This area provides a comprehensive list of sites that we feel are of interest to the TelAbility community. Use the search interface above to search by keyword or category for sites related to your area of interest. We are constantly reviewing and adding new links so please check back often.

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ACCESS North Carolina: A Guide to Travel Site Accessibility The 2012 edition of this travel guide was produced by ACCESS North Carolina, a program of the NC Department of Health and Human Services. Distribution is coordinated by the NC Department of Commerce through its Division of Travel and Tourism. Sites in this book are also found in the North Carolina Travel Guide produced by the Division of Travel and Tourism. Travel attractions were reviewed by the editor or volunteers as to their physical accessibility. The information in this edition reflects the impressions of site reviewers. Disclaimer

ADD Resources ADD Resources is a rapidly growing national non-profit organization whose mission is to help people with ADD/ADHD achieve their full potential through support and education. Their website offers 100 free and carefully chosen articles helpful to adults with ADD/ADHD and to parents of children with ADD/ADHD, a free monthly eNews, 100 links to other ADHD-related websites, the National ADHD Directory, and more.

ADDitude Magazine Additudemag.com is the web site of ADDitude Magazine, The Happy, Healthy Lifestyle Magazine for People with attention deficit disorder (ADD). Each issue is dedicated to a specific theme and is full of information and ideas about life with attention deficit hyperactivity disorder.You can subscribe for one year for $19.97 (Six Issues)or two Years for $36.95 (Twelve Issues).The site provides information on medical issues, community needs, and a kids section.

ARCH National Resource Center for Respite and Crisis Care Services Based in Chapel Hill, ARCH gives families and caregivers comprehensive information related to respite care. In addition to providing related-links and general fact sheets, the website includes a National Respite Locator Sevice to help families find respite care in their area quickly and easily.

AVENUES A national support group for arthrogryposis multiplex congenita. This website includes general information about the condition (also in Spanish), directory listings of clinics, providers, and support groups.

About Face International AboutFace is an international organization which provides information and emotional support to individuals with facial disfigurement, and to their families.

About Face USA A national non-profit organization dedicated to providing information, emotional support, and educational programs to individuals who have a facial disfigurement, and to their families. Conditions include cleft lip and/or cleft palate, crouzon syndrome, apert syndrome, moebius syndrome and others.

After the Injury A website designed to help severely injured children cope with emotional issues that can linger long after their accident. The Web site includes tip sheets, videos and planning guides to help families and victims. From the Center for Injury Research and Prevention at the Children's Hospital of Philadelphia.

Aicardi Syndrome Website Aicardi syndrome is a rare genetic disorder. The site provides information for parents, a newsletter, regional coordinators, email Support Groups, chat room, foundation information, events/conference updates, and a personal section to meet some of the girls afflicted with this disorder.

Ask Dr. Greene An on-line resource established by a certified pediatrician to answer many of your child care related questions.

Assistance Dogs International, Inc. A non-profit organization to promote standards of excellence in al areas of assistance dog programs, facilitate communication and learning among member organizations, and educate the public to the benefits of these programs. This website provides a listing of member programs, information about various types of assistance dogs, related links, and more.

Asthma and Allergy Foundation of America Home of the Asthma and Allergy Foundation of America. This site provides educational materials, news articles, an ask the allergist section, and more.

Attention Deficit /Hyperactivity Disorder Information From the National Institute of Mental Health. This website offers general information about AD/HD and lists other sources of information and support from the NIMH.

Autism Asperger Publishing Company An independent publisher specializing in books on autism spectrum disorders based on the latest research on autism, Asperger syndrome and other pervasive developmental disorders. AAPC takes pride in offering books that provide practical solutions for individuals with an autism spectrum disorder as well as parents, teachers or others working or living with an individual with an autism spectrum disorder. In addition to autism books they offer videos and other interactive products. They have recently expanded our titles of books and resources on social skills and sensory integration dysfunction due to the importance of these areas for individuals on the autism spectrum and the scarcity of resources in these areas. Whether you need information about an autism spectrum disorder or social skills or sensory integration, AAPC offer books, resources, and conferences of the highest caliber with a practical focus.

Autism Cares This site serves as a disaster registry for the autism community so health records can survive a natural disaster, such as Hurricane Katrina, allowing for continuous care.

Autism Resources List of links to local protection and advocacy organizations, social groups, educational resources, developmental disability planning councils, vocational rehabilitation centers, state insurance departments and organizations that provide parent training. Also included are links to national organizations and resources. Some information available in Spanish.

Autism Society of America ASA is dedicated to increasing public awareness about autism and the day-to-day issues faced by individuals with autism, their families and the professionals with whom they interact. The Society and its chapters share a common mission of providing information and education, supporting research and advocating for programs and services for the autism population. This website includes an overview of the not-for-profit organization,links to local chapters (3 NC links), publications, and policy statements.

Autism Society of North Carolina The North Carolina chapter of the Autism Society of America. This website provides information on local resources, special events, summer camps, and an online bookstore

Autism Society of North Carolina Bookstore The Autism Society of North Carolina Bookstore was foundd in 1988 in response to parent requsts for information on autism spectrum disorder (ASD). Over the past 17 years the bookstore has grown to become the largest non-profit ASD-specific bookstore in the United States, with nearly 500 titles in stock.

AutismBuddy.com AutismBuddy aims to provide a FREE user-friendly website that provides high quality pintables and resources for teachers and parents for use with children with Special Educational Needs. You will find easy to download resources in many categories including booklets, puzzles and games, flashcards, worksheets, visual timetabling, activities, visual aids, emotions, teaching aids, matching and sorting, classroom display, clip-art, E-books and social skills and many more.

Band-aides and Blackboards Goal is to help people understand what it's like to grow up with medical problems, from the perspective of the children and teens who are doing just that. Areas for parents, teens, and children.

Beach Center on Families and Disabilities The Beach Center, located at the University of Kansas, is funded through a grant from the US Department of Education. This website contains research briefs, Beach Center Newsletters, fact sheets on behavioral management, products, and links to support organizations. Good general information about behavior management, autism, fathers of children with special needs, and sleep problems. Technical note - the graphics can take a while to download.

Beckwith-Wiedemann Support Network The BWSN is a non-profit organization created for parents, professionals, and others interested in the Beckwith-Wiedemann Syndrome. The major goals of the BWSN are (1) to provide information and peer support to the individuals and families affected by BWS, (2) to increase both public and professional awareness of BWS, and (3) to encourage research aimed at the cause, early detection (including prenatal), and treatment of BWS. This website provides information about the condition, and links to other websites of interest including a parents' forum.

Boundless Playgrounds Boundless Playgrounds is a non-profit organization that works with communities to facilitate the development of accessible playgrounds. The organization's goal is to give children with physical, sensory, and/or developmental disabilities a chance to experience the joy and fun of a playground. While Boundless Playgrounds is not a playground equipment manufacturer, the organization does provide a wide range of consultant services as well as fundraising ideas. This website provides more specific information about the services they provide, current projects, news, and information on how to get involved.

Breastfeeding a Baby with Down Syndrome Benefits of and tips that may help breastfeeding your baby with Down Syndrome

CF Awareness Foundation Based in New Jersey, this non-profit organization seeks to increase public awareness about cystic fibrosis. This website offers an overview of the organization and its events and sponsors and porvides links to several other websites about CF.

CPParent A national listserv mailing list for discussions of issues related to the parenting of children with cerebral palsy. This website has information about the listserv, a link to subscribe to receive messages, an archive of previous messages, and links to other resources.

Camp Discovery A summer camp for young people with serious dermatologic ( skin - related ) conditions. Sponsored by the American Academy of Dermatology

Candlelighters Childhood Cancer Foundation A national organization that provides support, education and advocacy for children and adolescents with cancer, survivors of childhood/adolescent cancer, their families and the professionals who care for them.

Car Safety Seats: A Guide for Families From the American Academy of Pediatrics. This online guide offers information about types of car safety seats and provides manufacturer's phone numbers and websites.

Carolina Hyperbarics Oxygen Therapy Oxygen plays an important role in healing broken bones, soft tissue injuries and wounds, and in reducing the risk of infection. Hyperbaric Oxygen Therapy is a proven, medical treatment that can benefit patients with a variety of conditions and help speed healing. The treatment encourages the body to build new capillaries and reduce inflammation from injury, surgery or chronic illness. All of the expert services are provided in a luxurious, private setting by certified, experienced medical staff, in the worlds largest, most advanced, single person acrylic hyperbaric chambers.

Carolinas Cystic Fibrosis Chapter The website of the North Carolina chapter of the Cystic Fibrosis Foundation. At this website, you can get chapter contact information, listings of local chapter events, and information for volunteers.

Caswell County Partnership for Children A non-profit organization led by local volunteers, designed to provide programs and services for families and children in Caswell County, North Carolina. This website includes informatin about the Partnership and its programs, including contact information, an events calendar, and more.

Cerebral Palsy Resource Center The Bissell family includes two sons who have cerebral palsy. Their family webpage provides general information related to CP, book lists, information on hippotherapy, links to related listservs (including one specifically for fathers of children with special needs) and other resources.

Cherab The Cherab Foundation is a nonprofit organization working to improve the communication skills and education of all children with speech and language delays and disorders, with an emphasis on verbal and oral apraxia. This website describes the organization, provides a link to their discussion list, and provides useful information and resources.

Children and Adults with Attention-Deficit/Hyperactivity Disorder A National non-profit organization representing people with AD/HD (attentin deficit/hyperactivity disorder) that works to improve their lives through education, advocacy, and support. The website contains fact sheets, news releases, local chapter contact numbers (there are 11 in NC), research/ clinical trials information, advocacy tips for special education, and related links.

Children with Disabilities Website This Web site is part of a joint effort by several Federal agencies to promote a national agenda for children and foster positive youth development. The site provides information of interest to children with disabilities, their families, and service providers on learning disabilities, debilitating conditions, and physical disabilities and includes information on advocacy, education, employment, health, recreation, training, and housing.

Children with Spina Bifida A reource page for children with spina bifida designed by a parent for parents

Children?s Brain Tumor Foundation This website provides information and resources to assist you in accessing expert care to ensure quality of life for a child who has a brain or spinal cord tumor.

Circle of Inclusion The Circle of Inclusion Web Site is for early childhood service providers and families of young children. This web site offers demonstrations of and information about the effective practices of inclusive educational programs for children from birth through age eight.

Coping with Chemo A collection of online animated stories, called "webisodes" designed for teenagers with cancer. These webisodes use colorful graphics, animation, and an engaging storyline to help teens: ? Learn to cope with having cancer and undergoing treatment. ? Talk more openly about their illness and treatment with friends, family and the health care team. ? Maintain a positive outlook throughout treatment. ? Feel less isolated. ? Better manage interactions with friends and peers. From the Starlight Starbright organization.

Coping with Stress During the Holidays This article by the American Psychiatric Association provides helpful tips to help families cope with the stress and busyness often associated with the holiday season.

D-B Link The National Information Clearinghouse On Children Who Are Deaf-Blind, is a federally funded information and referral service established to collect, develop and distribute information to help improve the education and lives of children and youth with vision and hearing impairments, ages birth to 21. On this website, you can find the DB-LINK Catalog database listing articles, books, and other materials, the DB-LINK Resource database listing agencies, organizations, and personnel, DB-LINK publications, bibliographies, and job opportunities for professionals in the field of deaf-blindness.

Deaflinx Deaf Linx is designed to be a one-stop shop for legal deaf cultural resources, American Sign Language (ASL) resources, deaf education, and deaf services. Health care, government assistance, real estate access, insurance, and travel also may create issues that uniquely affect deaf people and their families. There are many resources available here to help you find the information and programs that can greatly improve the deaf community, as well to help deaf individuals and their friends and family navigate all of the concerns that may arise in these areas. Whether you were born deaf, suffer from degenerative hearing, or are the parent or loved one of a deaf child, Deaf Linx has valuable information to help you find the information you are looking for.

Dogs for the Deaf, Inc. Rescuing unwanted dogs and professionally training them to serve, Dogs for the Deaf provides new freedom for the hard of hearing and a new level of opportunity and enjoyment.

Each of Us Remembers... Created by a group of parents and providers from United Cerebral Palsy of America, this printable 26 page booklet offers wonderful information by parents, for parents of young children recently diagnosed with cerebral palsy.

Early Childhood Music and Movement Association The Early Childhood Music & Movement Association is an organization of professional educators dedicated to uniting music and early childhood professionals for the benefit of children. This website describes the organization, lists its conference offerings, and provides links to relavant websites.

Easter Seals UCP North Carolina Easter Seals UCP North Carolina creates opportunities, promotes individual choice and changes the lives of children and adults with disabilities by maximizing their individual potential for living, learning and working in their communities. Services include individual and family support, children's therapy, advocacy, recreation, equipment, and support groups. This website includes descripitons of their services, news about their programs, job opportunities, and more.

Epilepsy Foundation A national, charitable organization dedicated to work for children and adults affected by seizures through research, education, advocacy and service. This website contains information about the organization, conferences, answers to common questions about seizures (including a section in Spanish), news, chat rooms, research information, and much more.

Equus Heals Located in the Sandhills Region of NC, this non-profit organization provides individualized sessions of therapeutic horseback riding (hippotherapy) and other modalities for children with special needs. Established in 2000. The program has been designed around the NARHA (North American Riding for the Handicapped Association)Standards and Guidelines for Accreditation. The website describes the programs, including therapeutic and educational opportunities, contact information, and links to similar organizations. (Editor's Note: We've found that the host for this website puts an ad onto each new webpage when it opens. Although this does not affect the quality of the website, it can get a little irritating for frequent visitors)

Exceptional Children's Assistance Center The ECAC is a federally funded, statewide education, advocacy, and training program for families with school aged children who have disabilities. Their website includes information about their various programs, a listing of upcoming workshops, materials available from their lending library, and related links.

Exceptional Parent Magazine The online version of a magazine devoted to parenting children with physical or mental handicaps. Good resources for equipment, mobility, etc.

F.I.R.S.T. (Families, Information, Resources, Support and Technology) F.I.R.S.T. is a nonprofit family driven organization dedicated to helping persons with disabilities to live included, productive lives as members of the community by supporting and educating families to be their child's best advocate and youth to be self-advocates. F.I.R.S.T. offers: Free parent training related to educational issues and rights under IDEA and section 504 Staff available to attend school meetings - including Spanish-speaking Advanced training for parents to become better advocates Training for educators and agency staff related to educational issues Resource materials related to specific abilities Website with 24 hour access to information and evening phone hours to help serve families

Families of Spinal Muscular Atrophy This non-profit organization of families of children with spinal muscular atrophy (SMA) focuses on supporting each other and raising funds for research designed to find a cure for this condition. This website has information about SMA, lists local chapters (including the NC chapter headquartered in Cary), provides updates on research activities, has a section of SMA-related links, and lists pen-pals for children with SMA.

Family Support Network of North Carolina This organization provides information about disabilities, services and agencies which serve families of children who have special needs. Their Central Directory of Resources is a computerized database housing over 15,000 files of information and materials that may be helpful to families of children who have or are at risk for developmental disabilities. Contains links about resources, organizations,special education, advocacy, and assistive technology. Be sure to look at their listings of local Parent to Parent Support Groups to find one near you. To contact them by phone, call 1-800-852-0042.

Family Support Network of Western North Carolina A parent-to-parent program for families of children with special needs who live in Western North Carolina. This website provides information about the organization, its many programs, links to disability related websites, fact sheets, and more.

Family Village A wonderful program for anyone with a disability, this website integrates information, resources, and communication opportunities on the internet for persons with disabilities, for their families, and for those that provide them services and support. Includes informational resources on specific diagnoses, communication connections, adaptive products and technology,adaptive recreational activities, education, worship, health issues, disability-related media and literature.

Family Voices Family Voices, a non-profit organization, acts as a national clearinghouse for information to improve the health care of children with special needs. This website includes information on policy issues, publications, state resources, and related links. Be sure to explore the "Advocate's Corner" when browsing this site and look into their information on ways to improve the transition to adulthood for children with special needs.

Fatherhood Initiative A program of the United States' Department of Health and Human Services. This website includes an incredible amount of information on fatherhood ranging from ways to improve opportunities for low-income fathers to a "Toolkit for Fatherhood."

Federation for Children with Special Needs Based in Massachusetts, The Federation provides technical assistance,information, and support services to help families of children with special needs. There is a focus on special education and this site is a great resource for advocacy tips, IEP's and general information about IDEA (the Individuals with Disability Education Act). The site also has a text-only version available through the homepage.

First Journeys First Journeys hosts a Parents Morning Out every Wednesday from 9:00 am until 12:00 pm and the first Saturday of every month from 9:30 until 12:30 pm. Children ages 12 months up to kindergarten age are invited to attend while parents get some well deserved respite! These events are inclusive, so all ability levels and siblings are welcome. Cost is $20/day for first child and $10/day for each additional child in the family. Please see the website for more information.

First in Families of North Carolina First In Families of North Carolina believes: people with disabilities and their families should have the right to make independent choices and decisions about their lives; service delivery systems should be customer focused, flexible and incorporate the principles of self-determination. All of the First in Families Projects in NC offer funding to directly support families with children with developmental disabilities or delays. (Click on the "Projects" button for contact information to request an application.) First In Families of North Carolina supports program concepts and policies framed by dignity, cultural sensitivity, informed choice and personal control of resources by individuals with developmental disabilities and their families. It provides leadership to guide innovations in the service delivery systems for individuals with disabilities and their families; and supports the development of cohesive policies through the state.

Focus Families Focus Families helps parents and caregivers with children who have Optic Nerve Hypoplasia (O.N.H.) and Septo-Optic Dysplasia, (S.O.D.), also known as deMorsier syndrome. The website provides information about the organization, an online glossary of terms, a calendar of events, parent support resources, and more.

Frequently Asked Questions About Brain Injury In Children And Adolescents A list of FAQs about brain injury in children and adolescents. Answers provided by Marilyn Lash, a social worker and co-chair of the Special Interest Group on Children and Adolescents for the Brain Injury Association of America.

Greater Raleigh Spina Bifida Support Group A new website (started in 2010) from a group of families and providers who care for children with spina bifida in the Triangle region of North Carolina. Here you can find more information about the organization and mission, a calendar about upcoming local events relevant to the group, a blog, photos and other information about group members.

Halloween Safety Tips Safety tips about pumpkin carving, costume wearing, trick or treating, and more, from the American Academy of Pediatrics.

Health Care Transitions: College and Beyond A 24-minute online video that tells the story of a young man with arthrgryposis and what it's taken for him to succesfully completes college and make the transition to adulthood. From the Institute for Child Health Policy in Florida.

Healthy and Ready to Work This is the website for a federally supported program that promotes a comprehensive system of family centered, culturally competent, community-based care for children with special health care needs may need assistance in making the transition from pediatric to adulty health care and to post-secondary education and/or employment. It provides information about the program, a calendar, related links and other materials.

Horsefeathers of NC Located in Clemmons, NC, this non-profit organization provides animal assisted therapy, (including hippotherapy-therapeutic horseback riding) for people with mental, emotional and physical disabilites. This website includes program and contact information, a calendar of events,and photos of recent outings.

Howell Centers, Inc. The homepage of Howell Centers, a private, non-profit corporation serving nearly 550 developmentally disabled children and adults in a variety of ICF/MR certified facilities and group homes across the State of North Carolina from the coast to Charlotte.

Insulin Pumpers An international family oriented organization that provides information and support for adults and children with diabetes and their families interested in insulin pump therapy. You'll find chat rooms, links, and even a special section devoted to children with diabetes and the stories about how an insulin pump has changed their lives.

Kaleidoscapes Homeschooling discussion forum.

Keeping Children with Special Needs Safe in the Home In 2010, Safe Kids USA partnered with MetLife Foundation to create an online video series designed to help parents and caregivers prevent unintentional injury to children with special health care (CSHCN) needs. The videos focus on a range of topics including fire and burn prevention, drowning, choking and fall prevention. Safety guidelines and step-by-step instructions are included to help parents and caregivers make safety improvements in the home.

KidSCope KidSCope is an early intervention program that provides specialized mental health services to young children with or at risk for developmental disabilities in Orange and Chatham counties. This website provides more information about this and other programs of The Chapel Hill Training-Outreach Project, Inc.

La Leche League International A resource to help families continue breastfeeding their children. Can search the site for "special situtations" and "disabilities" for more information, including materials in Spanish.

Lash and Associates A for-profit company located in North Carolina focusing on the neurological, psychological, communicative, psychosocial and educational impact of brain injuries among children, youth and young adults. This websites lists their informative publications directed towards families, survivors, health care professionals, rehabilitation specialists, educators and community staff caring for people with brain injury.

Lifestyle Accelerator The work of a dedicated North Carolina parent, this is a website for adults with and families of children who have spina bifida where you can view articles, instructional videos, participate in threaded discussion groups (community forum) and more.

Lifetime Connections Lifetime Connections is an innovative social change initiative offered by First in Families NC. Lifetime Connections helps families and individuals with disabilities plan for and invest in their future. The project offers future planning consultation, estate planning, housing options and other topics of interest. They also help families develop community support systems.

MUMS - Mothers United for Mutual Support MUMS is a national Parent-to-Parent organization for parents or care providers of a child with any disability, rare disorder, chromosomal abnormality or health condition. MUMS aims to provide support to parents in the form of a networking system that matches them with other parents whose children have the same or similar condition. Their database includes over 15,700 families from 48 countries, covering over 2700 disorders, very rare syndromes or undiagnosed conditions. Their newsletter allow families to share and speak out about issues affecting their lives. This website describes the origins and goals of this organization, provides information about various conditions, and includes a directory of hyperbaric oxygen therapy (HBOT) providers.

Magination Press Magination Press publishes children's books dealing with both normal psychological issues and the resolution of serious childhood problems. Most are written by PhD psychologists or other mental health professionals.Books are intended to not only delight, assist, or inform the child reader but also to be used as tools for parents and professionals. Subjects include, adoption, learning disabilities, medical issues, depression, disability, divorce, dying, schjool, self esteem and family matters.

Maple Syrup Urine Disease Family Support Group The MSUD Family Support Group is a nonprofit organization of parents of children with MSUD, adults with MSUD, health-care professionals and others interested in MSUD. This website contains information about the organization, information about MSUD, a list of contacts and much more

Mosaic Down Syndrome on the Web Run by Linda Beets, the mother of a daughter with mosaic down syndrome, this website offers information and support to families of children with this type of down syndrome.

My Baby's Hearing A website from Boys Town National Research Hospital in Omaha, Nebraska that is designed to answer parents' questions about: * Infant hearing screening and follow up testing. * Steps to take after diagnosis of hearing loss. * Hearing loss & hearing aids, language & speech. * Parenting issues. Funded by a grant from the National Institutes on Deafness and Other Communication Disorders.

NBIA Disorders Association A national non-profit organization based in El Cajon, California that offers families, physicians, and support providers information about an inherited disease called Neurodegeneration with Brain Iron Accumulation (NBIA). This website contains information about the organization, an FAQ section, a link to their Listserv, upcoming events, research updates, and more.

National Association for Down Syndrome Based in Chicago, Illinois, this non-profit organization provides support for families of people with Down Syndrome through conferences and family networking. This website describes the organization, offers a bimonthly newsletter, provides many links to other related websites and offers contact numbers for people living inside and outside the Chicago area. Note: Their products section includes posters and videos (including an exercise video for people with Down Syndrome).

National Association of the Deaf Founded in 1880, the National Association of the Deaf (NAD) is the oldest and largest organization representing people with disabilities in the United States. Programs and activities include grassroots advocacy and empowerment for people with hearing impairment, captioned media, certification of American Sign Language professionals; certification of sign language interpreters; deafness-related information and publications,legal assistance, policy development and research, public awareness, and youth leadership development.

National Campaign for Hearing Health This national program, sponsored by the Deafness Research Foundation, advocates for improved detection, prevention, intervention, and research into hearing impairment. This site provides great resources for parents of children with hearing loss as well as helpful information on how to become an advocate for the cause of hearing health.

National Deaf Education Network and Clearinghouse/Info To Go Info to Go, formerly the National Information Center on Deafness, is a centralized source of accurate, up-to-date, objective information on topics dealing with deafness and hearing loss in the age group of 0-21. Info to Go responds to a wide range of questions received from the general public, deaf and hard of hearing people, their families, and professionals who work with them. Info to Go collects, develops, and disseminates information on deafness, hearing loss, and services and programs related to children with hearing loss from birth to age 21.

National Down Syndrome Congress This national non-profit organization aims to be the national voice for state and local groups, individual members, persons with Down syndrome, and all other interested persons. It serves as a clearinghouse on Down syndrome by collecting, creating, and disseminating information via the functions of the National Down Syndrome Congress Center, the annual convention, and the Down Syndrome News.

National Fatherhood Initiative The National Fatherhood Initiative seeks to improve the lives of children by helping men to become better fathers. A non-profit organization, NFI enables fathers by distributing information, conducting public awareness campaigns, organizing community fatherhood forums, providing resource material, and publishing a quarterly newsletter. This website includes access to numerous on-line resources, advice on fatherhood, an on-line discussion forum for fathers, membership information, and links to related sites.

National Head Start Association The National Head Start Association (NHSA) is a private not-for profit membership organizaion that provides a national forum for the continued enhancement of Head Start services for poor children ages 0 through 5, and their families.

National Marfan Foundation Founded by people who have Marfan Syndrome and their families, the National Marfan Foundation gathers and distributes information to families, patients, members, and the health care community, provides a network of support, and helps to fund and encourage research on this condition. Upcoming events, news, a detailed description of Marfan Syndrome, and publications can all be found on this website.

National Resource Center for Special Needs Adoption A non-profit organization located in Detroit, Michigan. Its primary goal is to improve the quality of services provided to the families who have adopted a child with special needs. The services include technical assistance with policies on special needs adoption, mental health and child welfare.

National Sports Center for the Disabled Based in Winterpark, Colorado, the National Sports Center for the Disabled (NSCD), is an innovative non-profit organization that provides recreation for children and adults with disabilities. This website contains>>>>>>>>>>>>>>

Natural Access Natural Access markets an all-terrain wheelchair that can roll over sand, gravel, snow, and soft soil, allowing individuals access to beaches, trails, and parks.Free brochures as well as descriptions of the wheelchair are available on this website.

North American Growth In Cerebral Palsy Project The website for this international research project designed to examine the growth of children with cerebral palsy. This site provides information about the project, tips for parents and health care providers, ways for interested families to join the study, a kids page describing the project, links about cerebral palsy and feeding difficulties, even a couple of recipes that incorporate pediasure and ensure formulas! Based at the Kluge Children's Rehabilitation Center at the University of Virginia, Charlottesville.

North Carolina Foster and Adoptive Parents Association This statewide association aims to promote quality foster and adoptive services through collaborative advocacy, education, resources, and networking. At this website you can find information about the association, learn about foster parents' rights in NC, get information about upcoming conferences, and links to websites with information of interest to foster parents.

North Carolina Infant Toddler Program This website includes information on the NC Infant Toddler program housed in the Early Intervention Branch, Women's and Children's Health Section, Division of Public Health: the Preschool Disabilities Program, housed in the Department of Public Instruction: and the NC Interagency Coordinating Council, housed at the Division of Child Development. Links to related sites are include.

North Carolina Recreation Resource Guide This guide includes a listing of inclusive recreation facilities and opportunities in North Carolina for individuals with disabilities. Resources include community, state, and regional recreation resources as well as national adapted sports and recreation organizations.

Nutrition for Kids This site features books, teaching kits and other resources focusing on nutrition for Kids. Their book, How to Teach Nutrition to Kids, gives ideas that empower children to evaluate nutrition information, make smart food choices, and creatively prepare foods.Published by 24 Carrot Press, their mission is to provide books and materials that take a positive, fun approach to the more serious issues that affect children today, including obesity, eating disorders, poor eating habits and inactivity.

Our Kids Run by and for an international "family" of over 800 parents, caregivers and others who are working with children with physical and/or mental disabilities and delays. Covers multiple conditions including developmental delay, sensory integration problems, cerebral palsy,rare genetic disorders, and others. Professionals, organizations and therapists also monitor and contribute.

PICK - Parents of Infants and Children with Kernicterus The website for Parents of Infants and Children with Kernicterus (PICK), a parent-run non-profit organization dedicated to education and prevention of KI (kernicterus) as well as support and research for families affected by KI. On this website, you can learn more about kernicterus (it's causes, treatments, and outcomes), find family support resources, learn more about this organization, and more.

Palaestra This website describes the subscription magazine, Palaestra, a resource on adapted sports and physical activity. Palaestra's missions are to 1)enlighten parents in all aspects of physical activity to make them the best possible advocates for their children during IEP (Individual Education Plan) discussions with the school or community recreation staff and 2) increase the knowledge base of those professionals working with children or adults with disabilities.

Parent Advocacy Coalition for Educational Rights Located at the University of Minnesota, PACER's mission is to improve and expand opportunities that enhance the quality of life for children and young adults with all disabilities (physical, mental, emotional, learning) and their families. PACER now offers 20 major programs, including Parent Training programs, programs for students and schools, and technical assistance to regional and national parent centers. The website includes resources and publications on advocacy, special education, transition to adulthood, and emotional and behavioral disorders.

Parenting the Child with Disabilities Some things that parents of a child growing up disabled should avoid and some things that even good parents might not intuitively think to do for their child.

Parents Exchange An information, referral, and advocacy service for parents and caregivers of children with disabilities and professionals who work with families in Pennsylvania. Provides listing of conferences, bibliographies and reading lists, and disability specific links.

Partnerships for Children Child care resource and referral services for Wilson County.

Patient Travel (National Patient Air Transport Helpline) This non-profit organization helps patients find appropriate charitable medical air transportation resources in the United States. It also operates various Special-Lift and Child-Lift programs on behalf of special disease organizations and/or clinical research centers in the United States. Their goal is "..to ensure that no financially-needy patient is denied access to distant specialized medical evaluation, diagnosis or treatment for lack of a means of long-distance medical air transportation." The website describes the programs they offer and has their toll-free phone number parents and professionals can call to look into air travel options.

Playground Safety for Your Child with Special Needs Adapted from the National Program for Playground Safety, this handout from the Center for Children with Special Needs lists things to look for when considering how safe a playground is for a child with special needs.

Possibilities: A Financial Resource for Parents of Children with Disabilities This 227-page paper from the Pacer Center and the National Endowment for financial education covers everything you need to know to create a sense of order in your life and maintain control over your finances as you care for your child with special needs and prepare him or her for adulthood.

Prader Willi Syndrome Association The Prader Willi Syndrome Association provides to parents and professionals a national and international network of information, support services, and research endeavors for this genetically based developmental disability.The site lists information, links, research, conferences/events, and more. It's in Spanish as well.

Prancing Horse A non-profit organization providing therapeutic horseback riding programs to children and adults in Moore and surrounding counties.

Preemie-l Discussion Group A threaded discussion list for parents with children born six weeks or more before their due date. Sponsored by Children's Medical Ventures, Inc.

Project: Proud Families, Inc. The website of a Christian non-profit in Siler City, NC designed to offer services to families who have a child or children with a special need(s). At this site, you can find information about the organization, its support group(s), workshops, family support activities, an Ask the Nurse or Pharmacist section, and information about their "Button Challenge".

Right Under My Nose An online book that helps young children with spina bifida learn about and be comfortable with their bodies. With a fully interactive story, activities, tips, and a printable version of the whole book, this site is intended to be educational and fun.

Riverwood Therapeutic Riding Center Located in Tobaccoville, NC, this non-profit organization provides hippotherapy (therapeuitc horseback riding) to children and adults with cognitive, physical, and mental disabilities. They follow NARHA (North American Riding for the Handicapped Association) standards and guidelines and have certified instructors at the center. They operate 4 sessions yearly. This website contains program and contact information, a few links, and a calendar of events.

SNAP Playgroup SNAP (Special Needs Awareness Project) was created to help families with children (birth to 5 years old) regarding all aspects of Early Intervention in Wake County. We invite you to call (219.0852) for more information or resources. We also invite you to attend a free Friday morning playgroup to meet parents with children birth to 3 in the Early Intervention Network and gather information on area resources.

STARBRIGHT Foundation STARBRIGHT is a unique program that is dedicated to empowering seriously ill children to fight the social and emotional challenges that they face every day. STARBRIGHT educates and encourages children through numerous creative projects. One particular project, Videos With Attitude, provides seriously ill teens and pre-teens with a video series geared to help them cope and learn to advocate for themselves. In the videos, teen survivors of illness share tips and solutions for coping with the challenges of serious medical conditions. Videos are free to children with a serious illness and their families. Be sure to check out all the current projects when browsing this website.

Schiz Kidz Buddies This website offers information and support for people who have or care for someone with schizencephaly. Although the website writing is somewhat hard to read because of vertical lines down the page, you can get information about the condition, research trials and join a daily e-mail list.

Sibling Support Project A national program, the Sibling Support Project strives to increase the availiability of peer support and educational programs for the brothers and sisters of people with special health care needs and developmental disabilities. Information is geared to both younger brothers and sisters as well as adult siblings.

Spastic Paraplegia Foundation A national not for profit organization dedicated to support people with Hereditary Spastic Paraplegia and Primary Lateral Sclerosis. This website contains information about the organization, HSP and PLS, research updates, patient forums and more.

Special Needs Advocate for Parents Provides information, education, advocacy, and referrals to families with special needs children of all ages. Contains an online bulletin board and newsletter.

Special Olympics of North Carolina Special Olympics North Carolina provides year-round recreation in the form of sports training and athletic competition opportunities for more than 25,000 children and adults with mental retardation in nearly all 100 NC counties. This website lists SONC's programs, provides a calendar of upcoming events, highlights an "athlete of the week" ,offers information on ways to get involved, and more.

Spectrum Resources of NC This oganization provides resources, courses and support for people diagnosed with autism spectrum disoders and other developmental disabiliies.

Stuttering Foundation of America Based in Memphis, Tennessee, the Stuttering Foundation of America, the first nonprofit, charitable association in the world to concern itself with the prevention and improved treatment of stuttering, distributes over a million publications to the public and professionals each year. This web site has information for those who stutter and their families as well as professionals.

The Center for Univeral Design The Center for Universal Design, located on the campus of NC State University in Raleigh, is a national research, information, and technical assistance center that improves the accessibility of buildings by evaluating, developing, and promoting universal design in housing, public and commercial facilities, and related products. This website describes the concept of universal design and lists the Centers programs and resources.

The Cerebral Palsy Network Site based in Olympia WA, developed by parents of children with CP. Offers chat rooms for discussion of parent-centered CP related issues.

The Expressive Communication Help Organization The Expressive Communication Help Organization (ECHO) is a parent-friendly resources & support website for children with oral motor speech disorders. ECHO is a volunteer-run non-profit charity established by parents for parents/caregivers of late-talking children diagnosed with or suspected of having Apraxia of Speech, Dyspraxia, Dysarthria or Oral Motor Speech Disorders. The site offers resources, information, friendship and support to those whose lives are touched by a late-talking child.

The Fathers Network This website celebrates and supports fathers and families raising children with special health care needs and developmental disabilities. It contains news and resources, articles by dads, links, bulletin boards, and a photo album. Has materials in Spanish as well. Funded by the Office of Children with Special Health Care Needs, Washington State Department of Health.

The Flutie Foundation The Doug Flutie, Jr. Foundation provides funding for services for financially disadvantaged families who need assistance in caring for their autistic children, funds research and education into the causes and consequences of childhood autism, and serves as a clearinghouse and communications center for new and innovative programs and services developed for autistic children.

The Genetic Alliance An international coalition based in Washington, DC that supports individuals with genetic conditions and their families, educates the public and advocates for consumer-informed public policies. This website provides information about the organization, a calendar of events, a useful online directory of genetic resources, including support groups for a wide variety of conditions, and much more.

The Lucy Daniels Center New to the WATCH Project in March of 2007, The Lucy Daniels Center for Early Childhood is a private, non-profit program devoted to promoting the healthy emotional development of young children. The program includes a vibrant blend of a school, a children's mental health facility, and a training site for parents and professionals.

The Magic Foundation MAGIC is a national non-profit 501(c)(3) organization providing support and education regarding growth disorders in children and related adult disorders, including adult GHD. This website has been updated for 2000 to include their quarterly newsletter, and a place to register for their listserv.

The Oley Foundations The Oley Foundation is a national, non-profit organization that provides information and support to adults and children recieiving home parenteral nutrition and their caregivers. Educational materials (also available in Spanish) along with an "information clearinghouse" are available.

Triangle Down Syndrome Network This organization exists to support and connect families of children with Down syndrome by organizing and promoting activities such as monthly support meetings, parent socials, playgroups, Mom's Night Out, holiday parties, and more. Their website provides information about the organization, a calendar of events, a newsletter, links to resources, and more.

Triangle Mothers of Twins and Triplets This website for parents of multiples describes the group's programs including monthly meetings, newsletters, buddy program, clothing and equipment sale and much more.

UNC Hospital School UNC Hospitals is host to the state?s only accredited Pre-Kindergarten through 12th Grade (PK-12) Hospital School. The school helps children keep up with their classroom studies during their hospital stay and works with the local schools to provide a smooth transition back to school. There are two separate locations for the school within the UNC Hospitals complex. The pediatric component of the school is located on the seventh floor of the Children?s Hospital, and the psychiatric component is located on the second floor of the Neurosciences Hospital. At both locations, there are classrooms, offices and a media center or computer lab. Although there are classrooms and physical space designated as ?school? where students ?go to school?, school often goes to them. When needed, teachers work with students at bedside or on the patient?s units where they are being treated. To learn more about the Hospital School, click here: http://chccs.k12.nc.us/hospital

United Ostomy Association, Inc. The United Ostomy Association is a volunteer-based health organization dedicated to providing education, information, support and advocacy for people with intestinal (ex/colostomy) or urinary (ex/vesicostomy)diversions. This website provides information about ostomies, conferences, books, local chapters, and more.

United States Cerebral Palsy Athletic Association The UCPAA provides both individualized sports training and competitive opportunities for atheletes with cerebral palsy, or other related challenges, such as traumatic brain injuries or strokes. This website includes a list of upcoming events at the national level, information about the 2000 Paralympics in Australia, and links to relevent resources.

Virtual Pediatric Hospital Home Page The goal of the Virtual Pediatric Hospital digital library is to make the Internet a useful medical reference and health promotion tool for health care providers, patients, and families. Based at the Children's Hospital of Iowa, this site contains a digital library that delivers Continuing Education (CE) to health care providers, a wealth of information for families, and a kids' page of resources.

Volunteer Families for Children of North Carolina The mission of this non-profit organization is to provide North Carolina's children in need with safe, short-term care through a network of licensed, volunteer host families. VFC works with families to provide emergency or planned respite care for children in times of crisis or stress. This webpage offers a summary about the organization and contact information.

Wake Count Local Interagency Coordinating Council The Wake County LICC is a collaborative partnership among: ? parents, ? caregivers, ? public agencies, ? private and non-profit organizations, ? interested community members or organizations, to promote a coordinated and effective Early Intervention (EI) system in Wake County. This website provides an overview of the Wake LICC goal areas, showcases resources for families,and ofers a listing of Wake LICC Member agencies. Parents can download a copy of the Wake County Early Intervention Road Map, a short guide to help parents navigate the Early Intervention system. The guidebook provides information on early intervention services, an early intervention timeline, support groups, and much more. It's also available in Spanish.

Wake County Special Education PTA (SEPTA) The Wake County Special Education PTA is a new, unique county-wide PTA designed to focus on children receiving special educations services in Wake County Public Schools. A group of parents and teachers chartered SEPTA in February 2005, elected officers and opened the organization to new members. Since then, 161 people have joined. SEPTA connects parents and teachers as well as with professionals and other organizations that provide support, training and resources. To learn more or to join call (919) 788-2599. Annual dues are $5.00.

We Can Play An online manual of 20 activity ideas that can be used by children of all abilities. Also available in handout form and in Spanish. From the Alliance for Technology Access.

We've Gotcha Covered The webpage for a start-up company providing babysitters and mother?s helpers for families living in North Raleigh, NC that specializes in watching kids with disabilities.

Wheelchair Accessible Hikes This site was started in 2008 to share information about wheelchair accessible hiking trails with others who enjoy getting outside! After visiting Sand Harbor State Park on Lake Tahoe, I decided to start this site. The boardwalk trail running through the coves was so beautiful; I wanted to share it with others. So that's how this all began! Personally, I consider a trail accessible if it's wide enough to allow passage for a wheelchair, has a hard surface like pavement or compacted dirt which is mostly free of ruts and bumps, the elevation change is limited or gradual and has interesting scenery, which can be natural or urban. The hikes listed here may not be appropriate or safe for all hikers. Each hiker must determine for himself if the hike is appropriate for him or herself. Thank you to the hikers from around the world who have contributed trail information! Keep the contributions coming so we can all explore new trails.

Wintergreen Adaptive Skiing WAS is a non-profit, 501(c)3 corporation whose mission is to teach the joys of alpine skiing to individuals with a disability. Set in the beautiful Blue Ridge Mountains of Virginia, WAS offers fun, exhilaration and the chance to enjoy the outdoors with family and friends to people of all ages and with every imaginable disability.

Yoga for the Special Child This site supports the book and training programs of Sonia Somar, a woman who has developed a yoga program for children with special needs.

Your Baby and Down Syndrome A 2-page brochure (2005) from the National Down Syndrome Society. Developed by parents of children with Down Syndrome working along with medical experts, this brochure is designed to help parents learn more about Down Syndrome and helpful community resources.

http://www.audiciondelbebe.org/portada.asp Spanish Version of a website from Boys Town National Research Hospital in Omaha, Nebraska that is designed to answer parents' questions about: * Infant hearing screening and follow up testing. * Steps to take after diagnosis of hearing loss. * Hearing loss & hearing aids, language & speech. * Parenting issues. Funded by a grant from the National Institutes on Deafness and Other Communication Disorders.