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This area provides a comprehensive list of sites that we feel are of interest to the TelAbility community. Use the search interface above to search by keyword or category for sites related to your area of interest. We are constantly reviewing and adding new links so please check back often.

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21st Century Eloquence: Voice Recognition Information
has an informational page that has a voice recognition forum, FAQ, a glossary of terms and the latest news and developments in voice recognition technology.
A Guide to Medical Information and Support on the Internet
This guide provides you with the knowledge and resources for utilizing the internet to access general medical information and support groups. Written and maintained by Judy Bakstran, this site offers information on how to access and use medical chats, doctors online, listservs, newsgroups, medline, and more.
AAP's Section on Computers and Other Technologies (SCOT)
This is the home page of the Section on Computers and Other Technologies (SCOT) of the American Academy of Pediatrics. This site contains information on Section activities, including educational programs, an on-line newsletter, and additional projects from the Executive Committee and membership.
ADA National Access for Public Schools Project
A project funded by the National Institute on Disability and Rehabilitation Research of the US Department of Education to help public elementary and secondary schools implement the Americans with Disabilities Act. This website contains information about: Technical assistance to school administrators, teachers, students, parents and the public Training programs Question and answer sheets and other resources A listserv on ADA and public school issues
ADD/ADHD Online Support Group
Our objective is to promote awareness to AD/HD (Attention Deficit/Hyperactivity Disorder) and to provide information and as much free practical help as we can to those with the condition, both adults and children, their families in the UK and around the World via this website.
AIM for the Handicapped (Adventures in Movement for the Handicapped)
The American Camping Association is a community of camp professionals and is dedicated to enriching the lives of children and adults through the camp experience. The Association accredits over 2,000 camps. ACA-accredited camps meet up to 300 standards for health, safety, and program quality. By choosing an ACA-accredited camp, you can be assured that many important questions have been asked and appropriately answered.
ARC of North Carolina
The ARC of NC advocates for improved quality of life for all individuals with mental retardation and other developmental disabilities in our state. This site offers an array of supports and services to individuals and families across North Carolina. There's an online discusion board and answer sheets, a link to the NC General Assembly website, and even a catalog of clothing with the ARC of NC insignia.
ARCH National Resource Center for Respite and Crisis Care Services
Based in Chapel Hill, ARCH gives families and caregivers comprehensive information related to respite care. In addition to providing related-links and general fact sheets, the website includes a National Respite Locator Sevice to help families find respite care in their area quickly and easily.
AVENUES
A national support group for arthrogryposis multiplex congenita. This website includes general information about the condition (also in Spanish), directory listings of clinics, providers, and support groups.
Abbott Laboratories Nutritional Products
With well-known products like Similac, Isomil, Pedialyte and Ensure, our nutritionals are some of the most trusted products in the world. What many people don't know, however, is that these are just a few of the brands available from Abbott's Ross productsss.
Abilitations
Products focus on movement,positioning, sensorimotor, exercise, aquatics and play.
Able Generation
Able Generation designs products specifically for children with special needs, with a focus on children in the preschool age range (1-5, depending on size) with mild to moderate involvement. This website includes descriptions of each product, a price list, and order forms.
Accessible Vans of America
AVA rents and sells both full-size and lowered floor minivans, through a national owner-operated dealer network. Whether you need a van for business, vacation, a replacement vehicle, or to evaluate before purchasing, AVA can serve you.
Adapted Physical Education at PE Central
In this section of PE Central we share information that should be helpful to those who are responsible for educating students with various disabilities. PE Central provides the latest information about contemporary developmentally appropriate physical education programs for children and youth.
Adolescent Health Transition Project
The Adolescent Health Transition Project is designed to help smooth the transition from pediatric to adult health care for adolescents with special health care needs. This site is a resource for information, materials, and links to other people with an interest in health transition issues. This program is housed at the Center on Human Development and Disability (CHDD),at the University of Washington, Seattle.
AirLifeLine
AirLifeLine is a national non-profit charitable organization of over 1,000 private pilots who fly ambulatory patients who cannot afford the cost of travel to medical facilities for diagnosis and treatment. Our pilots donate their time, aircraft and fuel to make this air transportation service totally free of charge for patients who qualify.
Alexander Graham Bell Association for the Deaf and Hard of Hearing
An international membership organization comprised of parents of children who are deaf and hard of hearing, adults with hearing loss, and professionals who serve children with hearing loss. This website offers information about the organization and its events, publications, periodicals, resources, and information about captioned movie loan programs.
American Academy of Audiology
The American Academy of Audiology (AAA) helps members achieve career objectives, provides quality hearing care to the public, encourages professional development through education and research, and increases public awareness of hearing disorders and audiologic services. In addition to including information for professionals, this site also provides resources for consumers and students. Consumers can find an audiologist in their area, join email discussion lists, receive a newsletter, and obtain information about audiogram reading, hearing aids, hearing loss, and deafness.
American Academy of Child and Adolescent Psychiatry
This site is designed to serve both AACAP Members, and Parents and Families. Information is provided as a public service to aid in the understanding and treatment of the developmental, behavioral, and mental disorders. You will find information on child and adolescent psychiatry, fact sheets for parents and caregivers, AACAP membership, current research, practice guidelines, managed care information, awards and fellowship descriptions, meeting information, and much more.
American Academy of Family Physicians
The American Academy of Family Physicians (AAFP) is a national, non-profit medical association of more than 89,000 members (family physicians, family practice residents, and medical students). The AAFP was founded in 1947 to promote and maintain high quality standards for family doctors who are providing continuing comprehensive health care to the public. This website contains information about the organization and its policies. The Search the Website function can help you find more information about a specific condition.
American Academy of Pediatric Dentistry
The American Academy of Pediatric Dentistry is dedicated to improving and maintaining the oral health of infants, children, adolescents, and persons with special health care needs.
American Academy of Pediatrics Immunization Schedule
Provides a chart of the current immunization recommendations from the American Academy of Pediatrics, videos about immunizations, a personalized childhood immunization scheduler and more.
American Academy of Physical Medicine & Rehabilitation
This site offers news about the medical specialty of physical medicine and rehabilitation. It provides information about state and federal legislation, and AAPM&R programs and events; For doctors, it offers educational activities that you can complete for CME credit, marketing tools, and practice guidelines. For consumers, it offers a definition of the specialty and its areas of expertise and allows you to find a board certified physician in your local community.
American Cleft Palate-Craniofacial Association/Cleft Palate Foundation
This informative website is home to both the American Cleft Palate-Craniofacial Association (ACPA) and the Cleft Palate Foundation (CPF). ACPA is an international non-profit association of professionals who are involved in the treatment and/or research of cleft lip, cleft palate, and other craniofacial anomalies. Also a non-profit organization, CPF provides information to the parents of newborns with clefts or other craniofacial birth defects. Be sure to look for the free on-line publications available on this site.
American Music Therapy Association
The American Music Therapy Association (AMTA) is a national non-profit organization whose goal is to advance public awareness of the benefits of music therapy and increase access to quality music therapy services. This website describes the organization, provides information about careers in music therapy,available products and services, and upcoming events.
American Occupational Therapy Association
The American Occupational Therapy Association (AOTA) is the nationally recognized professional association for over 60,000 occupational therapists and occupational therapy assistants. The mission of the association is to support a professional community of members and to develop and preserve the viability and relevance of the profession.
American Occupational Therapy Foundation
This charitable, non-profit organization promotes research and excellence in education about occupational therapy. Scholarship information for OT students, current research, news and events, and an on-line version of the Occupational Therapy Journal of Research are all available on this website.
American Physical Therapy Association
Representing more than 70,000 physical therapists, physical therapist assistants, and students of physical therapy, the American Physical Therapy Association's mission is to advance the profession through practice, research, and education; effect beneficial legislation at state and federal levels; improve insurance reimbursement; and enhance the image of physical therapy.
American Physical Therapy Association Section on Pediatrics
This website offers news, resources about government affairs, product information, meeting announcements, research assistance, and more to pediatric physical therapists across the country.
American Sign Language Teachers Association
The American Sign Language Teachers Association (ASLTA) promotes the exchange of information and ideas among teachers of the deaf and hard of hearing across the nation. In addition to newsletters and conference information, this website also offers guidelines for hiring an ASL teacher. Membership information, a code of ethics, and job announcements can be found here as well.
American Society for Deaf Children
A nonprofit organization, the American Society for Deaf Children (ASDC) provides support, encouragement, and information to families raising children who are deaf or hard of hearing. The ASDC website includes legislative information, convention dates and descriptions, membership information, current news, and related links.
American Speech-Language-Hearing Association
Geared towards speech language pathologists and audiologists, this website provides legislative updates, advocacy tips, continuing education opportunities, job announcements, bibliographies, research updates, graduate school information, and much more. Also has updated information on newborn hearing screenings.
Apple Disability Resources
Computer technology resources for individuals with special needs.
Assistance Dogs International, Inc.
A non-profit organization to promote standards of excellence in al areas of assistance dog programs, facilitate communication and learning among member organizations, and educate the public to the benefits of these programs. This website provides a listing of member programs, information about various types of assistance dogs, related links, and more.
Association for Spina Bifida and Hydrocephalus
The United Kingdom's Spina Bifida Association. Through a network of professional Advisers backed up by specialists in mobility, continence management, education and medical matters, ASBAH provides advice and practical support to people with these conditions, and their families.
Association of Academic Physiatrists (AAP)
The Association of Academic Physiatrists (AAP) serves as the national organization of physiatrists who are affiliated with medical schools. The AAP is a member organization of the Association of American Medical Colleges (AAMC). It promotes the advancement of teaching and research in Physical Medicine and Rehabilitation within academic environments. The organization acts as a sounding board and forum for the exchange of ideas and information relative to all phases of the art and science of Physical Medicine and Rehabilitation.
Association of Children's Prosthetic Orthotic Clinics
This organization is made up of professionals who are involved in clinics which provide prosthetic-orthotic care for children with congenital limb deficiency, amputees, or orthopaedic disabilities. It supports clinic teams through education, clinical research, and annual meetings. The website describes the organization, has a national clinic directory, provides a quarterly newsletter, and lists upcoming events.
Asthma and Allergy Foundation of America
Home of the Asthma and Allergy Foundation of America. This site provides educational materials, news articles, an ask the allergist section, and more.
Attention Deficit /Hyperactivity Disorder Information
From the National Institute of Mental Health. This website offers general information about AD/HD and lists other sources of information and support from the NIMH.
Augmentative Communication Inc.
Publishers of Augmentative Communication News and Alternatively Speaking. Offers online articles and presentations concerning Augmentative and Alternative Communication.
Autism Information from the National Institutes of Health
This site, from the National Institute of Child Health and Human Development, provides infomratoin about autism research, government funding, conferences, and fact sheets, about autism, immunizations, and rett syndrome.
Autism Resources
List of links to local protection and advocacy organizations, social groups, educational resources, developmental disability planning councils, vocational rehabilitation centers, state insurance departments and organizations that provide parent training. Also included are links to national organizations and resources. Some information available in Spanish.
Autism Society of America
ASA is dedicated to increasing public awareness about autism and the day-to-day issues faced by individuals with autism, their families and the professionals with whom they interact. The Society and its chapters share a common mission of providing information and education, supporting research and advocating for programs and services for the autism population. This website includes an overview of the not-for-profit organization,links to local chapters (3 NC links), publications, and policy statements.
Autism Society of North Carolina
The North Carolina chapter of the Autism Society of America. This website provides information on local resources, special events, summer camps, and an online bookstore
Band-aides and Blackboards
Goal is to help people understand what it's like to grow up with medical problems, from the perspective of the children and teens who are doing just that. Areas for parents, teens, and children.
Bard Interventional Products
Through years of clinical experience and working with leaders in the field of gastrostomy feeding, Bard has developed products designed to meet the specific requirements and unique challenges of both adult and pediatric gastrostomy patients.
Beach Ability
Beach Ability enables people with disabilities to better access the beach and participate in a variety of coastal recreation activities with the aid of adaptive equipment. A great resource for recreational equipment for teenagers and young adults making the transition to adulthood.
Beach Center on Families and Disabilities
The Beach Center, located at the University of Kansas, is funded through a grant from the US Department of Education. This website contains research briefs, Beach Center Newsletters, fact sheets on behavioral management, products, and links to support organizations. Good general information about behavior management, autism, fathers of children with special needs, and sleep problems. Technical note - the graphics can take a while to download.
Boundless Playgrounds
Boundless Playgrounds is a non-profit organization that works with communities to facilitate the development of accessible playgrounds. The organization's goal is to give children with physical, sensory, and/or developmental disabilities a chance to experience the joy and fun of a playground. While Boundless Playgrounds is not a playground equipment manufacturer, the organization does provide a wide range of consultant services as well as fundraising ideas. This website provides more specific information about the services they provide, current projects, news, and information on how to get involved.
Brachial Plexus Injury Information
From the National Institute of Neurological Disorders and Stroke.
Brain Injury Association of America
Home page of the Brain Injury Association of America. This site includes good general information about brain injury, national and statewide resource directories, news and updates, and advocacy information.
Brain Injury Association of North Carolina
The website of the Brain Injury Association of NC. This site includes an overview of the organization, links to information about brain injury, a listing of association events, a chat room and a bulletin board service.
Breastfeeding Babies with Special Needs
A primer on breastfeeding children with Down Syndrome, cleft palate and Pierre Robin syndrome, from BabyCenter.com
Breastfeeding a Baby with Down Syndrome
Benefits of and tips that may help breastfeeding your baby with Down Syndrome
CHADD
A National non-profit organization representing people with AD/HD (attentin deficit/hyperactivity disorder) that works to improve their lives through education, advocacy, and support. The website contains fact sheets, news releases, local chapter contact numbers (there are 11 in NC), research/ clinical trials information, advocacy tips for special education, and related links.
Camp Discovery
A summer camp for young people with serious dermatologic ( skin - related ) conditions. Sponsored by the American Academy of Dermatology
CanChild Centre for Childhood Disability Research
CanChild is comprised of a multi-disciplinary team based at McMaster University in Canada who are working in the field of childhood disability. The aims of this research centre are to take a leadership role in identifying emerging issues for research, practice, policy and education. To conduct high-quality research effectively transfer knowledge into practice at clinical and health system levels. And provide education for consumers, service providers, policy makers and students. This website contains online publications, research discussion forum, and links. For a good review on hyperbaric oxygen, go to the "Keeping Currents" section, located in their "Publications and Products".
Canine Assistants
A non-profit organization, Canine Assistants trains and provides service dogs for children and adults with physical disabilities or other special needs. Individuals interested in obtaining a service dog can obtain an application on-line. Be aware, however, that there is a waitlist.
Center for Accessible Technology
Center for Accessible Technology has articles about the latest developments in voice input technology of specific interest to users with disabilities.
CenterWatch Clinical Trials Listing Service
Provides a wealth of information related to clinical trials, such as a listing of more than 41,000 industry- and government-sponsored clinical trials as well as new drug therapies recently approved by the FDA.
Centers for Disease Control and Prevention
An agency of the national Department of Health and Human Services, the Centers for Disease Control and Prevention (CDC)promotes health and quality of life by preventing and controlling disease, injury, and disability. In addition to general facts about the CDC, this website includes current health news, funding information, data and statistics, health topics, other sites, and on-line publications. Anyone planning to travel outside of the U.S. should be sure to check out the information for travelers. Also has information in Spanish.
Cerebral Palsy Info Central
The goal of CPIC is to educate people about cerebral palsy, to provide a central place on the Internet for people to find information about cerebral palsy, and provide support to those who have cerebral palsy and their families and healthcare providers.
Cerebral Palsy Resource Center
The Bissell family includes two sons who have cerebral palsy. Their family webpage provides general information related to CP, book lists, information on hippotherapy, links to related listservs (including one specifically for fathers of children with special needs) and other resources.
Certified Child Safety Seat / Child Restraint Technician Contact Locator
A state by state list of certified child restraint technicians who can make sure that your child's car seat is properly installed and is up to current safety standards. Sponsored by the National Highway Traffic Safety Association.
Child Nutrition Web Page
Web page for the US Department of Agriculture'sChild and Adult Care Food Program (CACFP). Through this program, children in child care settings have access to healthy meals and snacks. Day care centers and home day care providers can participate in the programs.
Children with Disabilities Website
This Web site is part of a joint effort by several Federal agencies to promote a national agenda for children and foster positive youth development. The site provides information of interest to children with disabilities, their families, and service providers on learning disabilities, debilitating conditions, and physical disabilities and includes information on advocacy, education, employment, health, recreation, training, and housing.
Children's Defense Fund
CDF provides a strong, effective voice for all the children of America who cannot vote, lobby, or speak for themselves. We pay particular attention to the needs of poor and minority children and those with disabilities. CDF educates the nation about the needs of children and encourages preventive investment before they get sick or into trouble, drop out of school, or suffer family breakdown.
Circle of Inclusion
The Circle of Inclusion Web Site is for early childhood service providers and families of young children. This web site offers demonstrations of and information about the effective practices of inclusive educational programs for children from birth through age eight.
Cleveland Clinic Foundation Children's Hospital for Rehabilitation- Games
Computer games for children including, checkers, tic tac toe, save kid city, and flip the chips.
Clinical Center for Development and Learning
A multidisciplinary research, technical assistance, and leadership training center dedicated to improving the lives of individuals with developmental disabilities. A component of the University of North Carolina School of Medicine, this nationally renowned center provides exceptional programs for people with developmental disabilities and their care providers. This website provides an overview of the center, descriptions of its programs, biographies of its faculty and staff, links to relevant websites, and other information
Closing the Gap - Computer Technology in Special Education and Rehabilitation
A Minnesota-based organization that focuses on computer technology for people with special needs. Offers a bi-monthly newspaper, annual international conference and web site (with advertising). Published six times a year, the Closing The Gap newspaper highlights hardware and software products appropriate for people with special needs, and explains how this technology is being implemented in education, rehabilitation, and vocational settings around the world.
College Transition and Access
Located at the University of Washington, this organization helps people with disabilities successfully pursue academics and careers such as science, engineering, mathematics, and technology. Students with disabilities can maximize their independence. The website contains publications which address issues surrounding transition from high school to college and beyond for people with disabilities. The website contains information about DO-IT (Disabilities, Opportunities, Internetworking, and Technology), which helps high school and college students with disabilities explore careers and gain prerequisite knowledge to studies and employment.
Columbia Medical Mfg.
Offers basic positioning, bathroom, and other supports for physically disabled children and adults.
Communication Aid Manufacturer's Association
The Communication Aid Manufacturers Association (CAMA) is a not-for-profit organization of the world's leading manufacturers of augmentative and alternative communication (AAC) software and hardware products. This website provides information about the companies who make up this organization, and lists the more than thirty 1-day workshops offered throughout the United States each year.
Consortium of Developmental Disabilities Councils
CDDC is a member-driven organization that is committed to representing the diverse interests of Developmental Disabilities Councils and the people with disabilities that Councils were created to serve.
Consumer Products Safety Commission
Consumer Products Safety Commission, an independent Federal regulatory agency, helps keep American families safe by reducing the risk of injury or death from consumer products. Visit us often to share lifesaving information. Go to "Report unsafe products" to send us information on-line.
Council for Exceptional Children
An international professional organization dedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities, and/or the gifted. Sets professional standards, provides continual professional development, and helps professionals obtain conditions and resources necessary for effective practice. The website is a great resource for school related issues. Includes the federally funded Educational Resources Information Center on Disabilities and Gifted Education.
Cystic Fibrosis Foundation
This non-profit organization encourages the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease. Founded in 1955, the CFF works closely with medical professionals, reserchers, the government, people with CF, and families. This website includes an on-line pharmacy, fact sheets, additional resources, locations of CF centers across the country, and information on clinical trials. The CFF also offers free brochures and videos that can be ordered online.
D-B Link
The National Information Clearinghouse On Children Who Are Deaf-Blind, is a federally funded information and referral service established to collect, develop and distribute information to help improve the education and lives of children and youth with vision and hearing impairments, ages birth to 21. On this website, you can find the DB-LINK Catalog database listing articles, books, and other materials, the DB-LINK Resource database listing agencies, organizations, and personnel, DB-LINK publications, bibliographies, and job opportunities for professionals in the field of deaf-blindness.
Deafness Research Foundation
The Deafness Research Foundation participates in the hunt for causes, treatments, and prevention of deafness and hearing impairments. A non-profit organization, DRF dedicates most of its website to information on current research grants, but you can also find a bookstore, on-line access to publications, and related links on this site.
Developmental Disablities Training Institute
Based at the University of North Carolina in Chapel Hill, the DDTI helps people with develomental disabilities transition through each stage of their lives by informing professionals about best practices and training them to provide better care for their clients.
Disability Link Barn
A compilation of over 1700 unreviewed links of varying quality provided by Access Unlimited, a company specializing in accessible vehicles.
Disability World
The web-zine of the International Disability Exchanges and Studies (IDEAS) Project 2000-2004, supported by the U.S. Department of Education National Institute on Disability and Rehabilitation.
Disabled Children's Relief Fund
Non-profit organization that provides disabled children with assistive devices, rehabilitative services, and support for arts and humanities projects. DCRF provides disabled children with equipment, prostheses, and rehabilitative services throughout the United States. DCRF focuses special attention on helping children that do not have adequate health insurance, especially the physically challenged. In some cases, DCRF may be the last resort.
Disabled Sports USA
DS/USA offers nationwide sports rehabilitation programs to anyone with a permanent physical disability. Activities include winter skiing, water sports, summer and winter competitions, fitness and special sports events. Participants include those with visual impairments, amputations, spinal cord injury, dwarfism, multiple sclerosis, head injury, cerebral palsy, and other neuromuscular and orthopedic conditions.
Division of Vocational Rehabilitation
The Division of Vocational Rehabilitation offers services to persons who have mental and/or physical disabilities whcih prevent them from getting and keeping a job. Finding and maintaining employment serves as the overall goal of a VR consumer. During the process of obtaining a job, VR can provide numerous services including assistive technology, transportation, rehabilitation technology, vocational assessment, supported employment, job coaching, on-the-job training, and much more. Be sure to check out the "VR Services to Consumer" link on this website. This link takes a consumer through the entire VR process and what he/she can expect at each step.
Division on Career Development and Transition
DCDT is a part of the department of special education associated with the University of Illinois Urbana-Champaign which focuses on the career development of children, youth and adults of all ages and exceptionalities. DCDT also focuses on transition from school to adult life as a major component of the career development process. The website contains information on undergraduate and graduate programs, resaearch opportunities and student affiliate organizations.
Down Syndrome: Health Issues
Web site featuring essays authored by pediatrician on various aspects of Down Syndrome. Articles address causes, diagnosis, and health guidelines related to Down Syndrome.
Early Childhood LINK
Based within the Clinical Center for the Study of Development and Learning at UNC-Chapel Hill, the Early Childhood LINK program provides training and technical assistance to improve the ability of local providers to offer transdisciplinary early intervention services to young children with autism, hearing impairment, visual impairment/blindness and/or mental health challenges. While currently concentrating its training activities and services in Brunswick, Columbus, Duplin, New Hanover, and Pender counties, the LINK website offers information and resources about these low incidence disabilities to people across the state and beyond.
Early Childhood Music and Movement Association
The Early Childhood Music & Movement Association is an organization of professional educators dedicated to uniting music and early childhood professionals for the benefit of children. This website describes the organization, lists its conference offerings, and provides links to relavant websites.
Easter Seals UCP North Carolina
Easter Seals UCP North Carolina creates opportunities, promotes individual choice and changes the lives of children and adults with disabilities by maximizing their individual potential for living, learning and working in their communities. Services include individual and family support, children's therapy, advocacy, recreation, equipment, and support groups. This website includes descripitons of their services, news about their programs, job opportunities, and more.
Ehlers-Danlos National Foundation
Based in Los Angeles, California, this national non-profit organization provides support and information to those with Ehlers-Danlos Syndrome through a quarterly newsletter, support groups, and published articles listed on the website. The website also has links to similar disorders and features a kid's corner to provide information to children in an easy to read manner.
Emergency Medical Services for Children
A national initiative designed to reduce child and youth disability and death due to severe illness or injury. This orgnization works to ensure that state-of-the-art emergency medical care is available for all ill or injured children and adolescents and that they have access to the entire spectrum of emergency services, including primary prevention of illness and injury, acute care, and rehabilitation. Make sure you check out their section entitled "Rehabilitation and Children with Special Needs". It has an emergency medical form for children with special health care needs that can be downloaded using adobe acrobat (you can get this tool from the TelAbility Tools section).
Emergency Preparedness for Children with Special Health Care Needs
This website describes the American Academy of Pediatrics' joint effort with the American College of Emergency Physicians to improve the quality of emergency care provided to children with special needs. The site also includes links to a specialized form that can be printed out and filled out by hand or can be completed on the computer in Microsoft Word that will provide important information about the child to help their health care providers better care for them in case of an emergency.
Employment Assistance Referral Network
This program , sponsored by the US Department of Labor's Office of Disability Employment Policy, is designed to assist employers in locating and recruiting qualified workers with disabilites. A good way to help young adults with disabilities make the transition to work.
Enabling Devices-Toys for Special Children
Enabling Devices, a division of Toys for Special Children, Inc., is a New York based company dedicated to developing affordable play, learning, and assistive devices to help people with disabling conditions. This site allows you to learn about and purchase their many toys and assistive technology products.
Equus Heals
Located in the Sandhills Region of NC, this non-profit organization provides individualized sessions of therapeutic horseback riding (hippotherapy) and other modalities for children with special needs. Established in 2000. The program has been designed around the NARHA (North American Riding for the Handicapped Association)Standards and Guidelines for Accreditation. The website describes the programs, including therapeutic and educational opportunities, contact information, and links to similar organizations. (Editor's Note: We've found that the host for this website puts an ad onto each new webpage when it opens. Although this does not affect the quality of the website, it can get a little irritating for frequent visitors)
Evaluating Managed Care Plans for Children with Special Needs
A product of the Children with Special Health Care Needs Continuing Education Institute at Children's Hospital, Columbus, Ohio.
Exceptional Children's Assistance Center
The ECAC is a federally funded, statewide education, advocacy, and training program for families with school aged children who have disabilities. Their website includes information about their various programs, a listing of upcoming workshops, materials available from their lending library, and related links.
Exceptional Parent Magazine
The online version of a magazine devoted to parenting children with physical or mental handicaps. Good resources for equipment, mobility, etc.
Excite
A popular search engine
Families of Spinal Muscular Atrophy
This non-profit organization of families of children with spinal muscular atrophy (SMA) focuses on supporting each other and raising funds for research designed to find a cure for this condition. This website has information about SMA, lists local chapters (including the NC chapter headquartered in Cary), provides updates on research activities, has a section of SMA-related links, and lists pen-pals for children with SMA.
Family Center on Technology and Disability
This program is designed to assist organizations and programs who serve families of children with disabilities by providing information and support on accessing and using assistive technology. It is run through the United Cerebral Palsy Associations and their project partners, Alliance for Technology Access (ATA), the Parent Advocacy Center on Education (PACER), Academy for Educational Development (AED), and InfoUse. This link will take you to their front page where you can choose between their text-only or graphical websites.
Family Support Network of North Carolina
This organization provides information about disabilities, services and agencies which serve families of children who have special needs. Their Central Directory of Resources is a computerized database housing over 15,000 files of information and materials that may be helpful to families of children who have or are at risk for developmental disabilities. Contains links about resources, organizations,special education, advocacy, and assistive technology. Be sure to look at their listings of local Parent to Parent Support Groups to find one near you. To contact them by phone, call 1-800-852-0042.
Family Village
A wonderful program for anyone with a disability, this website integrates information, resources, and communication opportunities on the internet for persons with disabilities, for their families, and for those that provide them services and support. Includes informational resources on specific diagnoses, communication connections, adaptive products and technology,adaptive recreational activities, education, worship, health issues, disability-related media and literature.
Family Voices
Family Voices, a non-profit organization, acts as a national clearinghouse for information to improve the health care of children with special needs. This website includes information on policy issues, publications, state resources, and related links. Be sure to explore the "Advocate's Corner" when browsing this site and look into their information on ways to improve the transition to adulthood for children with special needs.
Family and Advocates Partnership for Education
The Family & Advocates Partnership for Education is a new project which aims to inform and educate families and advocates about the Individuals with Disabilities Education Act of 1997 and promising practices.
Fatherhood Initiative
A program of the United States' Department of Health and Human Services. This website includes an incredible amount of information on fatherhood ranging from ways to improve opportunities for low-income fathers to a "Toolkit for Fatherhood."
Federation for Children with Special Needs
Based in Massachusetts, The Federation provides technical assistance,information, and support services to help families of children with special needs. There is a focus on special education and this site is a great resource for advocacy tips, IEP's and general information about IDEA (the Individuals with Disability Education Act). The site also has a text-only version available through the homepage.
Federation of Families for Children's Mental Health
A National parent-run organization focused on the needs of children and youth with emotional, behavioral or mental disorders and their families. This website provides a description of the organization, a listing of affiliates (there are at least two in NC), and links to relevant sites.
Fetal Diagnosis and Treatment at Vanderbilt University Medical
An electronic patient information brochure for the Fetal Diagnosis at Treatment Unit at Vanderbilt University. This program has been performing fetal surgery for spina bifida. This site contains updated statistics, information about the program, and a virtual tour of the surgical process.
First Words Project
FIRST WORDS Project is a model early identification and intervention program based in the Department of Communication Disorders at Florida State University. Staffed by speech-language pathologists and interdisciplinary consultants, they are funded to evaluate the communication development of children from 6 to 24 months of age in Leon County, Florida. This website describes their project and it's local activities, but also provides handouts on speech milestones, resources for child care providers, and links to other relevant sites.
Flaghouse
The Special Populations catalog has everything from standers to scissors from many manufacturers.
Food and Nutrition Information Center
The Food and Nutrition Information Center (FNIC) is one of several information centers at the National Agricultural Library (NAL), part of the United States Department of Agriculture's (USDA) Agricultural Research Service (ARS). You can access all of FNIC's resource lists and databases, as well as many other food and nutrition related links from this award winning site. Follow these links to learn more about FNIC and how to borrow library materials.
Funding of AT Booklet series
A complete set of assistive technology funding booklets published by United Cerebral Palsy and Neighborhood Legal Services, Buffalo, NY.
Gaining and Growing Homepage
Originating from Washington state, this website is designed to provide information to community health professionals who work with premature infants, especially those with very low birthweight (<1500 g) in hopes that assuring adequate nutritional status will improve outcomes and family life for these children. Offers the following informational resources: Nutrition Assessment; Nourishing the Very Low Birth Weight Infant After Discharge; Feeding the Very Low Birth Weight Infant at Home; What Parents Say About Feeding Preterm Infants; Decision Trees for Clinical Services; Case Studies; Resources for Nutritional Services; Gaining and Growing Brochure which can be downloaded using Adobe Acrobat (Available from the TelAbility Tools section).
Global Early Intervention Network
An internet community for everyone who cares about early intervention. Hosted by Northeastern University.
Google
A popular search engine
Growth Charts from the CDC
New pediatric growth charts from the Center for Disease Control are updated versions that allow you to follow changes in a child's height, weight, head size and Body Mass Index.
HEATH Resource Center
The HEATH Resource Center of The George Washington University, Graduate School of Education and Human Development is the national clearinghouse on postsecondary education for individuals with disabilities. Support from the U.S. Department of Education enables HEATH to serve as an information exchange about educational support services, policies, procedures, adaptations, and opportunities at american campuses, and help youth make the transition to adulthood.
Halloween Costumes
Instructions and ideas for making halloween costumes for children in wheelchairs. From the Bridge School in Hillsborough, California.
Haverich Adaptive Cycles
A manufacturer of tricycles, bicycles and tandems for adults and children with mobility impairments. US affiliate located in New Hampshire, this website contains photographs and information about their bikes and accessories.
Health Choice
This website describes North Carolina's Health Choice program, a health insurance program for all children and families who make too much to qualify for medicaid, but cannot afford private insurance.
Health on the Net Foundation
This group advances the development and application of internet and related technologies. Promulgates a Code of Conduct for the provision of authoritative and reliable information.
Healthy Childcare America
The Healthy Child Care America Campaign and the Blueprint for Action are the result of a strong shared vision of the Child Care Bureau and the Maternal and Child Health Bureau. This vision is two-fold: (1) Create and maximize linkages between health care providers and the child care community; and (2) develop comprehensive and coordinated services to benefit children across the country.
Healthy and Ready to Work
This is the website for a federally supported program that promotes a comprehensive system of family centered, culturally competent, community-based care for children with special health care needs may need assistance in making the transition from pediatric to adulty health care and to post-secondary education and/or employment. It provides information about the program, a calendar, related links and other materials.
Horsefeathers of NC
Located in Clemmons, NC, this non-profit organization provides animal assisted therapy, (including hippotherapy-therapeutic horseback riding) for people with mental, emotional and physical disabilites. This website includes program and contact information, a calendar of events,and photos of recent outings.
Hydrocephalus Association
A nonprofit organization, the Hydrocephalus Association seeks to provide support, education, and advocacy for individuals, families, and professionals caring for people with hydrocephalus.This website provides in depth information on hydrocephalus,a national directory of people with hydrocephalus and Hydrocephalus Support Groups, a newsletter, scholarship information, and much more.
Hydrocephalus, Syrinx, Myelomeningocele Resource Guide
A page of links and descriptions of resources related to spina bifida and hydrocephalus. Provided by the Massachusettes General Hospital's Neurosurgery section.
Hyperbaric Oxygen Therapy for Brain Injury, Cerebral Palsy, and Stroke
An evidence report from the US Department of Health and Human Service's Agency for Healthcare Research and Quality (2003).
I Am Your Child
I Am Your Child is a national public awareness and engagement campaign to make early childhood development a top priority for our nation.
IDEA Practices
IDEA Practices informs families, professionals, and the public about the Individuals with Disabilities Education Act (IDEA). This website provides information about the act, and up-to-date revisions in the law.
Immunization Action Coalition
A nonprofit organization based in St. Paul, Minnesota and supported in part by the Centers for Disease Control (CDC), the Immunization Action Coalition seeks to boost immunization rates and prevent disease through increased community awareness of, and responsibility for, the appropriate immunization of children and adults against all vaccine-preventable diseases. This site includes print materials, updates on immunizations, links to related sites, membership information, and quizzes to test your immunization/vaccination knowledge. Some materials are available in Spanish.
Individuals with Disabilities Education Act (IDEA)
Hosted by the U.S. Department of Education, this site contains: an overview of the bill, a summary of the bill, and a brief set of frequently asked questions; speeches; training modules and technical assistance on various topics related to IDEA '97.
Institute for Child Health Policy
The Institute for Child Health Policy is a state-wide Institution of Florida's State University System, headquartered at the University of Florida with affiliates at other state institutions across Florida. The Institute focuses its attention on issues related to children in managed care with an emphasis on children with special health care needs. Access, utilization, cost, quality and family involvement are this program's principal areas of interest. This excellent website contains information about the program, policy statements and other products, presentations from other programs funded through the federal Maternal and Child Health Bureau, and a large arrray of useful links. Be sure to look through their set of resources available to help young adults with disabilities transition to work and adulthood.
International Rett Syndrome Association
Over 500 pages of information about Rett Syndrome and the IRSA.
Internet Healthcare Coalition
This coalition strives to provide healthcare resources on the internet by seeking to educate consumers, professionals, educators, marketers, the media and public policymakers.
Island Dolphin Care
A not-for-profit organization located in Key Largo, Florida that provides dolphin-assisted therapy to critically ill, disabled, and special needs children.
KASA
Kids As Self-Advocates (KASA) is a national, grassroots network of youth with special needs and their friends who work to spread helpful, positive information among their peers to increase knowledge about living with special health care needs, health care transition issues, education, employment, and other topics. A program of Family Voices, a national non-profit organization of families and friends speaking on behalf of children with special health care needs.
Kaleidoscapes
Homeschooling discussion forum.
LD Online
The website of The Learning Project, sponsored by PBS station WETA in Washingtom,DC. This exceptional website is a wonderful source of information about learning disabilities and resources available to optimize students' learning experiences. You can participate in special education bulletin board discussions and online chat rooms, shop their LD resource store, or subscribe to their newsletter. Also available in spanish.
La Leche League International
A resource to help families continue breastfeeding their children. Can search the site for "special situtations" and "disabilities" for more information, including materials in Spanish.
Lash and Associates
A for-profit company located in North Carolina focusing on the neurological, psychological, communicative, psychosocial and educational impact of brain injuries among children, youth and young adults. This websites lists their informative publications directed towards families, survivors, health care professionals, rehabilitation specialists, educators and community staff caring for people with brain injury.
Learning Disabilities Association
A national, nonprofit organization, the Learning Diabilities Association (LDA) works to advance the education and general welfare of children and adults who have learning disabilities. LDA seeks to accomplish its mission through advocacy, education, research, service, and collaborative efforts. This website includes general facts and information about learning disabilities, resources, membership information, and a bookstore. Also be sure to check out the link to our state's LDA page.
Lekotek
The National Lekotek Center aims to contribute to the knowledge base about the link between play and early learning for children with special needs. This website provides information and resources for parents and professionals, including a listing of play and toy ideas developed for different conditions.
Longwood Herbal Taskforce
Devoted to approximately 85 herbs and dietary supplements, this website features in-depth monographs, clinican information, and patient fact sheets written by faculty, staff and students from Children's Hospital(Boston), the Massachusettes College of Pharmacy and Health Sciences, and the Dana Farber Cancer Institute.
MEDLINE
MEDLINE is the National Library of Medicine's database of references to more than 11 million articles published in 4300 biomedical journals. When you search MEDLINE: You will find information about articles on your topic (the author, title of the article, name of the journal, date published, page numbers)Many of the listings also have short summaries of the article (abstracts)Sometimes you will find a link to the full text of the article Please note that most of the articles you will find listed in MEDLINE are written for health professionals. Articles are for educational use only and are not intended to replace advice from a health professional.
MUMS - Mothers United for Mutual Support
MUMS is a national Parent-to-Parent organization for parents or care providers of a child with any disability, rare disorder, chromosomal abnormality or health condition. MUMS aims to provide support to parents in the form of a networking system that matches them with other parents whose children have the same or similar condition. Their database includes over 15,700 families from 48 countries, covering over 2700 disorders, very rare syndromes or undiagnosed conditions. Their newsletter allow families to share and speak out about issues affecting their lives. This website describes the origins and goals of this organization, provides information about various conditions, and includes a directory of hyperbaric oxygen therapy (HBOT) providers.
March of Dimes
The Mission of the March of Dimes is to improve the health of babies by preventing birth defects and infant mortality. This is carried out through programs of research, community services, education and advocacy.
Medicaid Managed Care Guide
From Families USA. This site provides information on how states monitor their medicaid managed care programs, and enables families and their providers to be better advocates within this health insurance system.
Meningitis Foundation of America
An international non-profit organization based in the USA, the Meningitis Foundation of America supports sufferers of meningitis and their families, educates the public and medical community to promote early diagnosis and treatment, and encourages the development of vaccines. This website includes information on symptoms, treatment, support/discussion forums, and prevention of this disease.
MetDesk
MetDESK (MetLife's Division of Estate Planning for Special Kids) is an internal unit within MetLife which provides information and assistance to families of children with special needs to help them with their financial planning. This information is important in planning for your child's future and especially helpful for adolescents with disabilities who are making the transition to adulthood. Some of the topics covered include: Government benefit eligibility requirements for SSI and Medicaid Types of special needs trusts Guardianship, Conservatorship and Client Self-Determination and Empowerment Issues Appropriate funding vehicles ? including life insurance, to guarantee your child's future quality of life
Muscular Dystrophy Family Foundation
Based in Indianapolis, Indiana, this national not for profit organization provides adaptive equipment and emotional support to individuals and families with muscular dystrophy. They also offer camping scholarships, school and work advocacy services and more.
NAFCC
A National organization providing support to family child care associations. The quarterly newsletter described on the website is available for its members.
NOMC Europeds
NOMC Europeds, based in Michigan, offers a therapy program based on the use of the Adeli suit, an as yet unproven, intense physical therapy program from Poland designed to improve the physical skills of children with neuromotor disorders. This website includes a detailed description of the mission of the program as well as of the services provided, and more information about this and other alternative therapies.
National Ability Center
The National Ability Center is dedicated to the development of lifetime skills for persons with disabilities and their families, by providing affordable, quality sports and recreation experiences. The benefits of these experiences build self-esteem and confidence, enhancing active participation in all aspects of community life.
National Adoption Information Clearinghouse
The National Adoption Information Clearinghouse maintains an adoption literature database; a database of adoption experts; listings of adoption agencies, crisis pregnancy centers, adoptive parent support groups and search support groups; excerpts and full texts of State and Federal laws on adoption; and other adoption-related services and publications.
National Association for Down Syndrome
Based in Chicago, Illinois, this non-profit organization provides support for families of people with Down Syndrome through conferences and family networking. This website describes the organization, offers a bimonthly newsletter, provides many links to other related websites and offers contact numbers for people living inside and outside the Chicago area. Note: Their products section includes posters and videos (including an exercise video for people with Down Syndrome).
National Association for the Education of Young Children
A 75 year old national organization working to improve the quality of educational and child care programs for children from birth through third grade. The website contains a description of the organization, its programs, and a conference calendar.
National Association of Developmental Disabilities Councils
NADDC is the national organization of Developmental Disabilities Councils that advocate and work for change on behalf of people with developmental and other disabilities and their families. NADDC promotes national policy to enhance the quality of life for all people with developmental disabilities. NADDC works with Congress and others in the reauthorization of the Developmental Disabilities Act, to strengthen Councils' systems change and advocacy role.
National Association of Private Schools for Exceptional Children
The National Association of Private Schools for Exceptional Children (NAPSEC) strives to provide children with access to private special education. The NAPSEC website includes membership information, a free referral service, information on the current legislation, and links to products and services.
National Association of School Nurses for the Deaf
Official website of the National Association of School Nurses for the Deaf. Includes the NASND newsletter whcih is published up to four times a year and includes National and Regional news, school and personal news submitted by members, and health articles.
National Association of School Psychologists
The mission of the National Association of School Psychologists (NASP) is to promote educationally and psychologically healthy environments for all children and youth by implementing research-based, effective programs that prevent problems, enhance independence, and promote optimal learning.
National Association of the Deaf
Founded in 1880, the National Association of the Deaf (NAD) is the oldest and largest organization representing people with disabilities in the United States. Programs and activities include grassroots advocacy and empowerment for people with hearing impairment, captioned media, certification of American Sign Language professionals; certification of sign language interpreters; deafness-related information and publications,legal assistance, policy development and research, public awareness, and youth leadership development.
National Campaign for Hearing Health
This national program, sponsored by the Deafness Research Foundation, advocates for improved detection, prevention, intervention, and research into hearing impairment. This site provides great resources for parents of children with hearing loss as well as helpful information on how to become an advocate for the cause of hearing health.
National Center for Biotechnology Information- Online Mendelian Inheritance in Man
This searchable database is a catalog of human genes and genetic disorders.
National Center for Complementary and Alternative Medicine
The National Center for Complementary and Alternative Medicine (NCCAM) conducts and supports research and distributes information on complemenatary and alternative medicine to medical professionals and the public. This site includes information for consumers, investigators, and practitioners.
National Center for Learning Disabilities
Based in New York, this organization seeks to provide information, support, and advocacy to help improve the achievement of people with learning disabilities. This site includes a description of the organization, research news, IDEA updates, information about special education, and a resource locator for school programs throughout the country.
National Center on Birth Defects and Developmental Disabilities
Contained within the national Centers for Disease Control (CDC) this Center aims to improve the health of children and adults by preventing birth defects and developmental disabilities, promoting optimal child development, and promoting health and wellness among children and adults living with disabilities. This website contains information, links and funding opportunities related to developmental disabilities, ADHD, autism, cerebral palsy, early childhood development, hearing impairment, mental retardation, and vision impairment.
National Center on Secondary Education and Transition
Headquarted at the University of Minnesota, this program seeks to increase the capacity of national, state and local agencies and organizations to improve secondary education and transition results for youth with disabilities and their families. The website includes information about the program, publications, event listings, related websites, and more.
National Child Care Information Center
This federally funded program provides legislative updates, general information and state contacts for child care services.
National Council on Disability
The National Council on Disability (NCD) is an independent federal agency making recommendations to the President and Congress on issues affecting 54 million Americans with disabilities. NCD is composed of 15 members appointed by the President and confirmed by the U.S. Senate. NCD's overall purpose is to promote policies, programs, practices, and procedures that guarantee equal opportunity for all individuals with disabilities, regardless of the nature of severity of the disability; and to empower individuals with disabilities to achieve economic self-sufficiency, independent living, and inclusion and integration into all aspects of society. This website features information on advocacy, IDEA, inclusion, and self-determination.
National Deaf Education Network and Clearinghouse/Info To Go
Info to Go, formerly the National Information Center on Deafness, is a centralized source of accurate, up-to-date, objective information on topics dealing with deafness and hearing loss in the age group of 0-21. Info to Go responds to a wide range of questions received from the general public, deaf and hard of hearing people, their families, and professionals who work with them. Info to Go collects, develops, and disseminates information on deafness, hearing loss, and services and programs related to children with hearing loss from birth to age 21.
National Down Syndrome Congress
This national non-profit organization aims to be the national voice for state and local groups, individual members, persons with Down syndrome, and all other interested persons. It serves as a clearinghouse on Down syndrome by collecting, creating, and disseminating information via the functions of the National Down Syndrome Congress Center, the annual convention, and the Down Syndrome News.
National Early Childhood Technical Assistance Program
NECTAS is a national technical assistance consortium working to support states, jurisdictions, and others to improve services and results for young children with disabilities and their families.
National Fatherhood Initiative
The National Fatherhood Initiative seeks to improve the lives of children by helping men to become better fathers. A non-profit organization, NFI enables fathers by distributing information, conducting public awareness campaigns, organizing community fatherhood forums, providing resource material, and publishing a quarterly newsletter. This website includes access to numerous on-line resources, advice on fatherhood, an on-line discussion forum for fathers, membership information, and links to related sites.
National Fragile X Foundation
Based in San Francisco, California, this non-profit organization informs and educates family members and caregivers about those with Fragile X Syndrome. The website offers an overview of the characteristics and interventions used for people with Fragile X Syndrome, provides information about the organization, provides relevent links and even has a short video about fragile x that can be viewed from the site.
National Head Start Association
The National Head Start Association (NHSA) is a private not-for profit membership organizaion that provides a national forum for the continued enhancement of Head Start services for poor children ages 0 through 5, and their families.
National Information Center for Children and Youth with Disabilities
Now called the National Dissemination Center for Children with Disabilities. Provides information on disabilities and disability-related issues for families, educators, and other professionals. An excellent site for policy issues, IDEA / special education, pertinent nationwide conferences and resource organizations at both the state and federal levels. Text-only version available.
National Information Clearinghouse on Children and Youth with Disabilities
NICHCY is the national information and referral center that provides information on disabilities and disability-related issues for families, educators, and other professionals. Our special focus is children and youth (birth to age 22).Services provided include: personal responses to your specific questions; a wide variety of publications, including fact sheets on specific disabilities, state resource sheets, parent guides, bibliographies, and our issue papers, "News Digest" and "Transition Summary."; referrals to other organizations and sources of help; information searches of our databases and library.
National Institute on Deafness and Other Communication Disorders
The National Institute on Deafness and Other Communication Disorders (NIDCD) is one of the Institutes that make up the National Institutes of Health (NIH). Established in 1988, NIDCD is mandated to conduct and support biomedical and behavioral research and research training in the normal and disordered processes of hearing, balance, smell, taste, voice, speech, and language. This website contains health information for parents, a directory of national resources, listings of clinical trials, quarterly newsletters, and more.
National Marfan Foundation
Founded by people who have Marfan Syndrome and their families, the National Marfan Foundation gathers and distributes information to families, patients, members, and the health care community, provides a network of support, and helps to fund and encourage research on this condition. Upcoming events, news, a detailed description of Marfan Syndrome, and publications can all be found on this website.
National Maternal and Oral Health Resource Center
Designed to promote better oral health care for children this national organization has publiations and conferences to help parents improve their child's dental care. The website contains contact information and regional conferences schedules.
National Mobility Equipment Dealers Association
A professional organization whose membership consists of automobile manufacturers, adaptives equipment dealers, driver evaluators and trainers for the disabled, physicians, lawyers, insurance adjusters, and consumers. This website contains links to related agencies, membership rosters, publications, and guidelines set by the organization's Quality Assurance Program.
National Organization on Mental Retardation
Educational information, policy statements helpful to families and professionals caring for individuals with mental retardation.
National Parent Network on Disabilities
National advocacy organization for families of children, youth, and adults with disabilities. Contains updates of federal legislation affecting the special needs community amd many disability-related links. A good resource for issues related to IDEA / special education, and the ADA. You can use this site to sign up for their weekly update- "The Friday Fax".
National Resource Center for Health and Safety in Child Care
NRC's primary mission is to promote health and safety in out-of-home child care settings throughout the nation.
National Resource Center for Special Needs Adoption
A non-profit organization located in Detroit, Michigan. Its primary goal is to improve the quality of services provided to the families who have adopted a child with special needs. The services include technical assistance with policies on special needs adoption, mental health and child welfare.
National Spinal Cord Injury Association
A nonprofit organization, The National Spinal Cord Injury Association (NSCIA) works to empower individuals and families with spinal cord injury through education and support. Information for the newly injured, pen pal directories for kids, general fact sheets, special project information, membership options, and links to a wealth of resources are all included on this website.
National Spinal Cord Injury Hotline
The hotline is a non-profit organization, and is staffed by six clinical/information specialists. The program assists individuals and their families who have sustained a traumatic spinal cord injury (SCI) resulting in paraplegia or quadriplegia. Callers are guided to area resources, programs, products, and support groups to help them live more independent lives. The Hotline staff can guide people through the bewildering array of questions they face after a paralyzing injury. Questions range from home modifications to child rearing, from medical equipment to fertility.
National Sports Center for the Disabled
Based in Winterpark, Colorado, the National Sports Center for the Disabled (NSCD), is an innovative non-profit organization that provides recreation for children and adults with disabilities. This website contains>>>>>>>>>>>>>>
National Stuttering Association
The National Stuttering Association (NSA) advocates in the community for those who stutter by attempting to raise public awareness through education and outreach activities. This website includes membership information, access to a bookstore,news, and links to related resources about speech impediments.
National Transition Network
The National Transition Network strives to serve the public by strengthening the capacity of individual states to effectively improve transition and school-to-work policies as they relate to youth with disabilities. The Network provides direct technical assistance to states with current transition projects as well as developing and distributing a variety of publications. This website includes online publications, workshop information, state contacts, and links to related websites.
National Vaccine Injury Compensation Program
The National Childhood Vaccine Injury Act of 1986 is a Federal "no-fault" system designed to compensate those individuals, or families of individuals, who have been injured by childhood vaccines, whether administered in the private or public sector. Site covers topics such as: Vaccines added for coverage under the VICP; background Information on VICP; how to file a VICP claim; vaccine injury table - listing of vaccines and associated injuries covered under the program; summary of current issues; VICP Monthly Statistics Report; and other vaccine related links.
Natural Access
Natural Access markets an all-terrain wheelchair that can roll over sand, gravel, snow, and soft soil, allowing individuals access to beaches, trails, and parks.Free brochures as well as descriptions of the wheelchair are available on this website.
Neurodevelopmental Therapy Treatment Association
The NDTA promotes the use of this hands-on approach is used in working with people who have central nervous system insults that create difficulties in controlling movement. The website offers news and information about NDT.
New Visions
Located in Nelson County, Virginia, this for-profit company provides continuing education and therapy services to professionals and parents working with infants and children who have feeding, swallowing, oral-motor, and pre-speech problems. On-line consumers have access to educational materials, the Mealtimes catalog, a description of their clinical services , and information about continuing education workshops.
North American Growth In Cerebral Palsy Project
The website for this international research project designed to examine the growth of children with cerebral palsy. This site provides information about the project, tips for parents and health care providers, ways for interested families to join the study, a kids page describing the project, links about cerebral palsy and feeding difficulties, even a couple of recipes that incorporate pediasure and ensure formulas! Based at the Kluge Children's Rehabilitation Center at the University of Virginia, Charlottesville.
North Carolina Assistive Technology Project
The NC Assistive Technology Program is dedicated to creating a statewide system that coordinates assistive technology services. Activities include awareness and training, consumer groups, expansion projects, funding information, technincal assistance, and much more. Be sure to take a look at the Check-It-Out program - an assistive technology equipment loan program for North Carolinians with disabilities, their families, and their service providers.
North Carolina Association for the Education of Young Children
The mission of NC-aeyc is to promote quality and form partnerships which will support programs and professionals serving North Carolina's young children from birth to age eight. The association is committed to acting on behalf of all young children with the primary focus being on the care, education and services available to them.
North Carolina Child Care Law and Rules
An online listing of rules for child care facilities in North Carolina. Last updated April 2003.
North Carolina Child Care Search Engine
Developed by the NC Division of Child Development, this site provides information about child care in North Carolina, contact numbers for the child care resource and referral program and a searchable database of child care providers in our state.
North Carolina Consumer's Guide to Health Plan Selection
An internet guide to managed care insurance plans in North Carolina. Hosted by the NC Institute of Medicine.
North Carolina Council on Developmental Disabilities
The DD Council's role in NC's ADD network is to promote a community service delivery system that is personalized to meet the unique needs of each individual with a developmental disability. We do this by funding community partners to conduct activities, across the state, that advance innovative, cost-effective ways of providing services. We share information about the best of what's happening across the nation and advocate for changes to make NC communities more welcoming to and supportive of people with disabilities. A good resource for young adults making the transition to adult services.
North Carolina DHHS- Division of Services for the Blind
This North Carolina State Division empowers individuals who are blind or visually impaired to achieve their maximum potential through services provided by competent and caring professionals. Programs within the Division provide or coordinate services in areas related to Education, Independent Living, Vocational Rehabilitation and the Prevention of Blindness. This website contains a listing of excellent resources and links for people who are blind or visually impaired.
North Carolina Deaf - Blind Associates
The North Carolina Deaf-Blind Associates (NCDBA), is an independent, non-profit organization that seeks to inform and empower North Carolina citizens who have vision and hearing impairments to actively participate in decision making processes affecting their lives. This website lists recent events and contact information for the organization.
North Carolina Division of Child Development
The North Carolina Division of Child Development oversees all aspects of child care services in our state. At this site, you can find licensed child care centers in your county as well as the rating that those centers have earned in the state's newest star rating system.
North Carolina Division of Public Health
The NC Division of Public Health works toward protecting and improving the health of the people who live and work in North Carolina. Lists the main components within this division. An easy way to look up contact program information.
North Carolina Occupational Therapy Association
This website provides information about our state's occupational therapy association and its members, lists its upcoming conferences, publicizes employment opportunities, offers relevant links, and more.
North Carolina Office on Disability & Health
Dedicated to promoting the health of North Carolinians with disabilities through the following activities: Improving access and inclusion of persons with disabilities in public health and health care services; increasing awareness and understanding of the health promotion and health related needs of people with disabilities; educating individuals with disabilities, clinicians, and providers; supporting the development of targeted health promotion programs; identifying existing health promotion resources for persons with disabilities and providers; conducting and reporting on disability research and data collection.
North Carolina Office on Disability and Health
Funded by the US Centers for Disease Control and Prevention (CDC), and affiliated with the Frank Porter Graham Child Development Center in Chapel Hill, this program is dedicated to promoting the health of North Carolinians with disabilities. Their website contains information about the office, its staff, and its programs, including many useful resource to help children with special health care needs transition to adulthood.
North Carolina Pediatric Society
An affiliate of the American Academy of Pediatrics, the North Carolina Pediatric Society seeks to improve the health and well being of children in our state through the collective efforts of its membership and to provide an organization for professional communication, education, and fellowship. This website provides information abouth this organization, some related website links, and a calendar of society events.
North Carolina Physical Therapy Association
The NC chaptre of the American Physical Therapy Association. This websites provides statewide and national updates of interest to physical therapists, information about educational conferences, relevent links, and more.
Nutrition Services
A North Carolina organization which promotes sound nutrition and support for moms and their children under 5 years old. Services include financial asistance through WIC, information through video tapes and brochures. The website contains the list of qualifications necessary to participate.
Office of Disability Employment Policy
A national resource to help people with disabilities find and keep jobs. A helpful resource for adolescents making the transition from school to work. This website includes information about the Job Accomodations network, a listing of state liaisons, and more.
On a Roll with Greg Smith
Talk radio on life, disability and human potential.
One A.D.D Place
Devoted to Attention Defecit Disorder, this site contains: General Adult A.D.D. Symptom Checklist; Newsletters, Papers & Articles, References, Frequently Asked Questions (FAQ);Calendar of Events;Books/Tapes/Products;Professional Services; Professional Organizers, Seminars, Workshops and Other Live Programs.
Online Asperger Syndrome Information and Support
This website provides information, conferences and descriptions of characteristic behavior of people with Asperger Syndrome. Through newsletters, schools and camps family and caregivers are able to educate themselves and develop support groups to assist with ongoing issues.
Online Mendelian Inheritance in Man
Geared towards medical providers, the Online Mendelian Inheritance in Man is a catalog of human genes and genetic disorders from the National Center for Biotechnology Information (part of the National Library of Medicine). This site contains pictures, reference information, and textual information related to genetics.
Our Kids
Run by and for an international "family" of over 800 parents, caregivers and others who are working with children with physical and/or mental disabilities and delays. Covers multiple conditions including developmental delay, sensory integration problems, cerebral palsy,rare genetic disorders, and others. Professionals, organizations and therapists also monitor and contribute.
PAGER
Pediatric/Adolescent GastroEsophageal Reflux Association (PAGER)is a national, non-profit organization run by several parents of children with GER. It provides information and support to people about Gastroesophageal Reflux (GER)and how it can affect your child's health and feeding ability. The website contains information about the organization and its events, research updates and stories from experienced parents of children with GER. The discussion section is a popular destination.
Palaestra
This website describes the subscription magazine, Palaestra, a resource on adapted sports and physical activity. Palaestra's missions are to 1)enlighten parents in all aspects of physical activity to make them the best possible advocates for their children during IEP (Individual Education Plan) discussions with the school or community recreation staff and 2) increase the knowledge base of those professionals working with children or adults with disabilities.
Parent Advocacy Coalition for Educational Rights
Located at the University of Minnesota, PACER's mission is to improve and expand opportunities that enhance the quality of life for children and young adults with all disabilities (physical, mental, emotional, learning) and their families. PACER now offers 20 major programs, including Parent Training programs, programs for students and schools, and technical assistance to regional and national parent centers. The website includes resources and publications on advocacy, special education, transition to adulthood, and emotional and behavioral disorders.
Parent Handouts
Handouts for parents addressing ADHD, disabilities, parenting, screening, and sleep problems. From the Section on Developmental and Behavioral Pediatrics of the American Academy of Pediatrics(AAP).
Parenting the Child with Disabilities
Some things that parents of a child growing up disabled should avoid and some things that even good parents might not intuitively think to do for their child.
Parents Exchange
An information, referral, and advocacy service for parents and caregivers of children with disabilities and professionals who work with families in Pennsylvania. Provides listing of conferences, bibliographies and reading lists, and disability specific links.
Partnerships for Change
From the Department of Social Work at the University of Vermont. This organization seeks to improve the services to children with special health care needs and their families by focusing on integrating this approach into the education and practice of professionals.
Passengers with Disabilities
Facts for the Air Traveler with special needs from the Aviation Consumer Protection Division of the U.S. Department of Transportation.
Patient Travel (National Patient Air Transport Helpline)
This non-profit organization helps patients find appropriate charitable medical air transportation resources in the United States. It also operates various Special-Lift and Child-Lift programs on behalf of special disease organizations and/or clinical research centers in the United States. Their goal is "..to ensure that no financially-needy patient is denied access to distant specialized medical evaluation, diagnosis or treatment for lack of a means of long-distance medical air transportation." The website describes the programs they offer and has their toll-free phone number parents and professionals can call to look into air travel options.
Pediatric Dental Health
Created by a pediatric dentist in Fayetteville, NC this website provides extensive information on oral health needs in children including those with cerebral palsy, down syndrome, autism, attention deficit disorder and many others.There are discussion boards, general medical and dental search engines, links, and online educational materials.
Pediatric Dentists in NC
By entering your zip code, this website will give you a list of up to date contact information for pediatric dentists near you who are members of the American Academy of Pediatric Dentistry. Note: These dentists may or may not have expertise in caring for children with disabilities.
Pediatric Points Of Interest
Searchable collection of links to resources in Pediatrics and Child Health. Authored by Christoph Lehman from the Department of Pediatrics, Johns Hopkins University. Medline access site.
PediatricLinx
PediatricLinx.com is designed to offer the most current medical news in pediatrics, to accurately and efficiently search the Web for medical information of a pediatric nature, and to enable pediatricians to share and discuss ideas with fellow specialists.
Prancing Horse
A non-profit organization providing therapeutic horseback riding programs to children and adults in Moore and surrounding counties.
Preemie-l Discussion Group
A threaded discussion list for parents with children born six weeks or more before their due date. Sponsored by Children's Medical Ventures, Inc.
Prevent Blindness America
A national organization dedicated to reducing blindness and visual impairment by screening all young children for vision problems.
Prevent Child Abuse America
National organization devoted to the prevention of child abuse
Project Inspire: Texas Women's Univeristy
Includes information on programming, strategies, disabilities information sheets, legislation, and advocacy pertaining to adapted physical education.
Quality Mall
Quality Mall collects and disseminates information related to or useful in promoting quality of life for persons with developmental disabilities. It is not a retailer or vendor of products or services, but uses the theme of a shopping mall to help connect visitors to the best products and services available. Develpoed by the Research and Training Center on Community Living at the University of Minnesota's Institute on Community Reintegration and is funded through a grant from the federal government.
RESNA
The Rehabilitation Engineering and Assisitive Technology Society of America (RESNA) seeks to improve the potential of people with disabilities to achieve their goals through the use of technology. This nonprofit organization promotes research, advocacy, education, and the provision of technology. Has a large number of helpful and informative links.
Raleigh March of Dimes
Home page of the Raleigh chapter of March of Dimes. Provides information on programs, a calendar of events, and ways to get involved.
Reach Out and Read
Reach Out and Read is a national program that seeks to make early literacy an integral part of pediatric primary care. Pediatricians encourage parents to read aloud to their young children and give books to their patients to take home at all pediatric check-ups from six months to five years of age. Parents learn that reading aloud is the most important thing they can do to help their children love books and to start school ready to learn.
Rifton Adaptive Equipment
Adaptive Equipment for Children and Adults Rifton manufactures gait trainers, standers, adaptive tricycles, special needs chairs, wheelchair desks, bath chairs, toileting aids, and other adaptive equipment designed to help children and adults achieve their goals.
Riverwood Therapeutic Riding Center
Located in Tobaccoville, NC, this non-profit organization provides hippotherapy (therapeuitc horseback riding) to children and adults with cognitive, physical, and mental disabilities. They follow NARHA (North American Riding for the Handicapped Association) standards and guidelines and have certified instructors at the center. They operate 4 sessions yearly. This website contains program and contact information, a few links, and a calendar of events.
STARBRIGHT Foundation
STARBRIGHT is a unique program that is dedicated to empowering seriously ill children to fight the social and emotional challenges that they face every day. STARBRIGHT educates and encourages children through numerous creative projects. One particular project, Videos With Attitude, provides seriously ill teens and pre-teens with a video series geared to help them cope and learn to advocate for themselves. In the videos, teen survivors of illness share tips and solutions for coping with the challenges of serious medical conditions. Videos are free to children with a serious illness and their families. Be sure to check out all the current projects when browsing this website.
STOMP
STOMP (Specialized Training of Military Parents) is an organization based in Tacoma, Washington, established to help military families who have children with special needs. The website contains newsletters, chat rooms, schedules of local workshops, and a discussion board to provide a means to share experiences and recommendations for families in the Department of Defense's armed forces.
Sammons Preston
Positioning, seating and much more.
School Health Resources for Pediatricians
Developed by the American Academy of Pediatrics' Section on School Health and Committee on School Health, this website targets its information and resources to address the needs of pediatricians and other health professionals working in or with schools. The site includes short articles, a forum for pediatricians to consult with one another about particular cases, and a number of related resources.
Scoliosis Research Society
The Scoliosis Research Society, a professional organization of orthopedic surgeons, has prepared this web site to provide patients, and in the case of children, their parents,with a better understanding of scoliosis, its diagnosis and management. The website contains an excellent overview of scoliosis with lots of pictures and descriptions, a membership list, glossary of terms, and information about the organization's newsletter and annual meeting.
Sensory Integration International
Non-profit, corporation concerned with the impact of sensory integrative problems on people's lives.
Shriners Hospitals
Shriners Hospitals for Children is a network of pediatric specialty hospitals where children under the age of 18 receive medical care fee of charge. Contains a hospital directory, admission information, and affiliated programs and services. (The closest one to North Carolina is located in Greenville, SC)
Sickle Cell Information Center
The mission of this site is to provide sickle cell patient and professional education, news, research updates and world wide sickle cell resources. It is the mission of our organizations to provide world class compassionate care, education, counseling, and research for patients with sickle cell disease.
Snug Seat
A national supplier of pediatric rehabilitation equipment, Snug Seat provides families with a wide variety of mobility, positioning, and transportation product options. Shower/bath products, standers, strollers, car seats, bath seats, and daily living devices are all available through Snug Seat dealers. In-depth descriptions of each product as well as a list of dealers across the nation are available on this website.
Social Security Administration Work Site
The SSA Work Site gives detailed descriptions of Social Security Work Incentive Programs via web links and videos. This site provides information that can help an individual transition from school to work without losing his/her SSI or SSDI benefits, as well as get rehabilitation and vocational services.
Sotos Syndrome Support Association
A National organization established to provide information to the health care team of people with Sotos Syndrome. The website has a quarterly newsletter, information about their annual conference, and other information to keep the members of the team up-to-date with the latest research.
Southpaw Enterprises
Southpaw is a company offering products and tools for children with sensory integration dysfunction (difficulties taking in and processing information through senses) The website contains information regarding the history and focus of the company as well as an online catalog and message forum.
Speaking to Write: Realizing the Potential of Speech Recognition for Secondary Students with Disabilities
Homepage of the Speaking to Write project, a cooperative venture between the Education Development Center, Inc. and te Communication Enhancement Center at Boston Children's Hospital. Materials in PDF format address the use of assistive technology including speech recognition software (or voice recognition) for writing by secondary students with disabilities.
Special Education - Definitive Collection of Net Links
Index of Net resources about special education, organized by category and compiled by About.com 'expert guide' Pat Linkhorn.
Special Education News
A frequently updated e-zine covering issues related to the education of students with disabilities. The Web site also offers unique resources to special education professionals, including places for educators and others to exchange their views,links to important information at other sites on the Web, and news and events from across the country.
Special Education Resources on the Internet
A collection of links designed to make on-line Special Education resources more easily and readily available. Site is modified and updated on a regular basis and includes links related to autism, hearing impairment, visual impairment, inclusion, and other topics.
Special Needs Advocate for Parents
Provides information, education, advocacy, and referrals to families with special needs children of all ages. Contains an online bulletin board and newsletter.
Special Needs Network
Special Needs Network (SNN) a division of the Military Family Resource Center (MFRC) of the Department of Defense (DoD), provides information on military policy for parents of children of special needs. The website addresses issues such as relocation, education and health care services for DoD families.
Special Olympics
Special Olympics is a nonprofit program of sports training and competition for individuals with mental retardation. Founded in 1968 by Eunice Kennedy Shriver, Special Olympics provides year-round training and athletic competition for more than one million athletes in nearly 150 countries and all 50 states in the United States.
Special Olympics of North Carolina
Special Olympics North Carolina provides year-round recreation in the form of sports training and athletic competition opportunities for more than 25,000 children and adults with mental retardation in nearly all 100 NC counties. This website lists SONC's programs, provides a calendar of upcoming events, highlights an "athlete of the week" ,offers information on ways to get involved, and more.
Speech Recognition Web Site
for users and enthusiasts of speech recognition software. The site contains articles, BB's, and mailing lists for voice recognition.
Spina Bifida Association of America
The Mission of the Spina Bifida Association of America is to promote the prevention of spina bifida and to enhance the lives of all affected. The Association was founded in 1973 to address the specific needs of the spina bifida community and serves as the national representative of over 70 chapters. SBAA's efforts benefit thousands of infants, children, adults, parents and professionals each year. The website includes information about many of their services, including a toll free 800 Information and Referral Service, a Bi-monthly Newsletter,Legislative Updates, Publications, Agent Orange Class Assistance Program, Professional Advisory Council, Nursing Council, Conferences and Educational Symposiums, Adult Network, Scholarship Funds, Public Awareness Campaign, Chapter and Member Services, National Public Service Announcements,Individual and Systems Advocacy and the SBAA Research Fund.
Spina Bifida Association of America-Latex Information
Page devoted to rubber allergy in individuals with spina bifida.
Sportime
Physical education products for children with special needs.
State Partnership Initiative
This website, based at Virginia Commonwealth University's Rehabilitation and Research Training Center, serves as an information outlet for highlighting the activities of the State Partnership Systems Change Initiative States, as well as, a central source of information and resources on the Ticket to Work and Work Incentives Improvement Act, benefits assistance, Medicaid buy-in programs and employment resources. Be sure to look at North Carolina's participating program, looking to overcome the barriers to work faced by many teenagers with disabilities who are trying to transition to adulthood and work.
Stuttering Foundation of America
Based in Memphis, Tennessee, the Stuttering Foundation of America, the first nonprofit, charitable association in the world to concern itself with the prevention and improved treatment of stuttering, distributes over a million publications to the public and professionals each year. This web site has information for those who stutter and their families as well as professionals.
TEACCH
Division TEACCH (Treatment and Education of Autistic and related Communication handicapped Children) is a comprehensive, community-based program dedicated to improving the understanding and services for autistic and communication handicapped children and their families across the state. This website decribes TEACCH's programs, lists its regional centers, and offers information and resources about autism, Asperger's syndrome, pervasive developmental disorders (PDD) and strategies for inclusion of children with autism-spectrum conditions.
TRICARE, Military Health System
TRICARE is a regionally managed health care program for active duty and retired members of the uniformed services, their families, and survivors.
Tammy Lynn Center
The Tammy Lynn Center for Developmental Disabilities is a non-profit organization based in Raleigh, NC that provides educational and residential support to families of children with disability. This website offers information on their programs, including specialized day care, residential services, and even in-home services such as respite care and early childhood intervention. The site also provides (occasionally outdated) information on the kinds of families served, funding sources, and links for information on developmental disabilities.
Teasing, People Say the Craziest Things, BandAides and Blackboards
Paragraph-length testimonials of children with disabilities and their parents relating their experience of being teased and/or misunderstood by schoolmates and people in their communities.
The American Federation for the Blind
The American Foundation for the Blind (AFB) is a leading national resource for people who are blind or visually impaired, the organizations that serve them, and the general public. The mission of the American Foundation for the Blind is to enable people who are blind or visually impaired to achieve equality of access and opportunity that will ensure freedom of choice in their lives.
The Association for Driver Rehabilitation Specialists
The Association for Driver Rehabilitation Specialists (ADED) is a nonprofit organization that provides support for professionals in the field of driver training and tranportation equipment modifications for persons with disabilities. Fact sheets with information of how different disabilities can impact driving as well as the adaptations that can be made in order to enable everyone have a safe driving experience are included on this website. The site also has information on educational conferences, research, a guide to locating driver rehabilitation specialists and equipment dealers across the country, and links to related sites.
The Center for Univeral Design
The Center for Universal Design, located on the campus of NC State University in Raleigh, is a national research, information, and technical assistance center that improves the accessibility of buildings by evaluating, developing, and promoting universal design in housing, public and commercial facilities, and related products. This website describes the concept of universal design and lists the Centers programs and resources.
The Cerebral Palsy Network
Site based in Olympia WA, developed by parents of children with CP. Offers chat rooms for discussion of parent-centered CP related issues.
The Charge Syndrome Foundation
Organization with a focus on children with Charge Syndrome.
The Council for Exceptional Children
The Council for Exceptional Children (CEC) is the largest international professional organization dedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities, and/or the gifted. CEC advocates for appropriate governmental policies, sets professional standards, provides continual professional development, advocates for newly and historically undeserved individuals with exceptionalities, and helps professionals obtain conditions and resources necessary for effective professional practice.
The Crigler-Najjar Syndrome Web Page
This is a web site devoted to children and adults with the Crigler-Najjar syndrome and their families. It has been created with support and funding from The Rockefeller University. Our mission is to provide information about the Crigler-Najjar syndrome to persons with the disorder, their families and the health professionals who take care of these children. We plan to keep this information updated as new research is published.
The Dragonfly Toy Company
Toys for children with special needs. Search function allows you to look for suitable toys based on age and ability.
The Family Village Estate Planning & Special Needs Trusts
A compilation of listservs, articles and websites about financial planning, estate planning and special needs trusts for families of children with disabilities.
The Fathers Network
This website celebrates and supports fathers and families raising children with special health care needs and developmental disabilities. It contains news and resources, articles by dads, links, bulletin boards, and a photo album. Has materials in Spanish as well. Funded by the Office of Children with Special Health Care Needs, Washington State Department of Health.
The Federal Resource Center for Special Education
The FRC supports a nationwide technical assistance network to respond to the needs of students with disabilities, especially students from under-represented populations.
The Flutie Foundation
The Doug Flutie, Jr. Foundation provides funding for services for financially disadvantaged families who need assistance in caring for their autistic children, funds research and education into the causes and consequences of childhood autism, and serves as a clearinghouse and communications center for new and innovative programs and services developed for autistic children.
The Genetic Alliance
An international coalition based in Washington, DC that supports individuals with genetic conditions and their families, educates the public and advocates for consumer-informed public policies. This website provides information about the organization, a calendar of events, a useful online directory of genetic resources, including support groups for a wide variety of conditions, and much more.
The Governor Morehead School for the Blind
The Governnor Morehead School for the Blind strives to successfully educate North Carolina's children and youth with visual impairments to be productive, independent, confident citizens, and life-long learners. The school works with North Carolina students with visual impairments from birth through age 21, their parents, and the professionals who serve them. This website provides detailed descriptions of the services and programs offered by the school, it's history, and links to related websites.
The Hanen Centre
A Canadian-based organization providing early language intervention for children with speech and language delay, especially those less than 6 years of age. Programs and methods used for training parents and therapist alike are described at this website. With an international flare, the website states that some of the literature has been translated into foreign languages. Website pages sometimes takes a while to download.
The Magic Foundation
MAGIC is a national non-profit 501(c)(3) organization providing support and education regarding growth disorders in children and related adult disorders, including adult GHD. This website has been updated for 2000 to include their quarterly newsletter, and a place to register for their listserv.
The Miami Project to Cure Paralysis
The Miame Project's sole purpose is find a cure for paralysis that results from spinal cord injury. Based at the University of Miami School of Medicine, the Project focuses strictly on research. This website includes an informative fact sheet on spinal cord injury, provides a helpful resource guide, and highlights current projects.
The National Association of School Nurses for the Deaf
Mission is to enhance the quality of health education and services to Deaf students through education, networking, and promoting effective communication between Deaf and Hearing.
The National Institute of Conductive Education
Based in Birmingham, England, this cneter was founded by Diana, Princess of Wales, to promote the use of conductive education in the care of people with disabilities. This website provides information about conductive education, a discussion forum, a job "centre", books, and publications.
The National Pediculosis Association?, Inc.
The National Pediculosis Association?, Inc. (NPA) is the only non-profit health education agency dedicated to protecting children from the misuse and abuse of potentially harmful lice and scabies pesticidal treatments. As part of its mission, the NPA works to encourage our nation's health and child care professionals to adopt standardized head lice management programs.
The North Carolina Chapter of Families of Spinal Muscular Atrophy
There are currently 12 families active in the chapter. It is our intention to have a considerable impact on the efforts toward finding a cure for Spinal Muscular Atrophy.
The Program for Infant/Toddler Caregivers
This organization, based in Sausolito, California, provides products, training and technical assistance to child care providers and others who care for young children. While their training sessions are available only in CA, their website allows the user to view powerpoint presentations on early childhood development and lists guidelines and training handbooks available by order.
The Reeve-Irvine Research Center
The Reeve-Irvine Research Center was established for the purpose of studying injuries to and diseases of the spinal cord that lead to paralysis or other loss of function with the goal of finding a cure. This website focuses on spinal cord injury research and includes some links as well as information for students on programs that are offered by the Center.
The Shaken Baby Alliance
The mission of the Shaken Baby Alliance is to provide support for SBS victim families (Including adoptive and foster parents), advocate for justice for SBS victims, and increase SBS awareness.
The Special Needs Trust
An online article to about special needs trusts to help you with financial planning for a child with a disability. From the National Institutue on Life Planning for Persons with Disabilities.
Third National Conference on Shaken Baby Syndrome
The Third National Conference on Shaken Baby syndrome will be held in Salt Lake City, Utah on September 24-26, 2000.
Tourette Syndrome Association, Inc.
The TSA is a national not-for profit organization dedicated to providing up-to-date, accurate information about Tourette Syndrome. This website describes the organization, provides information about Tourette Syndrome, offers books and videos for purchase, has an online newsletter (non-members can only read the first page each edition), an ask the expert page and a new education and advocacy section.
Transition Research Institute
Located at the University of Illinois at Urbana-Champaign's School of Education, this institute is dedicated to improving school-to-work and transition outcomes for students with disabilities through research. This website provides teachers, service providers, clients and researchers with an excellent source of information. Be sure to check out the available on-line publications.
Transition Revolution Executive Summary
In March, 1999, a group of 50 health policy administrators, analysts and leaders, as well as physicians, nurses, teachers, family representatives, advocates, and adolescents with disabilities were invited by the Maternal Child Health Bureau to discuss how far the health care industry has come since 1989 in facilitating transitioning youth from pediatric to adult health care and what work still needed to be done. This website provides the executive summary of this meeting with evaluations and plans for future interventions and programs.
Triangle Down Syndrome Network
This organization exists to support and connect families of children with Down syndrome by organizing and promoting activities such as monthly support meetings, parent socials, playgroups, Mom's Night Out, holiday parties, and more. Their website provides information about the organization, a calendar of events, a newsletter, links to resources, and more.
UNC Department of Pediatrics
Home page of the UNC Department of Pediatrics. Provides general information regarding Residency Programs, Pediatrics Divisions and Programs at UNC, Faculty Research and Clinical Interests, Pediatrics Computer Support Pages, and an Email address book for department members.
United Brachial Plexus Network
The United Brachial Plexus Network strives to inform, support and unite families and those concerned with brachial plexus injuries worldwide.
United Ostomy Association, Inc.
The United Ostomy Association is a volunteer-based health organization dedicated to providing education, information, support and advocacy for people with intestinal (ex/colostomy) or urinary (ex/vesicostomy)diversions. This website provides information about ostomies, conferences, books, local chapters, and more.
United States Association of Blind Atheletes
The mission of the United States Association of Blind Athletes (USABA) is to change the attitudes about the abilities of the blind and visually impaired. USABA trains 3,000 blind and visually impaired athletes in nine sports - alpine and nordic skiing, goalball, judo, powerlifting, swimming, tandem cycling, track and field and wrestling.
United States Cerebral Palsy Athletic Association
The UCPAA provides both individualized sports training and competitive opportunities for atheletes with cerebral palsy, or other related challenges, such as traumatic brain injuries or strokes. This website includes a list of upcoming events at the national level, information about the 2000 Paralympics in Australia, and links to relevent resources.
University of South Alabama Comprehensive Sickle Cell Center
The mission of the SCC is to: 1) Improve understanding of the pathophysiology and management of sickle cell disease through high quality basic science and clinical research. 2) Develop new approaches for diagnosis and treatment of sickle cell disease (SCD). 3) Transfer the knowledge and skills to health professionals and to the community through education programs. And 4) Counsel and educate patients with SCD, sickle cell trait, or other hemoglobinopathies in the Mobile area and Central Gulf Coast region.
Virtual Pediatric Hospital Home Page
The goal of the Virtual Pediatric Hospital digital library is to make the Internet a useful medical reference and health promotion tool for health care providers, patients, and families. Based at the Children's Hospital of Iowa, this site contains a digital library that delivers Continuing Education (CE) to health care providers, a wealth of information for families, and a kids' page of resources.
Vocational Rehabilitation
This is the website of the North Carolina Division of Vocational Rehabilitation. This division of the state's Department of Health and Human Services assists people with disabilities who have work-related needs or questions about their transition to adulthood. Contains descriptions of the various programs and services available, lists local offices with contact information, updates job listings, and has related links.
WebABLE!
Web site for disability-related internet resources. mission is to stimulate education, research and development of technologies that will ensure accessibility for people with disabilities using information systems and emerging technologies.
What is CP?
A homepage that gives general informatin about the characteristics of cerebral palsy, risk factors associated with the condition and general discussion of treatment options and approaches.
Wheelchair Net
Wheelchair Net is an Internet community providing free information and services on wheelchair technology, its improvement, and its successful application. WheelchairNet is a vehicle for assisting people in: 1) asking questions about wheelchair selection and use; linking to information about wheelchair products and services; and learning about and participating in wheelchair research projects.
Wheelchair Sports, USA
Under direction of the National Wheelchair Athletic Committee, Wheelchair Sports, USA organizes and governs wheelchair sports in the United States. This website gives qualifying standards, event information, rules, records and directories regarding wheelchair sports.
Wheelchairs Used as Seats in Motor Vehicles
These guidelines, including the Society of Automotive Engineers' Standards for wheelchairs used as seating systems in motor vehicles, are the recommended guidelines to ensure the safety of children and adults with mobility impairments.
Wintergreen Adaptive Skiing
WAS is a non-profit, 501(c)3 corporation whose mission is to teach the joys of alpine skiing to individuals with a disability. Set in the beautiful Blue Ridge Mountains of Virginia, WAS offers fun, exhilaration and the chance to enjoy the outdoors with family and friends to people of all ages and with every imaginable disability.
Wisconsin Assistive Technology Initiative
The Wisconsin Assistive Technology Initiative (WATI) seeks to make assistive technology devices and services more available to children. The WATI website includes links and material that can be helpful to residents of all states, not just those in Wisconsin. The assistive technology and art link is especially unique and interesting where parents and service providers can access software and assistive art products for children.
Wound, Ostomy and Continence Nurses Society
WOCN, an association of ET nurses, is a professional nursing society which supports its members by promoting educational, clinical, and research opportunities, to advance the practice and guide the delivery of expert health care to individuals with wounds, ostomies and incontinence.
Yahoo
A popular search engine
Yoga for the Special Child
This site supports the book and training programs of Sonia Somar, a woman who has developed a yoga program for children with special needs.
Zero to Three
ZERO TO THREE is a national non-profit charitable organization whose mission is to strengthen and support families, practitioners and communities to promote the healthy development of babies and toddlers. This website provides information about the organization, resources for parents and professionals, an events calendar, and more.
adam.com
adam.com is the leading online provider of health, medical, and wellness information. Our web site is the first and last destination for people who want quick, reliable answers to health questions. Keeping you, the consumer, healthy and knowledgeable is what we try to do every day. We have been working towards that end for the last ten years, building our library of encyclopedia articles, news stories, images, expert Q&A's and other resources. Our search engine finds text, graphics, and hyperlinks for common health topics, their clinical terms, symptoms, drugs, treatments, and related news stories.
allhealth.com
Whether you're looking for tips on healthy living, information on caring for a loved one, or help dealing with an ongoing medical concern, we can help you find solutions for your life. We are here to provide you with the most up-to-date information and support anywhere, so you can make informed decisions for yourself, your family and loved ones.
drkoop.com
drkoop.com is a consumer-focused interactive Web site which provides users with comprehensive healthcare information on a wide variety of subjects, as well as access to medical databases, other publications, real-time medical news, interactive communities, interactive tools and opportunities to purchase healthcare-related products and services online.
eHealthcare Association
TeHA, a non-profit organization, will enhance the Internet healthcare industry by serving as a unified voice for all stakeholders with the ultimate goal of improving the quality of care and the efficiency of the healthcare system by advancing the use of the Internet.
webMD.com
Healtheon/WebMD is the first end-to-end Internet healthcare company connecting physicians and consumers to each other and to the entire healthcare community. Our vision is to improve health and wellness around the world - by using the Internet to facilitate a new system for the delivery of healthcare. The result is a single, secure environment for all communications and transactions among physicians, consumers and healthcare institutions.

 
     
 

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