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This area provides selected resources that we feel will
be of interest and/or service to the TelAbility community.
Although our own expert staff did not develop these
resources, TelAbility has reviewed them prior to their being
added to this area. You can search this area to find
materials on topics of interest to you and, as always, we
welcome your assistance in suggesting other resources that
you've found to be helpful or that you believe should be
added. Send us feedback.
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| | | American Academy of Pediatrics | | | | | Prescribing Assistive Technology Systems: Focus on Children With Impaired Communication. | | | | | Download: | Adobe Acrobat | | | | | |
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| | | NC Office on Disability and Health | | | | | This pamphlet summarizes findings from focus groups of people with disabilities and chronic health conditions making the transition to adulthood. (Spring 2000) | | | | | Download: | Adobe Acrobat | | | | | |
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| | | Autism on the Seas | | | | | ?Autism on the Seas? provides cruising vacation options for Adults and Families dealing with Autism and related Disabilities.
| | | | | Download: | Program (com) | | | | | |
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| | | Woody's Mom, Inc. | | | | | The .pdf file below may be helpful in understanding some of the new benefits and services now offered to CAP/C recipients.
The generic version can be found on DMA's website at:http://www.dhhs.state.nc.us/dma
| | | | | Download: | File (woodysmom.org) | | Download: | Adobe Acrobat | | | | | |
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| | | NC Children's Special Health Services | | | | | An 18-page document listing policies, procedures, and resources to obtain funding to purchase DME (durable medical equipment) for children with special needs in North Carolina | | | | | Download: | Microsoft Word | | | | | |
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| | | UNC Hospitals | | | | | A video from the Carolina Center for Special Surgery for Children. This guide describes the ins and outs of caring for your child's g-tube and offers trouble shooting advice to improve gastrostomy feeding. | | | | | Download: | Multimedia (wmv) | | | | | |
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| | | UNC Hospitals | | | | | Un video del centro de Carolina para la cirugia especial para los ni?os. Esta guia describe como cuidar para su g-tubo de child's y ofrece consejo de la investigacion de averias para mejorar la alimentacion del gastrostomy. | | | | | Download: | Multimedia (wmv) | | | | | |
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| | | Deaflinx | | | | | Deaf Linx is designed to be a one-stop shop for legal deaf cultural resources, American Sign Language (ASL) resources, deaf education, and deaf services. Health care, government assistance, real estate access, insurance, and travel also may create issues that uniquely affect deaf people and their families. There are many resources available here to help you find the information and programs that can greatly improve the deaf community, as well to help deaf individuals and their friends and family navigate all of the concerns that may arise in these areas. Whether you were born deaf, suffer from degenerative hearing, or are the parent or loved one of a deaf child, Deaf Linx has valuable information to help you find the information you are looking for. | | | | | Download: | File (deaflinx.com/) | | | | | |
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| | | Karen Haas, LPT | | | | | A step-by-step outline to help you determine which funding source to use for durable medical equipment. | | | | | Download: | Microsoft Word | | | | | |
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| | | American Red Cross | | | | | Is it hurricaine season again? This 48-page booklet is designed for use by anyone who has a disability or who works with, lives with, or assists a person with a disability. Has information on possible disaster effects, assessing
personal needs and abilities, suggestions about forming a personal support network, and fill-in-the-blank checklists. A good resource for young adults moving out of the house as they make the transition to adulthood. | | | | | Download: | Adobe Acrobat | | | | | |
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| | | Pathways Awareness Foundation | | | | | Established in 1988, the Pathways Awareness Foundation is a not-for-profit organization dedicated to education for and about children with movement difficulties and physical challenges. The activities of the Foundation are based upon the expertise of the Pathways Medical Round Table, which is comprised of leading physicians, clinicians and lay advisors who are sensitive to the medical and emotional needs of the physically challenged, their families and/or caregivers.
If you would like more information about the Pathways Awareness Foundation or services available in your area, please call toll free 1-800-955-CHILD or write to Pathways Awareness Foundation, 150 N. Michigan Ave., Suite 2100, Chicago, Illinois 60601
| | | | | Download: | Multimedia (ram) | | | | | |
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| | | American Academy of Pediatrics and American College of Emergency Physicians | | | | | A standardized 2 page form that, when completed by parents and/or their physician, lists the most important and helpful information needed by emergency medical personnel caring for a child with special needs. Copies of this form should be available at the child's home, daycare, and/or school and should be updated regularly. | | | | | Download: | Adobe Acrobat | | | | | |
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| | | Pathways Foundation | | | | | Spanish Version : Establecida en el ano 1988, la Fundacion de Entendimiento "El Sendero" es una organizacion no gubernamental dedicada a la educacion de y sobre los
ni?os con dificultades del movimiento y retos fisicos. Las actividades de la fundacion estan basados en el juicio de la Mesa Redonda Medica "El Sendero", la cual esta compuesta de medicos, clinicos y consejeros publicos sobresalientes quienes estan sensibles a las necesidades medicas y emocionales de las personas con retos fisicos, sus familias y los que les cuidan.
Su usted desea mas informacion acerca de la Fundacion de Entendimiento "El Sendero" o sobre los servicios disponibles en su area, por favor llame, sin tarifa, al 1-800-955-CHILD o escriba a Pathways Awareness Foundation, 150 N. Michigan Ave., Suite 2100, Chicago, Illinois 60601.
?Mi Bebe Esta Bien? esta posible en parte a traves de la fundacion de Entendimiento "El Sendero" y una subvencion del Ronald McDonald Children's Charities. | | | | | Download: | Multimedia (ram) | | | | | |
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| | | The TelAbility Project | | | | | This may be found elsewhere on the site as well. | | | | | Download: | Adobe Acrobat | | | | | |
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| | | NC Office on Disability and Health | | | | | This report summarizes the major findings of the recent NC spina bifida research study, "Quality of Life and Secondary Conditions in Individuals with Spina Bifida". Helpful for parents and teenagers with spina bifida who are making the transition to adulthhood. | | | | | Download: | File (fpg.unc.edu/~ncodh) | | Download: | Adobe Acrobat | | | | | |
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| | | North Carolina Department of Health and Human Services, Division of Public Health, Women's and Children's Health Section | | | | | North Carolina Department of Health and Human Services,
Division of Public Health, Women's and Children's Health Section -
Guidelines for Prior Approval of Pediatric Mobility Systems by the North
Carolina Children's Special Health Services Program | | | | | Download: | Adobe Acrobat | | | | | |
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| | | North Carolina Council on Developmental Disabilities | | | | | A 48-page guide to North Carolina's Community Alternatives Program (CAP) for persons with mental retardation and developmental disabilities. Uses everyday terms to provide a description of the program and step by step instructions about how to apply for funds. | | | | | Download: | File (nc-ddc.org/) | | Download: | Adobe Acrobat | | | | | |
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| | | Pathways Awareness Foundation | | | | | Established in 1988, the Pathways Awareness Foundation is a not-for-profit organization dedicated to education for and about children with movement difficulties and physical challenges. The activities of the Foundation are based upon the expertise of the Pathways Medical Round Table, which is comprised of leading physicians, clinicians and lay advisors who are sensitive to the medical and emotional needs of the physically challenged, their families and/or caregivers.
If you would like more information about the Pathways Awareness Foundation or services available in your area, please call toll free 1-800-955-CHILD or write to Pathways Awareness Foundation, 150 N. Michigan Ave., Suite 2100, Chicago, Illinois 60601.
Is My Baby OK? was made possible in part by the Pathways Awareness Foundation and a grant from the Ronald McDonald Children's Charities
| | | | | Download: | Multimedia (ram) | | | | | |
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| | | The Spina Bifida Association of America | | | | | To help you learn more about how to prevent latex (natural rubber) allergies, this list describes latex containing products frequently found in the community and in the hospital and provides latex-free alternatives. | | | | | Download: | File (sbaa.org/) | | Download: | Adobe Acrobat | | | | | |
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| | | North Carolina Health Choice for Children | | | | | Children in the NC Health Choice Program meeting the legislative definition for special needs services must now be identified with this Physician Certification Form, signed by the diagnosing physician, if they need services above the core service package covered by the State Employee?s Health Plan. If you have more questions about this program , click on the link below or call 1-800-737-3028 | | | | | Download: | File (dhhs.state.nc.us/dma/cpcont.htm) | | Download: | Adobe Acrobat | | | | | |
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| | | North Carolina Department of Health and Human Services, Division of Public Health, Women's and Children's Health Section | | | | | North Carolina Department of Health and Human Services, Division of Public
Health, Women's and Children's Health Section - Covered DME list | | | | | Download: | Adobe Acrobat | | | | | |
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| | | NC Office on Disability and Health | | | | | This guide includes a listing of inclusive recreation facilities and opportunities in North Carolina for young adults with disabilities making the transition to adulthood. Resources include community, state, and regional recreation resources as well as national adapted sports and recreation organizations. | | | | | Download: | File (fpg.unc.edu/~ncodh/index.htm) | | Download: | Adobe Acrobat | | | | | |
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| | | National Institute of Mental Health | | | | | An easy to read handout on OCD from the National Institute of MentalHealth. | | | | | Download: | Adobe Acrobat | | | | | |
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| | | NC Office on Disability and Health | | | | | A one page handout providing tips on communicating with your health care provider. Good information for teenagers with disabilities making the transition to adult services. | | | | | Download: | File (fpg.unc.edu/~ncodh/) | | Download: | Microsoft Word | | | | | |
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| | | Lynne Farber, RN, PNP - UNC Pediatric Surgery Department | | | | | An 18-page online manual with diagrams and pictures that teaches parents and providers all about pediatric g-tubes and g-buttons. Includes sections on surgical techniques, feeding instructions, oral care, and solutions to commonly encountered problems. | | | | | Download: | Adobe Acrobat | | | | | |
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| | | Karen Haas, MPH, PT | | | | | A quick reference guide for most information contained in the formal CSHS Guidelines packet on securing funds for durable medical equipment (DME) from public agencies. | | | | | Download: | Microsoft Word | | | | | |
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| | | Linn Wakeford, M.S., OTR/L | | | | | Included in this handout are some basic strategies to support engagement and participation for children (or adults!) with different patterns of sensory processing problems. General strategies and some specific examples are provided, along with the goal of intervention for each pattern, to help you think about how to provide support for individual children you may know. | | | | | Download: | Adobe Acrobat | | | | | |
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| | | BabyGERD.com | | | | | A checklist of symptoms that are typical in children with gastroesophageal reflux disease (GERD).
| | | | | Download: | Program (com) | | Download: | Adobe Acrobat | | | | | |
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| | | Wake County LICC | | | | | The Wake County LICC is a collaborative partnership among parents, caregivers, public agencies (such as the CDSA, Wake County Human Services and Wake County Public Schools), private and non-profit organizations, and interested community members to promote a coordinated and effective Early Intervention System in Wake County.
The LICC wants and needs input from families. Please call 919-856-5847 or email wake.licc@gmail.com for more information. | | | | | Download: | Adobe Acrobat | | | | | |
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| | | HMS School | | | | | Your Smile: Dental Care for Children with Cerebral Palsy.
This video addresses dental care interventions that can help to maintain healthy mouths and bodies of children with cerebral palsy. Featuring advice from dentists and other health care providers. This video is being made available to you through the collaborative efforts of HMS School for Children with Cerebral Palsy located in Philadelphia, Pennsylvania and the Education and Training Division of Proctor and Gamble. | | | | | Download: | Multimedia (ram) | | | | | |
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