources, advice on fatherhood, an on-line discussion forum for fathers, membership information, and links to related sites.

National Fragile X Foundation Based in San Francisco, California, this non-profit organization informs and educates family members and caregivers about those with Fragile X Syndrome. The website offers an overview of the characteristics and interventions used for people with Fragile X Syndrome, provides information about the organization, provides relevent links and even has a short video about fragile x that can be viewed from the site.

National Head Start Association The National Head Start Association (NHSA) is a private not-for profit membership organizaion that provides a national forum for the continued enhancement of Head Start services for poor children ages 0 through 5, and their families.

National Health and Safety Performance Standards for Child Care Facilities A nine-chapter volume covering health promotion and disease prevention, nutrition, safe play, and program activities for healthy development. From the National Resource Center for Health and Safety in Child Care.

National Information Center for Children and Youth with Disabilities Now called the National Dissemination Center for Children with Disabilities. Provides information on disabilities and disability-related issues for families, educators, and other professionals. An excellent site for policy issues, IDEA / special education, pertinent nationwide conferences and resource organizations at both the state and federal levels. Text-only version available.

National Information Clearinghouse on Children and Youth with Disabilities NICHCY is the national information and referral center that provides information on disabilities and disability-related issues for families, educators, and other professionals. Our special focus is children and youth (birth to age 22).Services provided include: personal responses to your specific questions; a wide variety of publications, including fact sheets on specific disabilities, state resource sheets, parent guides, bibliographies, and our issue papers, "News Digest" and "Transition Summary."; referrals to other organizations and sources of help; information searches of our databases and library.

National Institute on Deafness and Other Communication Disorders The National Institute on Deafness and Other Communication Disorders (NIDCD) is one of the Institutes that make up the National Institutes of Health (NIH). Established in 1988, NIDCD is mandated to conduct and support biomedical and behavioral research and research training in the normal and disordered processes of hearing, balance, smell, taste, voice, speech, and language. This website contains health information for parents, a directory of national resources, listings of clinical trials, quarterly newsletters, and more.

National Marfan Foundation Founded by people who have Marfan Syndrome and their families, the National Marfan Foundation gathers and distributes information to families, patients, members, and the health care community, provides a network of support, and helps to fund and encourage research on this condition. Upcoming events, news, a detailed description of Marfan Syndrome, and publications can all be found on this website.

National Maternal and Oral Health Resource Center Designed to promote better oral health care for children this national organization has publiations and conferences to help parents improve their child's dental care. The website contains contact information and regional conferences schedules.

National Mobility Equipment Dealers Association A professional organization whose membership consists of automobile manufacturers, adaptives equipment dealers, driver evaluators and trainers for the disabled, physicians, lawyers, insurance adjusters, and consumers. This website contains links to related agencies, membership rosters, publications, and guidelines set by the organization's Quality Assurance Program.

National Network for Child Care: Children with Special Needs This site contains online articles (many by Doreen B. Greenstein, Ph.D. a Developmental Psychologist at Cornell University) designed to enhance the inclusion of children with special needs in day care and early childhood centers. Some articles are also available as printable handouts. The site was last updated in 2000.

National Organization for Rare Disorders A federation of health organizations dedicated to helping people with rare diseases and assisting the organizations that serve them. Committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service. Be sure to look at NORD's Medication Assistance Program, and databases on rare diseases, genetic syndromes, "orphan" drugs, and specialty organizations.

National Organization on Mental Retardation Educational information, policy statements helpful to families and professionals caring for individuals with mental retardation.

National Program for Playground Safety In 1995, the University of Northern Iowa established the National Program for Playground Safety (NPPS) under a grant from the Centers for Disease Control and Injury Prevention (CDC) in Atlanta. Through its efforts to help address America's playground safety issues, NPPS hopes to see a decline in the nearly 200,000 annual playground-related injuries suffered by America's youth. NPPS Serves as a recognized national clearinghouse for playground safety information.

National Registry of Rehabilitation Technology Suppliers A website listing Certified Rehabilitation Technology Suppliers who have passed the ATS (Assistive Technology Supplier) credentialing examination administered by RESNA. Use the sites search engine (Find NRRTS Member) to find medical suppliers in any state.

National Resource Center for Health and Safety in Child Care NRC's primary mission is to promote health and safety in out-of-home child care settings throughout the nation.

National Resource Center for Special Needs Adoption A non-profit organization located in Detroit, Michigan. Its primary goal is to improve the quality of services provided to the families who have adopted a child with special needs. The services include technical assistance with policies on special needs adoption, mental health and child welfare.

National Spinal Cord Injury Association A nonprofit organization, The National Spinal Cord Injury Association (NSCIA) works to empower individuals and families with spinal cord injury through education and support. Information for the newly injured, pen pal directories for kids, general fact sheets, special project information, membership options, and links to a wealth of resources are all included on this website.

National Spinal Cord Injury Hotline The hotline is a non-profit organization, and is staffed by six clinical/information specialists. The program assists individuals and their families who have sustained a traumatic spinal cord injury (SCI) resulting in paraplegia or quadriplegia. Callers are guided to area resources, programs, products, and support groups to help them live more independent lives. The Hotline staff can guide people through the bewildering array of questions they face after a paralyzing injury. Questions range from home modifications to child rearing, from medical equipment to fertility.

National Sports Center for the Disabled Based in Winterpark, Colorado, the National Sports Center for the Disabled (NSCD), is an innovative non-profit organization that provides recreation for children and adults with disabilities. This website contains>>>>>>>>>>>>>>

National Stuttering Association The National Stuttering Association (NSA) advocates in the community for those who stutter by attempting to raise public awareness through education and outreach activities. This website includes membership information, access to a bookstore,news, and links to related resources about speech impediments.

National Survey of Children with Special Health Care This chartbook reports results of the first ever national survey to determine the prevalence of special health care needs (SHCNs) among children and adolescents ages 17 and younger. The chartbook provides both national- and state-level data on the size and characteristics of of children and adolescents with SHCNs. The chartbook includes information on prevalence, health and functional status, insurance coverage, health care needs and access to care, care coordination, family-centered care, and impact on families.

National Transition Network The National Transition Network strives to serve the public by strengthening the capacity of individual states to effectively improve transition and school-to-work policies as they relate to youth with disabilities. The Network provides direct technical assistance to states with current transition projects as well as developing and distributing a variety of publications. This website includes online publications, workshop information, state contacts, and links to related websites.

National Vaccine Injury Compensation Program The National Childhood Vaccine Injury Act of 1986 is a Federal "no-fault" system designed to compensate those individuals, or families of individuals, who have been injured by childhood vaccines, whether administered in the private or public sector. Site covers topics such as: Vaccines added for coverage under the VICP; background Information on VICP; how to file a VICP claim; vaccine injury table - listing of vaccines and associated injuries covered under the program; summary of current issues; VICP Monthly Statistics Report; and other vaccine related links.

Natural Access Natural Access markets an all-terrain wheelchair that can roll over sand, gravel, snow, and soft soil, allowing individuals access to beaches, trails, and parks.Free brochures as well as descriptions of the wheelchair are available on this website.

Netting the Evidence: A ScHARR Introduction to Evidence Based Practice on the Internet Netting the Evidence: A ScHARR Introduction to Evidence Based Practice on the Internet

Neurodevelopmental Therapy Treatment Association The NDTA promotes the use of this hands-on approach is used in working with people who have central nervous system insults that create difficulties in controlling movement. The website offers news and information about NDT.

New Horizons: Information for the Air Traveler with a Disability U.S. Department of Transportation publication with helpful information for the special needs person who is utilizing air transportation.

New Visions Located in Nelson County, Virginia, this for-profit company provides continuing education and therapy services to professionals and parents working with infants and children who have feeding, swallowing, oral-motor, and pre-speech problems. On-line consumers have access to educational materials, the Mealtimes catalog, a description of their clinical services , and information about continuing education workshops.

North American Growth In Cerebral Palsy Project The website for this international research project designed to examine the growth of children with cerebral palsy. This site provides information about the project, tips for parents and health care providers, ways for interested families to join the study, a kids page describing the project, links about cerebral palsy and feeding difficulties, even a couple of recipes that incorporate pediasure and ensure formulas! Based at the Kluge Children's Rehabilitation Center at the University of Virginia, Charlottesville.

North American Riding for the Handicapped Association, Inc. Since 1969, NARHA centers have served thousands of riders with disabilities across the U.S. and Canada. Today these riders are anxious to get on a favorite horse and experience the freedom, independence and self confidence that comes from riding.

North Carolina Academy of Pediatric Dentistry Membership Directory An updated list of all members of the North Carolina Academy of Pediatric Dentistry. Use it to find your local pediatric dentist

North Carolina Assistive Technology Project The NC Assistive Technology Program is dedicated to creating a statewide system that coordinates assistive technology services. Activities include awareness and training, consumer groups, expansion projects, funding information, technincal assistance, and much more. Be sure to take a look at the Check-It-Out program - an assistive technology equipment loan program for North Carolinians with disabilities, their families, and their service providers.

North Carolina Association for the Education of Young Children The mission of NC-aeyc is to promote quality and form partnerships which will support programs and professionals serving North Carolina's young children from birth to age eight. The association is committed to acting on behalf of all young children with the primary focus being on the care, education and services available to them.

North Carolina Asthma Program Office Established in 1998 within the Division of Public Health, Women's and Children's Health Section, this office is charged with developing a comprehensive asthma surveillance system, providing leadership to the Asthma Alliance of North Carolina, and offering technical assistance and resources to local asthma coalitions. This website provides descriptions of this office and its programs and has links to resources for information and funding opportunities.

North Carolina Child Advocacy Institute Since its creation in 1983, the North Carolina Child Advocacy Institute (NCCAI) has had a positive influence on the lives of children and youth in our state through its involvement in public policy; its research and reporting on key indicators of children's well-being; and , its coalition and community building activities.

North Carolina Child Care Health and Safety Resource Center Based in Raleigh, this center improves child care services for children by providing information, training and technical assistance to North Carolina's Child Health Care Consultants. This website provides information about the resource center, training modules on asthma and sun protection, a listing of day care related links, and online editions of the NC Child Care Health and Safety Bulletin, available in both English and Spanish.

North Carolina Child Care Law and Rules An online listing of rules for child care facilities in North Carolina. Last updated April 2003.

North Carolina Child Care Search Engine Developed by the NC Division of Child Development, this site provides information about child care in North Carolina, contact numbers for the child care resource and referral program and a searchable database of child care providers in our state.

North Carolina Consumer's Guide to Health Plan Selection An internet guide to managed care insurance plans in North Carolina. Hosted by the NC Institute of Medicine.

North Carolina Council on Developmental Disabilities The DD Council's role in NC's ADD network is to promote a community service delivery system that is personalized to meet the unique needs of each individual with a developmental disability. We do this by funding community partners to conduct activities, across the state, that advance innovative, cost-effective ways of providing services. We share information about the best of what's happening across the nation and advocate for changes to make NC communities more welcoming to and supportive of people with disabilities. A good resource for young adults making the transition to adult services.

North Carolina DHHS- Division of Services for the Blind This North Carolina State Division empowers individuals who are blind or visually impaired to achieve their maximum potential through services provided by competent and caring professionals. Programs within the Division provide or coordinate services in areas related to Education, Independent Living, Vocational Rehabilitation and the Prevention of Blindness. This website contains a listing of excellent resources and links for people who are blind or visually impaired.

North Carolina Deaf - Blind Associates The North Carolina Deaf-Blind Associates (NCDBA), is an independent, non-profit organization that seeks to inform and empower North Carolina citizens who have vision and hearing impairments to actively participate in decision making processes affecting their lives. This website lists recent events and contact information for the organization.

North Carolina Department of Health and Human Services The NC Department of Health and Human Services protects the public health, fosters self-reliance and helps the vulnerable in all 100 NC counties. At this site you can learn more about the DHHS and its many divisions and services. If you're not sure where to find what you're looking for, visit the web sites for the divisions and agencies and/or scan the topics index available on the website.

North Carolina Division of Child Development The North Carolina Division of Child Development oversees all aspects of child care services in our state. At this site, you can find licensed child care centers in your county as well as the rating that those centers have earned in the state's newest star rating system.

North Carolina Division of Medical Assistance The goal of this division within the state's Department of Health and Human Services is to manage the state's Medicaid program efficiently so that cost effective health care services are available through enrolled providers to all eligible persons across the state. This website offers information about, and links to, North Carolina's state and federal health insurance programs such as Healthcheck, Healthchoice, ACCESS, and more.

North Carolina Division of Public Health The NC Division of Public Health works toward protecting and improving the health of the people who live and work in North Carolina. Lists the main components within this division. An easy way to look up contact program information.

North Carolina Early Intervention Services The website of Together We Grow, the NC Early Intervention Services Program. This site includes information about the NC Interagency Coordinating Council (NC-ICC), the Infant Toddler Program (Part C - birth to age 3), and our state's Preschool Program (Part B - ages 3 to 5). This site also includes a training calendar, links page, brochures, and more.

North Carolina Electric Wheelchair Hockey Association A statewide organization designed to promote a quality hockey program for persons requiring the use of an electric (power) wheelchair in daily life. This website provides information about the organization, its members, and its goals.

North Carolina Foster and Adoptive Parents Association This statewide association aims to promote quality foster and adoptive services through collaborative advocacy, education, resources, and networking. At this website you can find information about the association, learn about foster parents' rights in NC, get information about upcoming conferences, and links to websites with information of interest to foster parents.

North Carolina Newborn Hearing Screening and Intervention Program Part of the NC Division of Health, the NC Newborn Hearing Screening and Intervention Program aims to ensure that: All infants are screened for hearing loss prior to discharge from birthing/neonatal facilities, or within one month of birth. All infants referred from the screening process complete diagnostic audiological evaluation by three months of age. All infants with diagnosed hearing loss receive appropriate interventions by six months of age, including amplification selection (if appropriate) and early intervention. At this website you can learn more about this program, get information about hearing for parents and providers, get a list of Children's Special Health Services (CSHS) rosterd physicians, and more.

North Carolina Occupational Therapy Association This website provides information about our state's occupational therapy association and its members, lists its upcoming conferences, publicizes employment opportunities, offers relevant links, and more.

North Carolina Office of Information Technology Services ITS is committed to develop an efficient, effective, customer-centric e-state by helping business and government: * Promote the delivery of more effective and efficient services * Provide increased accountability to citizens * Offer easier access to useful information * Enable enhanced participation in the democratic process * Present new opportunities to encourage economic development * Improve society through telemedicine and distance learning. This website describes its products and services, information and standards, and more.

North Carolina Office on Disability & Health Dedicated to promoting the health of North Carolinians with disabilities through the following activities: Improving access and inclusion of persons with disabilities in public health and health care services; increasing awareness and understanding of the health promotion and health related needs of people with disabilities; educating individuals with disabilities, clinicians, and providers; supporting the development of targeted health promotion programs; identifying existing health promotion resources for persons with disabilities and providers; conducting and reporting on disability research and data collection.

North Carolina Parenting Education Network The North Carolina Parenting Education Network (NCPEN) is working to build the field of parenting education in the state with a focus on partnerships between parents and child care providers, teachers, and parent educators. Working together we can help each child reach his or her own potential! NCPEN is an unfunded collaborative of parenting education organizations and agencies.

North Carolina Pediatric Society An affiliate of the American Academy of Pediatrics, the North Carolina Pediatric Society seeks to improve the health and well being of children in our state through the collective efforts of its membership and to provide an organization for professional communication, education, and fellowship. This website provides information abouth this organization, some related website links, and a calendar of society events.

North Carolina Physical Therapy Association The NC chaptre of the American Physical Therapy Association. This websites provides statewide and national updates of interest to physical therapists, information about educational conferences, relevent links, and more.

North Carolina Public Schools Website of the North Carolina Public Schools

North Carolina Recreation Resource Guide This guide includes a listing of inclusive recreation facilities and opportunities in North Carolina for individuals with disabilities. Resources include community, state, and regional recreation resources as well as national adapted sports and recreation organizations.

North Carolina Speech, Hearing and Language Association The North Carolina Speech, Hearing and Language Association is the professional association of speech and language pathologists and audiologists in North Carolina. It promotes the professional practice of speech/language and hearing sciences, to advocate on behalf of the professional practice, to serve as the voice of the professions and to advocate for communicatively impaired persons in North Carolina. NCSHLA is at the forefront of issues affecting speech and hearing professionals, and it is involved in governmental policy-setting and decision-making processes. The members study policy decisions that affect speech/language pathologists and audiologists and formulate positions from the perspective of practicing professionals. The Association's goal is to assure that the ideas and concerns of its members are considered. NCSHLA is an affiliate of both the American Speech-Language-Hearing Association (ASHA) and the American Academy of Audiology (AAA), and it is considered a national leader in member representation.

North Carolina Therapeutic Riding Center Located in Durham, NC this center provides therapeutic horseback riding services. This website provides information about the program, upcoming events, volunteer information and more.

North Carolina Women's and Children's Health The Website of the Women and Children's Health Section of North Carolina's Division of Public Health. Includes program listings, website links, contact information, and more.

Nutrition Services A North Carolina organization which promotes sound nutrition and support for moms and their children under 5 years old. Services include financial asistance through WIC, information through video tapes and brochures. The website contains the list of qualifications necessary to participate.

OCD Treatment Options for Children An online fact sheet from the Nemours Foundation covering cognitive behavioral therapy and the use of medications for Obsessive Compulsive Disorder in Children.

Obsessive Compulsive Disorder in Children and Adolescents An online fact sheet from the American Academy of Child and Adolescent Psychiatry. Last revised in February, 2005.

Office of Employment Support Programs - Youth with Disabilities This section of the OESP website provides information to help youth with disabilities make the transition from school to work.

Office of Special Education Programs The Office of Special Education Programs (OSEP) is dedicated to improving results for infants, toddlers, children and youth with disabilities ages birth through 21 by providing leadership and financial support to assist states and local districts. At this website, you can find information about the agency, employee listings, national grant programs, ongoing programs funded by the agency, and much more.

On a Roll with Greg Smith Talk radio on life, disability and human potential.

One A.D.D Place Devoted to Attention Defecit Disorder, this site contains: General Adult A.D.D. Symptom Checklist; Newsletters, Papers & Articles, References, Frequently Asked Questions (FAQ);Calendar of Events;Books/Tapes/Products;Professional Services; Professional Organizers, Seminars, Workshops and Other Live Programs.

Online Asperger Syndrome Information and Support This website provides information, conferences and descriptions of characteristic behavior of people with Asperger Syndrome. Through newsletters, schools and camps family and caregivers are able to educate themselves and develop support groups to assist with ongoing issues.

Online Mendelian Inheritance in Man Geared towards medical providers, the Online Mendelian Inheritance in Man is a catalog of human genes and genetic disorders from the National Center for Biotechnology Information (part of the National Library of Medicine). This site contains pictures, reference information, and textual information related to genetics.

Oral Health Care for Persons with Disabilities An online continuing education course presented by the Department of Pediatric Dentistry at the University of Florida. Last revised in July,2001, this website presents information about special needs dental care for over 20 different disability related conditions, including cerebral palsy, muscular dystrophy, brain injury, spinal cord injury and more.

Oral Health Services for Children and Adolescents with Special Health Care Needs A 36-page resource guide from the National Maternal and Child Oral Health Resource Center. Created in 2005. For dentists, health care providers, and parents.

Osteogenesis Imperfecta Foundation The website of this national non-profit organization offers a great wealth of information and support for caregivers, parents, providers, and researchers.

Our Kids Run by and for an international "family" of over 800 parents, caregivers and others who are working with children with physical and/or mental disabilities and delays. Covers multiple conditions including developmental delay, sensory integration problems, cerebral palsy,rare genetic disorders, and others. Professionals, organizations and therapists also monitor and contribute.

PAGER Pediatric/Adolescent GastroEsophageal Reflux Association (PAGER)is a national, non-profit organization run by several parents of children with GER. It provides information and support to people about Gastroesophageal Reflux (GER)and how it can affect your child's health and feeding ability. The website contains information about the organization and its events, research updates and stories from experienced parents of children with GER. The discussion section is a popular destination.

PICK - Parents of Infants and Children with Kernicterus The website for Parents of Infants and Children with Kernicterus (PICK), a parent-run non-profit organization dedicated to education and prevention of KI (kernicterus) as well as support and research for families affected by KI. On this website, you can learn more about kernicterus (it's causes, treatments, and outcomes), find family support resources, learn more about this organization, and more.

Palaestra This website describes the subscription magazine, Palaestra, a resource on adapted sports and physical activity. Palaestra's missions are to 1)enlighten parents in all aspects of physical activity to make them the best possible advocates for their children during IEP (Individual Education Plan) discussions with the school or community recreation staff and 2) increase the knowledge base of those professionals working with children or adults with disabilities.

Parent Advocacy Coalition for Educational Rights Located at the University of Minnesota, PACER's mission is to improve and expand opportunities that enhance the quality of life for children and young adults with all disabilities (physical, mental, emotional, learning) and their families. PACER now offers 20 major programs, including Parent Training programs, programs for students and schools, and technical assistance to regional and national parent centers. The website includes resources and publications on advocacy, special education, transition to adulthood, and emotional and behavioral disorders.

Parent Handouts Handouts for parents addressing ADHD, disabilities, parenting, screening, and sleep problems. From the Section on Developmental and Behavioral Pediatrics of the American Academy of Pediatrics(AAP).

Parenting the Child with Disabilities Some things that parents of a child growing up disabled should avoid and some things that even good parents might not intuitively think to do for their child.

Parents Exchange An information, referral, and advocacy service for parents and caregivers of children with disabilities and professionals who work with families in Pennsylvania. Provides listing of conferences, bibliographies and reading lists, and disability specific links.

Parents' Place iVillage's health portal where you can find chat rooms, FAQ's, and other resources related to parenting. While not focused on children with special needs, you can find information and support related to different conditions by using the search engine at the top of the page.

Partnership for Prescription Assistance North Carolin A web site designed to help low-income, uninsured North Carolina residents get free or discounted brand-name medicines.

Partnerships for Change From the Department of Social Work at the University of Vermont. This organization seeks to improve the services to children with special health care needs and their families by focusing on integrating this approach into the education and practice of professionals.

Partnerships for Children Child care resource and referral services for Wilson County.

Partnerships for Inclusion A statewide technical assistance project providing technical assistance to support the inclusion of young children with disabilities in child care, school, and all aspects of community life. This website includes information about the organization, its programs, and its products.

Partnerships in Assistive Technology Partnerships in Assistive Technology (PAT) is a private nonprofit organization whose mission is "to increase knowledge about and access to Assistive Technology (AT) for North Carolinians with disabilities." Here you will find resources to help you with: AT programs, devices and aids to enhance independence; computer access, augmentative communication, mobility aids, environmental control units, and more.

Passengers with Disabilities Facts for the Air Traveler with special needs from the Aviation Consumer Protection Division of the U.S. Department of Transportation.

Passy-Muir Inc. A website from the manufacturer of tracheostomy and ventilator speaking valves. This website offers product information, user stories, clinical resources, online educational opportunities for speech and respiratory therapists and more.

Pathways Awareness Foundation Pathways Awareness Foundation is a national non-profit organization whose mission is to raise awareness about the benefits of early intervention for infants and children with physical movement and/or sensory processing differences. Their website supports professionals and families who have concerns about their children?s physical development. It offers specific information about pediatric physical development for both professionals and parents, and features a unique growth and development chart approved by the Illinois Chapter of the Academy of Pediatrics. One can use the chart to track a child?s physical, play, and speech milestones from 3-15 months. The chart also explains what parents need to know about normal development during this age period, gives an overview of developmental milestones, and includes pictures, as well as warning signs for potential movement and developmental problems. It is a great tool for physicians and parents to use and share. You can also view the entire Pathways Awareness Foundation video (in both English and Spanish), by clicking on the ?Affiliates? button on the left side of our home page. Then click on the link below the heading ?Early Infant Assessment Redefined?. If you would like more information about the Pathways Awareness Foundation or services available in your area, please call toll free 1-800-955-CHILD or write to Pathways Awareness Foundation, 150 N. Michigan Ave., Suite 2100, Chicago, Illinois 60601

Pathways Treatment Center, Apex, NC Amy Cameron, MA, CCC-SP, Certified RDI Consultant Anat Shemer, Certified RDI Consultant Brigid Dohse OTR/L, Certified RDI Consultant We are a team of professionals dedicated to empowering parents and families with children who have autism and similiar disabilities. We provide: RDI, OT, SLP, Masgutova Neuro Reflex, and Bal-A-Visx (919) 931-2819

Patient Travel (National Patient Air Transport Helpline) This non-profit organization helps patients find appropriate charitable medical air transportation resources in the United States. It also operates various Special-Lift and Child-Lift programs on behalf of special disease organizations and/or clinical research centers in the United States. Their goal is "..to ensure that no financially-needy patient is denied access to distant specialized medical evaluation, diagnosis or treatment for lack of a means of long-distance medical air transportation." The website describes the programs they offer and has their toll-free phone number parents and professionals can call to look into air travel options.

Peak Developmenta Associates, PA A private practice in Apex, NC that provides psychiatric and psychological services to children and families in the Triangle region. This website describes their practice, their psychologists, their psychiatrists, the services they offer and links to related resources.

Pediatric Dental Health Created by a pediatric dentist in Fayetteville, NC this website provides extensive information on oral health needs in children including those with cerebral palsy, down syndrome, autism, attention deficit disorder and many others.There are discussion boards, general medical and dental search engines, links, and online educational materials.

Pediatric Dentists in NC By entering your zip code, this website will give you a list of up to date contact information for pediatric dentists near you who are members of the American Academy of Pediatric Dentistry. Note: These dentists may or may not have expertise in caring for children with disabilities.

Pediatric Development and Behavior Homepage The Pediatric Development and Behavior Homepage is an independent web site created by a developmental pediatrician to promote better care and outcomes for children and families affected by developmental, learning, and behavioral problems by providing access to clinically relevant information and educational material for medical providers, psychologists, social workers, therapists, educators, and parents. Geared towards physicians, this site offers news, handouts, article reviews, links and more.

Pediatric Genetics This website from the Centers for Disease Control and Prevention (CDC)offers easy-to-read information on genetic disorders, family health history, genetic counseling, and newborn screening. The site also features a compilation of important data and scientific publications and more.

Pediatric Points Of Interest Searchable collection of links to resources in Pediatrics and Child Health. Authored by Christoph Lehman from the Department of Pediatrics, Johns Hopkins University. Medline access site.

Pediatric Possibilities A private pediatric occupational therapy practice in north Raleigh, NC. This website offers information about their staff, services, and programs.

Pediatric Therapy Associates Located in Raleigh, NC, this practice offers pediatric physical therapy, occupational therapy, speech and language pathology, psychology and family counseling. This website offers information about the practice, online newsletters, links to useful resources, and more.

PediatricLinx PediatricLinx.com is designed to offer the most current medical news in pediatrics, to accurately and efficiently search the Web for medical information of a pediatric nature, and to enable pediatricians to share and discuss ideas with fellow specialists.

Playground Safety Publications Links to US Consumer Product Safety Commission publications on playground safety.

Playground Safety for Your Child with Special Needs Adapted from the National Program for Playground Safety, this handout from the Center for Children with Special Needs lists things to look for when considering how safe a playground is for a child with special needs.

Possibilities: A Financial Resource for Parents of Children with Disabilities This 227-page paper from the Pacer Center and the National Endowment for financial education covers everything you need to know to create a sense of order in your life and maintain control over your finances as you care for your child with special needs and prepare him or her for adulthood.

Practice Parameters for First Febrile Seizure For physicians and other medical providers. A practice guideline from the American Academy of Pediatrics (1996)

Prader Willi Syndrome Information in Spanish Spanish handouts offering information about Prader Willi Syndrome. From the National Library of Medicine.

Prancing Horse A non-profit organization providing therapeutic horseback riding programs to children and adults in Moore and surrounding counties.

Preemie-l Discussion Group A threaded discussion list for parents with children born six weeks or more before their due date. Sponsored by Children's Medical Ventures, Inc.

Prevent Blindness America A national organization dedicated to reducing blindness and visual impairment by screening all young children for vision problems.

Prevent Child Abuse America National organization devoted to the prevention of child abuse

Preventing Abuse and Neglect of Children with Disabilities An online information sheet from the Rehabilitation Institute of Chicago's Pediatric/Adolescent Violence Prevention Task Force.

Project Enlightenment An early childhood education and intervention program located in Raleigh, North Carolina that offers a variety of workshops, resources, intervention, consultation, and education services to families and teachers of Wake County. This website offers information about their programs for teachers and parents.

Project Inspire: Texas Women's Univeristy Includes information on programming, strategies, disabilities information sheets, legislation, and advocacy pertaining to adapted physical education.

Project: Proud Families, Inc. The website of a Christian non-profit in Siler City, NC designed to offer services to families who have a child or children with a special need(s). At this site, you can find information about the organization, its support group(s), workshops, family support activities, an Ask the Nurse or Pharmacist section, and information about their "Button Challenge".

Quality Mall Quality Mall collects and disseminates information related to or useful in promoting quality of life for persons with developmental disabilities. It is not a retailer or vendor of products or services, but uses the theme of a shopping mall to help connect visitors to the best products and services available. Develpoed by the Research and Training Center on Community Living at the University of Minnesota's Institute on Community Reintegration and is funded through a grant from the federal government.

Quality Matters: A YMCA Guide to Quality Child Care An online version of the YMCA booklet that suggests what parents should look for in selecting a quality child care or after-school program. (Requires Adobe Acrobat reader)

RESNA The Rehabilitation Engineering and Assisitive Technology Society of America (RESNA) seeks to improve the potential of people with disabilities to achieve their goals through the use of technology. This nonprofit organization promotes research, advocacy, education, and the provision of technology. Has a large number of helpful and informative links.

RSV Prevention Information Center Sponspred by MedImmune, Inc. (makers of Synagis(R)) this site offers advice to parents and professionals about Respiratory Syncytial Virus (RSV), the leading cause of lower respiratory tract infections in infants and young children. Site information is also available in Spanish.

RSV in the Child Care Setting A fact sheet from the Centers for Disease Control (1997)

Raleigh March of Dimes Home page of the Raleigh chapter of March of Dimes. Provides information on programs, a calendar of events, and ways to get involved.

Raleigh Parks and Recreation Special Populations Program These programs deliver therapeutic recreation, leisure education, sports programs, and day camps to participants of area contract agencies and Wake County residents who require specialized services due to developmental disabilities (mentally handicapping, EMH, TMH, MU, SMH, Autistic, Self Contained and Lower, Developmental, and/or Physically Handicapped). This webpage describes some of the programs available and provides phone numbers for more information.

Reach Out and Read Reach Out and Read is a national program that seeks to make early literacy an integral part of pediatric primary care. Pediatricians encourage parents to read aloud to their young children and give books to their patients to take home at all pediatric check-ups from six months to five years of age. Parents learn that reading aloud is the most important thing they can do to help their children love books and to start school ready to learn.

Reed Martin's Special Education Law & Advocacy Stratgies An online information center about special education law from Reed Martin, an attorney in Morgantown, West Virginia. While the website's design makes it somewhat difficult to navigate, it is packed with information in various media (articles, books, videos, chat rooms, message boards) about advocating for children with special needs at school.

Rehabilitation Engineering Research Center on Communication Enhancement Based at Duke University, this multisite research center seeks to assist people who rely on assistive technology (specifically augmentative and alternative communication) to achieve their goals by advancing and promoting AAC technologies and supporting the individuals who use, manufacture, and recommend them.

Relay North Carolina A free service that makes use of the telephone possible for North Carolinians who are deaf, hard of hearing, deaf-blind and/or speech-disabled. This website offers information about the many programs offered by dialing 711

Rett Syndrome Research Foundation Our mission is to fund, promote and accelerate biomedical research for the treatment and cure of Rett Syndrome.

Rifton Adaptive Equipment Adaptive Equipment for Children and Adults Rifton manufactures gait trainers, standers, adaptive tricycles, special needs chairs, wheelchair desks, bath chairs, toileting aids, and other adaptive equipment designed to help children and adults achieve their goals.

Right Under My Nose An online book that helps young children with spina bifida learn about and be comfortable with their bodies. With a fully interactive story, activities, tips, and a printable version of the whole book, this site is intended to be educational and fun.

Riverwood Therapeutic Riding Center Located in Tobaccoville, NC, this non-profit organization provides hippotherapy (therapeuitc horseback riding) to children and adults with cognitive, physical, and mental disabilities. They follow NARHA (North American Riding for the Handicapped Association) standards and guidelines and have certified instructors at the center. They operate 4 sessions yearly. This website contains program and contact information, a few links, and a calendar of events.

STARBRIGHT Foundation STARBRIGHT is a unique program that is dedicated to empowering seriously ill children to fight the social and emotional challenges that they face every day. STARBRIGHT educates and encourages children through numerous creative projects. One particular project, Videos With Attitude, provides seriously ill teens and pre-teens with a video series geared to help them cope and learn to advocate for themselves. In the videos, teen survivors of illness share tips and solutions for coping with the challenges of serious medical conditions. Videos are free to children with a serious illness and their families. Be sure to check out all the current projects when browsing this website.

STOMP STOMP (Specialized Training of Military Parents) is an organization based in Tacoma, Washington, established to help military families who have children with special needs. The website contains newsletters, chat rooms, schedules of local workshops, and a discussion board to provide a means to share experiences and recommendations for families in the Department of Defense's armed forces.

Sammons Preston Positioning, seating and much more.

Sample IEPs and 504 Plans for Children with Diabetes Samples of IEP and 504 plans submitted to the "children with diabetes" website by parents. Arranged by grade, these plans are helpful for children who are on special diets, those taking insulin injections at school and/or those using an insulin pump.

Schiz Kidz Buddies This website offers information and support for people who have or care for someone with schizencephaly. Although the website writing is somewhat hard to read because of vertical lines down the page, you can get information about the condition, research trials and join a daily e-mail list.

Schizencephaly Information Page from the NIH This information page from the National Institute of Neurological Disorders and Stroke offers general information about this condition where the brain doesn't form in a normal way.

School Health Resources for Pediatricians Developed by the American Academy of Pediatrics' Section on School Health and Committee on School Health, this website targets its information and resources to address the needs of pediatricians and other health professionals working in or with schools. The site includes short articles, a forum for pediatricians to consult with one another about particular cases, and a number of related resources.

Scoliosis Research Society The Scoliosis Research Society, a professional organization of orthopedic surgeons, has prepared this web site to provide patients, and in the case of children, their parents,with a better understanding of scoliosis, its diagnosis and management. The website contains an excellent overview of scoliosis with lots of pictures and descriptions, a membership list, glossary of terms, and information about the organization's newsletter and annual meeting.

Seizure Disorders - A Summary This webpage offers a general summary of seizure types, approaches to care and strategies for inclusion in day care centers. From the National Network for child care.

Sensory Integration Education and Research Foundation A national not-for-profit organization based in Pennsylvania that provides education and support to consumers and professionals; and supports research efforts in the area of DSI and related disorders. This website includes information about the organization, powerpoint presentations about senosry integration dysfunction in English and Spanish, a chat room, product listings, newsletter, and more.

Sensory Integration International Non-profit, corporation concerned with the impact of sensory integrative problems on people's lives.

Sensory Integration Network A website designed to help improve the quality of life for children, adolescents and adults with sensory integration dysfunction (DSI). This website includes: Definitions and descriptions of patterns of dysfunction; Information about neurological, physiological and bio-chemical mechanisms that are affected in the process of normal and atypical sensory integration; Research studies; Funding opportunities; Therapy equipment and treatment suggestions; Books, articles, video-tapes and other resources; Questions and answers about Sensory Integration Dysfunction; Links to related sites.

Shriners Hospitals Shriners Hospitals for Children is a network of pediatric specialty hospitals where children under the age of 18 receive medical care fee of charge. Contains a hospital directory, admission information, and affiliated programs and services. (The closest one to North Carolina is located in Greenville, SC)

Sibling Support Project A national program, the Sibling Support Project strives to increase the availiability of peer support and educational programs for the brothers and sisters of people with special health care needs and developmental disabilities. Information is geared to both younger brothers and sisters as well as adult siblings.

Sickle Cell Information Center The mission of this site is to provide sickle cell patient and professional education, news, research updates and world wide sickle cell resources. It is the mission of our organizations to provide world class compassionate care, education, counseling, and research for patients with sickle cell disease.

SignTeacher Signware A Raleigh based company with a mission to provide parents, early childhood educators, and therapists with materials to help young children learn American Sign Language (ASL).

Skillpack for Hospital Staff to Help Families and Staff Understand Brain Injury The emotional stress many families endure while dealing with the trauma of brain injury complicates communication as they struggle to understand what has happened. Too often, professionals do not have enough time to educate families about brain injury, help them cope with the hospital care, and consequently prepare them for the future. This skill pack is designed to give hospital professionals the techniques for supporting and communicating with families, written information to give to families, and information about brain injury. All of the pages are in PDF

Sleep Diary From the American Academy of Sleep Medicine. This document can be printed out and filled in to follow a child's sleep habits.

Slyde the Playground Hound A website for children that teaches them about playground safety. Includes a playground safety quiz, comics, coloring pages, and more.

Smart Start NC North Carolina's early childhood initiative designed to ensure that young children enter school healthy and ready to succeed. This website describes this statewide program, lists contact numbers for its programs in each county, and offers online and downloadable information to parents and professionals about many issues related to young children.

Snug Seat A national supplier of pediatric rehabilitation equipment, Snug Seat provides families with a wide variety of mobility, positioning, and transportation product options. Shower/bath products, standers, strollers, car seats, bath seats, and daily living devices are all available through Snug Seat dealers. In-depth descriptions of each product as well as a list of dealers across the nation are available on this website.

Social Security Administration Work Site The SSA Work Site gives detailed descriptions of Social Security Work Incentive Programs via web links and videos. This site provides information that can help an individual transition from school to work without losing his/her SSI or SSDI benefits, as well as get rehabilitation and vocational services.

Someone Special Like Me The website of a non-profit organization working to open a recreational facility designed specifically for children with special needs in Wake and surrounding counties. This Fun Center will serve all special needs children from birth to 17 years of age. This website provides information about the organization and its fundraising events.

Sotos Syndrome Support Association A National organization established to provide information to the health care team of people with Sotos Syndrome. The website has a quarterly newsletter, information about their annual conference, and other information to keep the members of the team up-to-date with the latest research.

Southern Association of Institutional Dentists A benvolent group of dental professionals whose mission is to improve the oral health of people with disabilities through service, education, and advocacy. This website includes information about the organization, and features 13 educational modules about providing dental care for persons with disabilities.

Southpaw Enterprises Southpaw is a company offering products and tools for children with sensory integration dysfunction (difficulties taking in and processing information through senses) The website contains information regarding the history and focus of the company as well as an online catalog and message forum.

Spastic Paraplegia Foundation A national not for profit organization dedicated to support people with Hereditary Spastic Paraplegia and Primary Lateral Sclerosis. This website contains information about the organization, HSP and PLS, research updates, patient forums and more.

Speaking to Write: Realizing the Potential of Speech Recognition for Secondary Students with Disabilities Homepage of the Speaking to Write project, a cooperative venture between the Education Development Center, Inc. and te Communication Enhancement Center at Boston Children's Hospital. Materials in PDF format address the use of assistive technology including speech recognition software (or voice recognition) for writing by secondary students with disabilities.

Special Care: An Oral Health Provider's Guide to Serving Young Children with Special Health Care Needs A Web-based continuing education course that provides oral health professionals (dentists, dental hygienists, and dental assistants) with information to ensure that young children with special health care needs have access to health-promotion and disease-prevention services that address their unique oral health needs in a comprehensive, family-centered, and community-based manner. Prepared by the National Maternal and Child Oral Health Resource Center at Georgetown University, this course includes: 1) an overview of children with special health care needs and oral health. 2) the provision of optimal oral health care. 3) oral health supervision. 4) oral disease prevention, and 5) behavior management.

Special Education - Definitive Collection of Net Links Index of Net resources about special education, organized by category and compiled by About.com 'expert guide' Pat Linkhorn.

Special Education News A frequently updated e-zine covering issues related to the education of students with disabilities. The Web site also offers unique resources to special education professionals, including places for educators and others to exchange their views,links to important information at other sites on the Web, and news and events from across the country.

Special Education Resources on the Internet A collection of links designed to make on-line Special Education resources more easily and readily available. Site is modified and updated on a regular basis and includes links related to autism, hearing impairment, visual impairment, inclusion, and other topics.

Special Needs Advocate for Parents Provides information, education, advocacy, and referrals to families with special needs children of all ages. Contains an online bulletin board and newsletter.

Special Needs Calculator A calculator from Metropolitan Life Insurance's Division of Estate Planning for Special Kids (DESK) that helps parents plan for their child's financial future by helping them estimate their child's potential income from wages, government benefits or other sources as well as estimating future expenses for housing transportation and day-to-day living. Useful for financial planning and estate planning.

Special Needs Network Special Needs Network (SNN) a division of the Military Family Resource Center (MFRC) of the Department of Defense (DoD), provides information on military policy for parents of children of special needs. The website addresses issues such as relocation, education and health care services for DoD families.

Special Needs Transportation At this website you can find information about car seats and restraints for children with special needs. There is also a special needs technician database to help you find someone with expertise in your state. From the Automotive Safety Program at the Indiana University School of Medicine.

Special Olympics Special Olympics is a nonprofit program of sports training and competition for individuals with mental retardation. Founded in 1968 by Eunice Kennedy Shriver, Special Olympics provides year-round training and athletic competition for more than one million athletes in nearly 150 countries and all 50 states in the United States.

Special Olympics of North Carolina Special Olympics North Carolina provides year-round recreation in the form of sports training and athletic competition opportunities for more than 25,000 children and adults with mental retardation in nearly all 100 NC counties. This website lists SONC's programs, provides a calendar of upcoming events, highlights an "athlete of the week" ,offers information on ways to get involved, and more.

Special Smiles Special Olympics Special Smiles exists to address the many issues that result in Special Olympics athletes and other people with mental retardation having a difficult time getting reasonable access to oral care providers. On this web site, you will find: A full description of the Special Olympics Special Smiles program, A schedule of the upcoming Special Olympics Games that will be hosting Special Smiles screenings, A directory of dentists around the country who welcome special needs patients into their practice/clinics, The Special Olympics Special Smiles booklet "A Guide to Good Oral Health for Persons With Special Needs," suitable for downloading and reprinting, Ways to contact us if you would like more information about Special Smiles, and links to the Special Olympics Inc. worldwide web site, and to other Special Olympics Healthy Athletes web sites

Speech Recognition Web Site for users and enthusiasts of speech recognition software. The site contains articles, BB's, and mailing lists for voice recognition.

Speechville Express A national online resource for families, educators, and medical professionals, offering information about language development, and helping those who care for children with apraxia, stuttering, pervasive developmental disorder, dysarthria, and aphasia. At this site, you can learn about different conditions, read articles, participate in online discussion groups, subscribe to listservs and more.

Spina Bifida Association of America The Mission of the Spina Bifida Association of America is to promote the prevention of spina bifida and to enhance the lives of all affected. The Association was founded in 1973 to address the specific needs of the spina bifida community and serves as the national representative of over 70 chapters. SBAA's efforts benefit thousands of infants, children, adults, parents and professionals each year. The website includes information about many of their services, including a toll free 800 Information and Referral Service, a Bi-monthly Newsletter,Legislative Updates, Publications, Agent Orange Class Assistance Program, Professional Advisory Council, Nursing Council, Conferences and Educational Symposiums, Adult Network, Scholarship Funds, Public Awareness Campaign, Chapter and Member Services, National Public Service Announcements,Individual and Systems Advocacy and the SBAA Research Fund.

Spina Bifida Association of America - LATEX en el entorno Esta lista constituye una guia de algunos de los accesorios que comunmente contienen latex y ofrece alternativas

Spina Bifida Association of America-Latex Information Page devoted to rubber allergy in individuals with spina bifida.

Sportime Physical education products for children with special needs.

State Center for Health Statistics A part of NC's Division of Public Health, the SCHS is responsible for data collection and research, production of reports, and maintenance of a comprehensive collection of health statistics for the Department of Health and Human Services. This website provides information on the SCHS's branches and programs, publications including state health statistics, related links, and more.

State Partnership Initiative This website, based at Virginia Commonwealth University's Rehabilitation and Research Training Center, serves as an information outlet for highlighting the activities of the State Partnership Systems Change Initiative States, as well as, a central source of information and resources on the Ticket to Work and Work Incentives Improvement Act, benefits assistance, Medicaid buy-in programs and employment resources. Be sure to look at North Carolina's participating program, looking to overcome the barriers to work faced by many teenagers with disabilities who are trying to transition to adulthood and work.

Stevens Johnson Syndrome Foundation Based in Colorado, this national support group aims to provide emotional support for people with Stevens Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis. At the webiste for the foundation, you can find an online booklet about SJS (with graphic pictures), support group information, provider directories, and more.

Strategies for Coordinated Approaches to Addressing Asthma in Schools This 12-page booklet highlights six strategies identified by the CDC (Centers for Disease Control) for schools and districts to consider when addressing asthma within a coordinated school health program.

TEACCH Division TEACCH (Treatment and Education of Autistic and related Communication handicapped Children) is a comprehensive, community-based program dedicated to improving the understanding and services for autistic and communication handicapped children and their families across the state. This website decribes TEACCH's programs, lists its regional centers, and offers information and resources about autism, Asperger's syndrome, pervasive developmental disorders (PDD) and strategies for inclusion of children with autism-spectrum conditions.

TLC Sensory The website of a small business in St Louis, Missouri that makes and sells weighted blankets and lap bags for children who have sensory integration / sensory processing disorders. The website provides information about the company, online ordering and more.

TRICARE, Military Health System TRICARE is a regionally managed health care program for active duty and retired members of the uniformed services, their families, and survivors.

TWIN HOPE TWIN HOPE, INC.is dedicated to the service of families, to the education of the public and professionals, and to broaden the awareness of Twin-to-Twin Transfusion Syndrome (TTTS) and other twin related diseases. The site provides information about support, fundraisers, a newsletter, treatment centers and research.

Tammy Lynn Center The Tammy Lynn Center for Developmental Disabilities is a non-profit organization based in Raleigh, NC that provides educational and residential support to families of children with disability. This website offers information on their programs, including specialized day care, residential services, and even in-home services such as respite care and early childhood intervention. The site also provides (occasionally outdated) information on the kinds of families served, funding sources, and links for information on developmental disabilities.

Teaching Children with ADHD: Instructional Strategies and Practices A 32-page guide for teachers from the Office of Special Education Programs of the US Dept. of Education offers an overall strategy for the succesful instruction of children who have attention deficit hyperactivity disorder (ADHD) at school.

Teasing, People Say the Craziest Things, BandAides and Blackboards Paragraph-length testimonials of children with disabilities and their parents relating their experience of being teased and/or misunderstood by schoolmates and people in their communities.

The 16 Campuses of The University of North Carolina A helpful website that offers easy access to the home pages of all 16 campuses of the University of North Carolina. Although reviewed in January 2003, the What's New section was last updated in June 2000.

The Access Board The Access Board is an independent Federal agency devoted to accessibility for people with disabilities. The Board develops and maintains design criteria for the built environment, transit vehicles, telecommunications equipment, and for electronic and information technology. It also provides technical assistance and training on these requirements and on accessible design and continues to enforce accessibility standards that cover federally funded facilities. This website contains information about the board; information about accessible transportation, architecture (including play areas), and communication; free news updates, and more.

The Alliance for Technology Access The Alliance for Technology Access (ATA) is a network of community-based Resource Centers, Developers, Vendors and Associates dedicated to providing information and support services to children and adults with disabilities, and increasing their use of standard, assistive, and information technologies.

The Ambulatory Pdiatric Association The Ambulatory Pediatric Association

The American Federation for the Blind The American Foundation for the Blind (AFB) is a leading national resource for people who are blind or visually impaired, the organizations that serve them, and the general public. The mission of the American Foundation for the Blind is to enable people who are blind or visually impaired to achieve equality of access and opportunity that will ensure freedom of choice in their lives.

The Arc of NC The Arc of North Carolina is committed to securing for all people with mental retardation and other developmental disabilities the opportunity to choose and realize their goals of where and how they learn, live, work, and play.

The ArcLink This site contains a wealth of information for individuals with developmental disabilities and their families. Use this site to learn about support programs and how services are delivered in North Carolina, locate and research service providers, conduct a basic needs analysis, and research topics.

The Association for Driver Rehabilitation Specialists The Association for Driver Rehabilitation Specialists (ADED) is a nonprofit organization that provides support for professionals in the field of driver training and tranportation equipment modifications for persons with disabilities. Fact sheets with information of how different disabilities can impact driving as well as the adaptations that can be made in order to enable everyone have a safe driving experience are included on this website. The site also has information on educational conferences, research, a guide to locating driver rehabilitation specialists and equipment dealers across the country, and links to related sites.

The Bridge School - Archives - Halloween Costumes Introduction to Holloween Costumes for children in wheelchairs. List of basic materials for making costumes and pictures of costumes.

The Carter Centers for Brain Research in Holoprosencephaly A group of specialty hospital programs across the country dedicated to holoprosencephaly research, education, and support. This website describes the Carter Centers programs, provides information about the different types of holoprosencephaly, offers videos, discussion forums and more. Some information also available in Spanish.

The Center for Health and Health Care In Schools CHHCS was established to explore ways to strengthen the well being of children and youth through effective health programs and health care services in schools. They test model programs to expand dental and mental health services to children through school-based health centers. They analyze policy options for organizing and financing health programs in schools. They adivse government officials as well as leaders in schools and health care institutions on how to provide cost-effective and accountable health programs in schools. They reearch issues and publicize findings on the effectiveness of various school-based health programs and services. Finally, they inform policymakers and the public on alternative approaches to school-based health programs and services through the CHHCS website, listserv, e-journal, and print publications.

The Center for Univeral Design The Center for Universal Design, located on the campus of NC State University in Raleigh, is a national research, information, and technical assistance center that improves the accessibility of buildings by evaluating, developing, and promoting universal design in housing, public and commercial facilities, and related products. This website describes the concept of universal design and lists the Centers programs and resources.

The Cerebral Palsy Network Site based in Olympia WA, developed by parents of children with CP. Offers chat rooms for discussion of parent-centered CP related issues.

The Charge Syndrome Foundation Organization with a focus on children with Charge Syndrome.

The Council for Exceptional Children The Council for Exceptional Children (CEC) is the largest international professional organization dedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities, and/or the gifted. CEC advocates for appropriate governmental policies, sets professional standards, provides continual professional development, advocates for newly and historically undeserved individuals with exceptionalities, and helps professionals obtain conditions and resources necessary for effective professional practice.

The Crigler-Najjar Syndrome Web Page This is a web site devoted to children and adults with the Crigler-Najjar syndrome and their families. It has been created with support and funding from The Rockefeller University. Our mission is to provide information about the Crigler-Najjar syndrome to persons with the disorder, their families and the health professionals who take care of these children. We plan to keep this information updated as new research is published.

The Dragonfly Toy Company Toys for children with special needs. Search function allows you to look for suitable toys based on age and ability.

The Family Center on Technology and Disability A national resource designed to support organizations and programs that work with families of children and youth with disabilities by offering a range of information and services on the subject of assistive technologies and augmentative communication. Includes a searchable database containing reviews of books, articles, and research, a monthly newsletter, updates on legislation and regulation, online conferences, and presentation materials on the subject of assistive technologies. Funded by the U.S. Office of Special Education Programs.

The Family Village Estate Planning & Special Needs Trusts A compilation of listservs, articles and websites about financial planning, estate planning and special needs trusts for families of children with disabilities.

The Fathers Network This website celebrates and supports fathers and families raising children with special health care needs and developmental disabilities. It contains news and resources, articles by dads, links, bulletin boards, and a photo album. Has materials in Spanish as well. Funded by the Office of Children with Special Health Care Needs, Washington State Department of Health.

The Federal Resource Center for Special Education The FRC supports a nationwide technical assistance network to respond to the needs of students with disabilities, especially students from under-represented populations.

The Flutie Foundation The Doug Flutie, Jr. Foundation provides funding for services for financially disadvantaged families who need assistance in caring for their autistic children, funds research and education into the causes and consequences of childhood autism, and serves as a clearinghouse and communications center for new and innovative programs and services developed for autistic children.

The Food Allergy and Anaphylaxis Network The Food Allergy & Anaphylaxis Network (FAAN) is a non-profit organization that is committed to increasing public awareness of food allergies and anaphylaxis, providing education, and advancing research on behalf of all those affected by food allergies. This site contains information tailored for individuals living with food allergies (symptoms, testing, treatment, and recipes), as well as resources for larger groups (school programs, current research, allergy alerts and educational topics).

The Genetic Alliance An international coalition based in Washington, DC that supports individuals with genetic conditions and their families, educates the public and advocates for consumer-informed public policies. This website provides information about the organization, a calendar of events, a useful online directory of genetic resources, including support groups for a wide variety of conditions, and much more.

The Governor Morehead School for the Blind The Governnor Morehead School for the Blind strives to successfully educate North Carolina's children and youth with visual impairments to be productive, independent, confident citizens, and life-long learners. The school works with North Carolina students with visual impairments from birth through age 21, their parents, and the professionals who serve them. This website provides detailed descriptions of the services and programs offered by the school, it's history, and links to related websites.

The Hanen Centre A Canadian-based organization providing early language intervention for children with speech and language delay, especially those less than 6 years of age. Programs and methods used for training parents and therapist alike are described at this website. With an international flare, the website states that some of the literature has been translated into foreign languages. Website pages sometimes takes a while to download.

The Magic Foundation MAGIC is a national non-profit 501(c)(3) organization providing support and education regarding growth disorders in children and related adult disorders, including adult GHD. This website has been updated for 2000 to include their quarterly newsletter, and a place to register for their listserv.

The Miami Project to Cure Paralysis The Miame Project's sole purpose is find a cure for paralysis that results from spinal cord injury. Based at the University of Miami School of Medicine, the Project focuses strictly on research. This website includes an informative fact sheet on spinal cord injury, provides a helpful resource guide, and highlights current projects.

The National Association of School Nurses for the Deaf Mission is to enhance the quality of health education and services to Deaf students through education, networking, and promoting effective communication between Deaf and Hearing.

The National Center of Medical Home Initiatives for Children with Special Health Care Needs The National Center of Medical Home Initiatives for Children with Special Needs is a cooperative agreement between the American Academy of Pediatrics and the federal Maternal and Child Health Bureau (MCHB). The mission of the National Center is to work in cooperation with federal agencies, particularly the MCHB, to ensure that children with special needs have access to a medical home. The National Center provides support to pediatricians, families, and other medical and non-medical providers who care for children with special needs in the changing health care environment. This website provides information about the program, technical assistance, national and regional resources and information on the medical home training program.

The National Institute of Conductive Education Based in Birmingham, England, this cneter was founded by Diana, Princess of Wales, to promote the use of conductive education in the care of people with disabilities. This website provides information about conductive education, a discussion forum, a job "centre", books, and publications.

The National Pediculosis Association?, Inc. The National Pediculosis Association?, Inc. (NPA) is the only non-profit health education agency dedicated to protecting children from the misuse and abuse of potentially harmful lice and scabies pesticidal treatments. As part of its mission, the NPA works to encourage our nation's health and child care professionals to adopt standardized head lice management programs.

The North Carolina Chapter of Families of Spinal Muscular Atrophy There are currently 12 families active in the chapter. It is our intention to have a considerable impact on the efforts toward finding a cure for Spinal Muscular Atrophy.

The Program for Infant/Toddler Caregivers This organization, based in Sausolito, California, provides products, training and technical assistance to child care providers and others who care for young children. While their training sessions are available only in CA, their website allows the user to view powerpoint presentations on early childhood development and lists guidelines and training handbooks available by order.

The Reeve-Irvine Research Center The Reeve-Irvine Research Center was established for the purpose of studying injuries to and diseases of the spinal cord that lead to paralysis or other loss of function with the goal of finding a cure. This website focuses on spinal cord injury research and includes some links as well as information for students on programs that are offered by the Center.

The Sarah Jane Brain Project Begun by the father of a girl who sustained a brain injury, this national organization is working to create a model system for children suffering from all Pediatric Acquired Brain Injuries. At this website you can learn more about the organization, its events, find links to useful information and resources, follow Sarah Jane's progress in words and videos, and more.

The Shaken Baby Alliance The mission of the Shaken Baby Alliance is to provide support for SBS victim families (Including adoptive and foster parents), advocate for justice for SBS victims, and increase SBS awareness.

The Special Needs Trust An online article to about special needs trusts to help you with financial planning for a child with a disability. From the National Institutue on Life Planning for Persons with Disabilities.

The Van House Located in Hampton, Virginia, this company provides and repairs customized adaptive equipment for people with disabilities in Northeastern North Carolina. This website provides information about the company and many of its products.

The Yellow Book This publication from The Centers for Disease Control should be used as a reference for those who advise international travelers of health risks. It is written primarily for health care providers, although others might find it useful.This website includes current information on destinations, recommended vaccinations, and preventive measures that travelers should take to protect their health and allows you to download the most recent edition to read.

TherAdapt This website contains an online catalog of the company's mobility and positioning products, instructions on their use, sample letters of medical necessity, and more.

Therapeutic Recreation A massive listing of resources for Therapeutic Recreation professionals

Therapy Playground A private therapy agency providing occupational therapy, speech therapy, and physical therapy to children with special needs in the Fayetteville area. This website provides information about the agency, a fee schedule, brief educational handouts, links to other websites and more.

Theratogs Designed by a physical therapist, theratogs are an orthotic undergarment and strapping system designed to improve postural alignment and stability, movement skill and precision, and joint stability. This company website describes how theratogs are designed to work, provides sizing and ordering information, and more. TheraTogs? a

Third National Conference on Shaken Baby Syndrome The Third National Conference on Shaken Baby syndrome will be held in Salt Lake City, Utah on September 24-26, 2000.

Tips to Remember about Food Allergy From the American Academy of Allergy, Allergy and Immunology.

Tourette Syndrome Association, Inc. The TSA is a national not-for profit organization dedicated to providing up-to-date, accurate information about Tourette Syndrome. This website describes the organization, provides information about Tourette Syndrome, offers books and videos for purchase, has an online newsletter (non-members can only read the first page each edition), an ask the expert page and a new education and advocacy section.

Tourette Syndrome information from the CDC This website from the Center for Disease Control provides an array of information on Tourettes Syndrome including a description, research, education & training, information for parents & heath professionals, free materials for parents, teachers, & professionals as well as young people. It also has a list of additional links to other websites related to Tourette Syndrome. CDC?s National Center on Birth Defects and Developmental Disabilities funds a cooperative agreement with the national Tourette Syndrome Association (TSA) to educate physicians, allied professionals, and school personnel (and, to a limited extent, the general public) about TS by providing accurate, up-to-date, evidence-based information about the recognition, diagnosis, and treatment of TS.

Toys R Us Guide for Differently Abled Kids An online catalog of toys available from Toys R Us that uses categories to make it easier to find the right fit between your child's abilities and stimulating toys that will promote development.

Training Modules for the CDC Growth Charts HRSA's Maternal and Child Health Bureau (MCHB) has collaborated with the Centers for Disease Control and Prevention (CDC) to develop a new training website for the CDC 2000 Growth Charts. This website provides self-directed and interactive training modules for clinical and public health professionals who use growth charts to assess physical growth in infants, children, and adolescents at no cost.

Transition Research Institute Located at the University of Illinois at Urbana-Champaign's School of Education, this institute is dedicated to improving school-to-work and transition outcomes for students with disabilities through research. This website provides teachers, service providers, clients and researchers with an excellent source of information. Be sure to check out the available on-line publications.

Transition Revolution Executive Summary In March, 1999, a group of 50 health policy administrators, analysts and leaders, as well as physicians, nurses, teachers, family representatives, advocates, and adolescents with disabilities were invited by the Maternal Child Health Bureau to discuss how far the health care industry has come since 1989 in facilitating transitioning youth from pediatric to adult health care and what work still needed to be done. This website provides the executive summary of this meeting with evaluations and plans for future interventions and programs.

Transition Services in the IEP An online guide to including and integrating transition services into school based Individualized Education Plans. While it was written in 1993, it does provide a good overview of the process and offers suggestions for both parents and professionals. From the National Information Center for Children and Youth with Disabilities.

Triangle Down Syndrome Network This organization exists to support and connect families of children with Down syndrome by organizing and promoting activities such as monthly support meetings, parent socials, playgroups, Mom's Night Out, holiday parties, and more. Their website provides information about the organization, a calendar of events, a newsletter, links to resources, and more.

Triangle Mothers of Twins and Triplets This website for parents of multiples describes the group's programs including monthly meetings, newsletters, buddy program, clothing and equipment sale and much more.

Triangle Therapy This private practice in Durham, NC provides occupational and physical therapy services for children with sensory integration dysfunction, cerebral palsy, coordination disorders and other develpmental disabilities. The website provides an overview and contact information for this practice.

Tucker Sling Based in New Orleans, Louisiana, this company sells an infant-positioning system for babies who have Gastroesophageal Reflux (GER),lung conditions and/or sinus and ear infections and need to sleep on an incline. The website offers information about the Tucker Sling, and links to websites about GER.

U.S. Electric Wheelchair Hockey Association a national organization designed to promote a quality hockey program for persons requiring the use of an electric (power) wheelchair in daily life.

UC and Crohn's A web site for youth from the Crohns Colitis Foundation of America that focuses on Ulcerative Colitis and Crohn?s Disease that includes discussions about talking with physicians, dealing with day-to-day hassles associated with a chronic condition, was of taking charge, and issue of privacy. While some of the discussions are specific to these two conditions, most are relevant to any chronic health condition or disability.

UNC Department of Pediatrics Home page of the UNC Department of Pediatrics. Provides general information regarding Residency Programs, Pediatrics Divisions and Programs at UNC, Faculty Research and Clinical Interests, Pediatrics Computer Support Pages, and an Email address book for department members.

UNC Hospital School UNC Hospitals is host to the state?s only accredited Pre-Kindergarten through 12th Grade (PK-12) Hospital School. The school helps children keep up with their classroom studies during their hospital stay and works with the local schools to provide a smooth transition back to school. There are two separate locations for the school within the UNC Hospitals complex. The pediatric component of the school is located on the seventh floor of the Children?s Hospital, and the psychiatric component is located on the second floor of the Neurosciences Hospital. At both locations, there are classrooms, offices and a media center or computer lab. Although there are classrooms and physical space designated as ?school? where students ?go to school?, school often goes to them. When needed, teachers work with students at bedside or on the patient?s units where they are being treated. To learn more about the Hospital School, click here: http://chccs.k12.nc.us/hospital

UNC Learning Disabilities Services Learning Disabilities Services (LDS) at the University of North Carolina at Chapel Hill is responsible for providing accommodations and services to eligible students with learning disabilities (LD) and attention-deficit/hyperactivity disorders (ADHD). They work with undergraduates as well as graduate and professional school students. This website contains information about the program and has a list of FAQs.

UNC Pediatric Surgery Website for UNC Pediatric Surgery

United Brachial Plexus Network The United Brachial Plexus Network strives to inform, support and unite families and those concerned with brachial plexus injuries worldwide.

United Mitochondrial Disease Foundation Based in Pittsburgh, Pennsylvania, this national non-profit organization promotes research for the cure and treatment of mitochondrial diseases and to provide support to affected families. This website offers information about the organization, online newsletters, listservs, message boards, website links, and more, for both families and health care providers.

United Ostomy Association, Inc. The United Ostomy Association is a volunteer-based health organization dedicated to providing education, information, support and advocacy for people with intestinal (ex/colostomy) or urinary (ex/vesicostomy)diversions. This website provides information about ostomies, conferences, books, local chapters, and more.

United States Association of Blind Atheletes The mission of the United States Association of Blind Athletes (USABA) is to change the attitudes about the abilities of the blind and visually impaired. USABA trains 3,000 blind and visually impaired athletes in nine sports - alpine and nordic skiing, goalball, judo, powerlifting, swimming, tandem cycling, track and field and wrestling.

Universal Design for Learning CAST is a nonprofit organization that works to expand learning opportunities for all individuals, especially those with disabilities, through the research and development of innovative, technology-based educational resources and strategies. At this website you can learn more about how to design a blueprint for creating flexible goals, methods, materials, and assessments that accommodate learner differences in the classroom.

University of South Alabama Comprehensive Sickle Cell Center The mission of the SCC is to: 1) Improve understanding of the pathophysiology and management of sickle cell disease through high quality basic science and clinical research. 2) Develop new approaches for diagnosis and treatment of sickle cell disease (SCD). 3) Transfer the knowledge and skills to health professionals and to the community through education programs. And 4) Counsel and educate patients with SCD, sickle cell trait, or other hemoglobinopathies in the Mobile area and Central Gulf Coast region.

Vagal Nerve Stimulator (VNS) A webpage from the Epilepsy Foundation of America that answers commonly asked questions about the vagal nerve stimulator, a device that can help treat seizure disorders in children and adults.

Van Products, Inc. Van Products, located in North Carolina, modifies vehicles to individual needs, offering sales and service of both adaptive equipment and new/used wheelchair accessible vehicles.

Victory Junction Gang Camp Co-founded by Pattie and Kyle Petty, this camp for children with special health care needs will be located in Randleman, North Carolina on 62 acres and is scheduled to open in the summer of 2004. This website provides information about the camp and its development.

Videos About Transition to Adulthood A list of several videos available for on-line viewing that cover topics like health care transitions, the Healthy and Ready to Work program, the PASS program from the Social Security Administration and others. From the Institute for Child Health Policy in Gainesville, Florida.

Virtual Pediatric Hospital Home Page The goal of the Virtual Pediatric Hospital digital library is to make the Internet a useful medical reference and health promotion tool for health care providers, patients, and families. Based at the Children's Hospital of Iowa, this site contains a digital library that delivers Continuing Education (CE) to health care providers, a wealth of information for families, and a kids' page of resources.

Vocal Development.com This website, developed by David Ertmer at Purdue University, offers information about early speech development using audio clips and short video segments. Includes a video tutorial about ways to stimulate early speech development in toddlers with cochlear implants.

Vocational Rehabilitation This is the website of the North Carolina Division of Vocational Rehabilitation. This division of the state's Department of Health and Human Services assists people with disabilities who have work-related needs or questions about their transition to adulthood. Contains descriptions of the various programs and services available, lists local offices with contact information, updates job listings, and has related links.

Voices Together Voices Together is a non-profit organization that serves individuals with developmental disabilities in the Triangle. It's programming uses music therapy through the structure of a chorus, evidence-based interactive songs and the therapeutic group process to increase communication, speech skills and social interaction. At this website you can learn more about the organization, find a listing of its choruses, and more.

Volunteer Families for Children of North Carolina The mission of this non-profit organization is to provide North Carolina's children in need with safe, short-term care through a network of licensed, volunteer host families. VFC works with families to provide emergency or planned respite care for children in times of crisis or stress. This webpage offers a summary about the organization and contact information.

WIDE SMILES - Cleft Lip and Palate Resource One child in 700 is born with a cleft. It is the fourth most common birth defect, and the first most common facial birth defect. And yet so many parents feel so alone. WIDE SMILES was formed to ensure that parents of cleft-affected children do not have to feel alone. We offer support, inspiration, information and networking for families everywhere who may be dealing with the challenges associated with clefting. At WIDE SMILES we believe that, while it may not have been wonderful that our children were born with cleft, it is nonetheless true that our children who were born with cleft are wonderful. Together we share the struggle, the pain, the joy and the triumph of watching our children grow. Their challenges may be many, but we can face them together, learn from each other and help our children to recognize their beauty within.

Wake County Public School Medication Form 1702 The New Wake County Public School Medication Form to be completed by parents, then sent to their doctor for review and signature. This form is for school year 2011-2012 and on.

We Can Play An online manual of 20 activity ideas that can be used by children of all abilities. Also available in handout form and in Spanish. From the Alliance for Technology Access.

We've Gotcha Covered The webpage for a start-up company providing babysitters and mother?s helpers for families living in North Raleigh, NC that specializes in watching kids with disabilities.

WebABLE! Web site for disability-related internet resources. mission is to stimulate education, research and development of technologies that will ensure accessibility for people with disabilities using information systems and emerging technologies.

What is CP? A homepage that gives general informatin about the characteristics of cerebral palsy, risk factors associated with the condition and general discussion of treatment options and approaches.

What is Stevens-Johnson syndrome A brief overview of Stevens-Johnson Syndrome (SJS) from dermatologists at the Mayo Clinic in Rochester, MN.

Wheelchair Accessible Hikes This site was started in 2008 to share information about wheelchair accessible hiking trails with others who enjoy getting outside! After visiting Sand Harbor State Park on Lake Tahoe, I decided to start this site. The boardwalk trail running through the coves was so beautiful; I wanted to share it with others. So that's how this all began! Personally, I consider a trail accessible if it's wide enough to allow passage for a wheelchair, has a hard surface like pavement or compacted dirt which is mostly free of ruts and bumps, the elevation change is limited or gradual and has interesting scenery, which can be natural or urban. The hikes listed here may not be appropriate or safe for all hikers. Each hiker must determine for himself if the hike is appropriate for him or herself. Thank you to the hikers from around the world who have contributed trail information! Keep the contributions coming so we can all explore new trails.

Wheelchair Net Wheelchair Net is an Internet community providing free information and services on wheelchair technology, its improvement, and its successful application. WheelchairNet is a vehicle for assisting people in: 1) asking questions about wheelchair selection and use; linking to information about wheelchair products and services; and learning about and participating in wheelchair research projects.

Wheelchair Sports, USA Under direction of the National Wheelchair Athletic Committee, Wheelchair Sports, USA organizes and governs wheelchair sports in the United States. This website gives qualifying standards, event information, rules, records and directories regarding wheelchair sports.

Wheelchair Transportation Safety The Rehabilitation Engineering Research Center on Wheelchair Transportation Safety (RERC WTS) is a program designed to make measurable improvements in transportation safety, usability, and independence for people who remain seated in their wheelchairs when traveling in public, school, and private motor vehicles. At this site, you can learn more about transporting wheelchair users safely, read research updates, find links to other sites related to transportation and more.

Wheelchairs Used as Seats in Motor Vehicles These guidelines, including the Society of Automotive Engineers' Standards for wheelchairs used as seating systems in motor vehicles, are the recommended guidelines to ensure the safety of children and adults with mobility impairments.

Winners on Wheels Empowers kids in wheelchairs by encouraging personal achievement through creative learning and expanded life experiences that lead to independent living skills.

Wintergreen Adaptive Skiing WAS is a non-profit, 501(c)3 corporation whose mission is to teach the joys of alpine skiing to individuals with a disability. Set in the beautiful Blue Ridge Mountains of Virginia, WAS offers fun, exhilaration and the chance to enjoy the outdoors with family and friends to people of all ages and with every imaginable disability.

Wisconsin Assistive Technology Initiative The Wisconsin Assistive Technology Initiative (WATI) seeks to make assistive technology devices and services more available to children. The WATI website includes links and material that can be helpful to residents of all states, not just those in Wisconsin. The assistive technology and art link is especially unique and interesting where parents and service providers can access software and assistive art products for children.

Wound, Ostomy and Continence Nurses Society WOCN, an association of ET nurses, is a professional nursing society which supports its members by promoting educational, clinical, and research opportunities, to advance the practice and guide the delivery of expert health care to individuals with wounds, ostomies and incontinence.

Wrights Law This website (from Pete Wright, an attorney who represents children with special needs, and his wife Pam Wright, a psychotherapist with training in psychology and clinical social work)offers a great deal of information about special education law, focusing on attention deficit disorder, autism, IDEA, IEPs and other school-related services. The site includes article, tips, a bookstore, a seminar/training schedule and more. Try the site search engine to find specific information more quickly. You might need to scroll far down some the long web pages.

Yahoo A popular search engine

Yale Child Study Center Developmental Disabilities Clinic & Research Home Page The Yale Developmental Disabilities Clinic in New Haven, Connecticut, offers comprehensive, multidisciplinary evaluations for children with social disabilities, usually focusing on the issues of diagnosis and intervention. This website provides website links, information, and updates about the clinic's research on autism, asperger's syndrome, pervasive developmental disorders, prader willi syndrome, williams syndrome and more.

Yoga for the Special Child This site supports the book and training programs of Sonia Somar, a woman who has developed a yoga program for children with special needs.

Your Baby and Down Syndrome A 2-page brochure (2005) from the National Down Syndrome Society. Developed by parents of children with Down Syndrome working along with medical experts, this brochure is designed to help parents learn more about Down Syndrome and helpful community resources.

Zero to Three ZERO TO THREE is a national non-profit charitable organization whose mission is to strengthen and support families, practitioners and communities to promote the healthy development of babies and toddlers. This website provides information about the organization, resources for parents and professionals, an events calendar, and more.

Zot Artz Arts for All A Wisconsin-based company that makes special art tools (paint roller and chalk holder attachments for wheelchairs) designed so participants with limited movement or lack of fine motor skills can be successful in using what mobility they have to create, paint, draw, print and more. This website offers information about the company, contact information, and an online catalog.

adam.com adam.com is the leading online provider of health, medical, and wellness information. Our web site is the first and last destination for people who want quick, reliable answers to health questions. Keeping you, the consumer, healthy and knowledgeable is what we try to do every day. We have been working towards that end for the last ten years, building our library of encyclopedia articles, news stories, images, expert Q&A's and other resources. Our search engine finds text, graphics, and hyperlinks for common health topics, their clinical terms, symptoms, drugs, treatments, and related news stories.

allhealth.com Whether you're looking for tips on healthy living, information on caring for a loved one, or help dealing with an ongoing medical concern, we can help you find solutions for your life. We are here to provide you with the most up-to-date information and support anywhere, so you can make informed decisions for yourself, your family and loved ones.

children with DIABETES The on-line community for kids, families and adults with diabetes.

drkoop.com drkoop.com is a consumer-focused interactive Web site which provides users with comprehensive healthcare information on a wide variety of subjects, as well as access to medical databases, other publications, real-time medical news, interactive communities, interactive tools and opportunities to purchase healthcare-related products and services online.

eHealthcare Association TeHA, a non-profit organization, will enhance the Internet healthcare industry by serving as a unified voice for all stakeholders with the ultimate goal of improving the quality of care and the efficiency of the healthcare system by advancing the use of the Internet.

http://www.audiciondelbebe.org/portada.asp Spanish Version of a website from Boys Town National Research Hospital in Omaha, Nebraska that is designed to answer parents' questions about: * Infant hearing screening and follow up testing. * Steps to take after diagnosis of hearing loss. * Hearing loss & hearing aids, language & speech. * Parenting issues. Funded by a grant from the National Institutes on Deafness and Other Communication Disorders.

iPod and iPad Apps Resource An online handout/booklet from the Pacer Center that helps families and educators learn how to use iPod and iPad technologies to help children with special needs.

webMD.com Healtheon/WebMD is the first end-to-end Internet healthcare company connecting physicians and consumers to each other and to the entire healthcare community. Our vision is to improve health and wellness around the world - by using the Internet to facilitate a new system for the delivery of healthcare. The result is a single, secure environment for all communications and transactions among physicians, consumers and healthcare institutions.