The Wake Area Telehealth Collaborative

Helping Children with Special Needs 
April 2009
In This Issue
Run, Walk & Roll Sponsors
Resource Fair participants
Safe Sleep Training
Wake County Services and Resources Webpage
WATCH Program Updates
Area Resources
Complete the Wake Smart Start Website Survey
PM&R Rehab Reader
Research and Resources
Abilitations Joins WATCH
Using the WATCH Listserv
Upcoming WATCH Professional Development Sessions
Green Tip
Fun at Marbles
A Tremendous Thanks to our current Run, Walk & Roll Sponsors

Abilitations Children's Therapy and Wellness Center

$500 Silver Level Sponsors

Dynamic Therapy for Kids & Jeff Moore Construction C.A.R.E.S 

$250 Bronze Level Sponsors
We also thank
 Whole Foods
 in Waverly Place for
their donation of fruit for after the race.

To become an event sponsor, contact Juliellen at 843.0427.
Thanks also to our current  Run, Walk & Roll and Wake LICC
 Resource Fair participants:
-The Raleigh CDSA
-Dynamic Therapy
 for Kids
-Abilitations Children's Therapy and Wellness Center
-Child Care
Services Association
-Protected Tomorrows
-Construction Cares
-Bounce Back Kids
-Wake Med Kraft Family YMCA
-New Voices
To be a Resource Fair participant just complete the application found at the Wake County LICC website


 have been busy in 2009!
There have been seven videoconference sessions held since our December newsletter. Four of these  were professional development sessions featuring the following topics:
-An Introduction to Mindfulness
-Modified Constraint Induced Therapy
-The Use of Advanced Muscle Stimulators
 -Routines Based Assessments for Premature Infants

The other videoconferences were held for networking, planning and administrative purposes.
A total of 113 people attended these sessions.  Evaluations show the average session's satisfaction score was 4.3 and the average comfort level's was a 4.6 out of 5.0. Those involved in the educational session all strongly agreed that the session provided them with new knowledge applicable to their work. 
For Wake County LICC Members

Come to a special infant safe sleep training just for attendees of the May LICC meeting.

LICC Members are invited to attend this free training offered by the North Carolina Healthy Start Foundation! 

 Marta Pirzadeh, North Carolina Infant Safe Sleep Campaign Coordinator, will discuss ways to promote infant safe sleep practices for babies at highest risk of SIDS in your community!

The two-hour training, Baby's Easy Safe Sleep Training (BESST), is a "Train-the-Trainer" workshop to increase SIDS risk reduction awareness and promote infant safe sleep practices.  You will receive an educational tool (flipchart), a baby doll, a sleep sack, a thermometer and a tote bag to assist in your trainings.

Remember, it's all free!
Nurses CEUs will be available (2.0 credit hours).

To register contact:
Marta at 919.828.1446 or email her at

The regular LICC meeting will follow this session from 11:00-12:00.
Wake County Services and Resources for Children Birth-Five Webpage TR
We now have 60 programs included in the Services and Resources webpage. 
Is your agency one of them? 
For more information or to obtain an enrollment form contact Juliellen at
ethan pic

WATCH  Program Updates

Pediatric Therapy Associates
is now offering a Salsa and Movement Class for kids.  The 5 week course will run from June 26-July 24th and will end with a recital on July 31st.  All classes will be held at the Lake Boone Trail office from 9:00-11:30.  The fee is $25. 

The class will incorporate movement therapy focusing on gross motor development, sensory integration, social interaction with peers, motor planning and basic fun. 

The class is led by a teacher and experienced therapist who volunteer to help the children excel.  To register or for more information call 781.4434.

Abilitations Children's Therapy and Wellness Center is offering a 6 week Summer Music Camp open to all children with special needs ages 5 and older.  The class will be held every Friday beginning June 19th-July 31st.  Class time begins at 11:00 and will be held in the office located off Raven Ridge Road.  The cost is $35.  Call 844.6611 to register. 

Wake County Area Resources and Information  
The Wake County Cerebral Palsy Support Group meets the second Tuesday of every month @ 7:00 pm at Michael Dean's Restaurant in Raleigh on Fall of Neuse.  Come for dessert, coffee, dinner or just to meet other mom's and dad's who understand your daily joys and struggles.  We meet in a private room and enjoy wonderful food and great conversation.  We welcome anyone regardless of their child's special needs diagnoses that is looking for a support home.  Contact Rachel Pack at 319.0286 with questions.

The Family Support Network of Wake County is offering a new family support series called  "Give & Take", led by Hal Shigley.  The sessions run from
May 5th - June 9th

Classes fill up quickly so if you know of  interested
parents please  encourage them to register soon.

 The series and childcare
are free.
  For more information contact

Rene' Morrison
Family Support Network/Wake County
919-662-4600 ext. 257

Dynamic Therapy for Kids is offering several summer classes for children with special needs including Music Therapy, Yoga and Movement, Handwriting and Social Skills Groups.  Call 363.5000 for specific information or to register. 
Dates and times are also listed on the TelAbility calendar

 Your Feedback Wanted

Wake County Smart Start is seeking feedback on their website content.  If you are a parent who has accessed the Wake County Smart Start Web site to find information, research, or local resources related to your child, please complete this very brief survey which can be accessed by clicking here.

Visit Our Sponsor
Many thanks to the John Rex Endowment for their continued support of the WATCH Program into 2010!
ethan picHave you heard about the Run, Walk & Roll-a-thon?
If not, you've probably not checked your email in the past month or been in the same room with me since December.  Just in case, let me update you and tell you about the many ways you can get involved in supporting this event. 
The Run, Walk & Roll-a-thon is scheduled for Saturday, May 30th from 8:30-12:30 at beautiful Crowder District Park in Apex, NC.  This event will be a great opportunity to get outside with friends, family and colleagues to support the TelAbility/WATCH Project and the other programs and services provided by Dr. Alexander through the UNC Department of Physical Medicine and Rehabilitation. 
The event will include a 5k run and a one mile walk and roll-a-thon.  There will be prizes for the 1st-3rd place finishers for the 5k and every child participating in either event will receive a medalWe will also be giving away a one week  vacation at Holden Beach at a wheel chair accessible beach home the week of June 20-27th to the team that raises the most money for the event.  Prizes will also be awardd to the largest and most creative teams.
In addition to the 5k and one miler, we will be holding a large resource fair, co-sponsored with the Wake County LICC.  This will be an opportunity for agencies, service providers and local business to share information on the range of services, supports, activities or products they provide for children (ages birth-18) with special needs and their families. This is your chance to inform the community about all you do to for the early intervention and special needs community.  There will be a DJ playing live music, activities for the children, and food vendors all there for your enjoyment.  
We are so excited about this event, but we need your help to make it successful.  Here's what you can do to help:
1-  Register as an individual or as a team.  Teams of 4 or more receive a $10 discount per person on the registration fee if they sign up before May 1st. Get your registration form here.
2-  Collect pledges to raise money to help support the TelAbility/WATCH Project.  Pledge forms can be dowloaded from the website.  Get your pledge form here.
3-  Become an event sponsor!  Sponsors who commit at a level over $100 will receive a free table at the Resource Fair.  Get sponsorship information and application here.
4-  Participate in the Resource Fair.  The cost is $25 for non-profit agencies and $100 for for profit  businesses. State agencies and non-income generating support or advocacy groups are free.  We want to have ALL the WATCH sites represented at the Resource Fair!!  Call me at 843.0427 for a Resource Fair application or get one from the Wake LICC website.
5-  Volunteer to help with event coordination prior to May 30th or volunteer to help on the day of the event.  Call me at 843.0427 to volunteer.
6-  Download the event flyer and post it in your agency and share it with friend and family.

If you have any questions or ideas for this event, please don't hesitate to call me at 843.0427.  We look forward to seeing you on the trail on May 30th!
Happy Spring Training,

ethan picDr. Alexander  and  UNC Pediatric Rehabilitation Goes Global
Dr. Alexander spent two weeks in Sydney, Australia participating in the  3rd International Cerebral Palsy Conference.  To read more about his trip check out this news story on the UNC Pediatric Rehabilitation website. 

Dr. Alexander will be presenting a videoconference session on what he learned in the near future.  Stay tuned for details and dates. 
WATCH Resources Update 
(From Lori Banks, Former CAP/C Coordinator for Wake and Johnston Counties) 

Change in case management agency for CAP/C
The contract between the Division of Medical Assistance (DMA) and Community Care of Wake and Johnston Counties (CCWJC) to provide case management for the Community Alternatives Program for Children (CAP/C) has not been renewed.  I am pleased to announce that RHA Howell Center will be the case management agency for CAP/C in both Wake County and Johnston County.
The transfer of active CAP/C participants as well as children on the waiting list in Johnston County will be effective on March 2, 2009.  All referrals for the CAP/C Program in Johnston County on and following March 2, 2009 should be made to Angel Harrell at (252) 566-9181.
The transfer of active CAP/C participants as well as children on the waiting list in Wake County will be effective on April 1, 2009.  All referrals for the CAP/C Program in Wake County on and following April 1, 2009 should be made to Karen Bowdle at (252) 566-9011.
You are encouraged to contact me at (919) 461-3999 or if you have any questions about this transfer.
Lori Banks, RN, CCM
Former CAP/C Coordinator
ethan pic
WATCH Welcomes Abilitations Children's Therapy and Wellness Center, LLC

In March, the WATCH Program welcomed a new practice to the collaborative.  Abilitations Children's Therapy and Wellness Center now has videoconferencing capabilities and will begin conducting videoclinics and consults with Dr. Alexander and their shared patients in April.  Abilitations is co-owned by Physical Therapists T.R. Goins and Jennifer Mock.  The staff also includes an Occupational Therapist and Nutrition Specialist.  Abilitations also offers several recreational and fun activities for children with special needs including a Spring Soccer League, Summer Music Camp, their Kool Kidz Klub and Infant Massage. 

We welcome Abilitations to our community and look forward to networking and exchanging resources and information with their practice. 

WATCH Listserv Questionsanna and units

The WATCH Listserv has continued to be an incredible resource to WATCH Members over the past several months.  To view any question and answer recently posted to the listserv simply type the words WATCH Question into the search box on the TelAbility website.  Links to all questions and answers will be available. 
Some current topics include:
-the difference between a developmental pediatrician and pediatric physiatrist
-Spanish speaking therapist who can work with children with behavior concerns
-Occupational Therapy Services available on Fridays in Wake County

Just a reminder that when you reply to the listserv or use the email address you are sending a message to the entire listserv group. 

We will strive to ensure that the listserv serves as a reliable and professional mode for sharing resources and information. 

Upcoming WATCH  Professional Development Sessions: 

WATCH Case Study Discussion
Topic: Serving Families Where One Parent has a Diagnosed Mental Illness
Date:  Thursday, April 23rd 1:00-2:30
Videoconference Host site locations: 
Community Partnerships and the Tammy Lynn Center
Beginning this month we will be starting a monthly case study video  conference session facilitated by a WATCH site on the topic of their choice. 
This months inaugural case study comes from the EI team at Community Partnerships.   Many of you may remember the WATCH list serv question about a month ago about providing resources for a family who had both a child with a special need
and a parent diagnosed with a mental illness.  The format of this session will include a confidential overview of the case, strategies that have been used to help the family and a question and answer time to share ideas and resources. 
We would like those with experience in mental health issues and experience in this area to participate.  I will get all handouts and information to participants by Monday, April 20th so everyone can come prepared with questions and resources. 
I thank CPI and Ashley Hedrick, in particular, for bringing this question to the WATCH network and for agreeing to lead our first case study conversation.  
To sign up to attend this session or to be a host site, please email me directly at 
Topic:  Helping Families Cope with the Early Diagnosis of a Special Need with their Child
This session is being offered as a collaborative effort of WATCH, The Wake County Young Children's Mental Health Collaborative and Wake AHEC. 
Date:  Wednesday, April 29th, 12:30-2:30
Videoconference Host Site Locations: 
The Raleigh CDSA, The Tammy Lynn Center, Community Partnerships and The TelAbility Office in Timberlyne
Description:  The diagnosis of a special need in a young child is a difficult and life altering event for every family member caring for that child.  How that news is delivered to a family, the relationships built between the family and members of the child's care team and the resources provided for that family has a tremendous impact on how well the family and child is able to navigate and succeed in the early intervention system and throughout their lives.  Recognizing that families continue this journey through several stages of their child's life, this session will focus on the continuum of coping.  By highlighting the different transition points a family experiences, this session will offer practitioners strategies to effectively communicate with families, build trusting and successful relationships, and martial the necessary resources to equip a family with the tools they may need to manage their child's care, leading to the best outcome for the child and family.
CEUs and Infant Toddler Credit will be offered for this session.  The cost for this session is  $10.  You must register through Wake AHEC to participate in this videoconference session. 

Topic:  Therapeutic Ambulatory Orthotic System (TAOS) Demonstration and Discussion
This session is being offered as a collaborative effort between WATCH, Libby Rogers, Regional PT Consultant and the Wilmington CDSA.
Date:  Thursday, April 30th, 10:30-1:00
Videoconference Host Site Location:
Pediatric Therapy Associates and the Wilmington CDSA 
Description:  The Taos is a new system developed by Sky Medical to help children with neurological disorders such as Cerebral Palsy gain access to an upright, hands free world.  This session will:
-provide a clear understanding of the role a Taos can play in a child's overall therapy plan
-show a variety of videos of children in using the Taos
-provide a hands on experience of fitting 2 new patients
-show a model of cooperation between orthotist, PT and manufacturer to enhance the success of utilizing this product
-provide a engaging environment open to questions and dialogue about the system 
CEUs will be offered for this course.  To register email Juliellen at
Green Tip of the Month

We received the following green tip from Mary Henson, Developmental Therapist at The Tammy Lynn Center for Developmental Disabilities.

"I have a comment to make in regards to the economy and the stimulus package that is being offered. I know a lot of funds will be cut in places, but if every facility can figure out how they could make their buildings more "green" they will be able to access a lot of funding that is supporting the creation of "green jobs"

Some examples might include:
-Build a community garden that the children can help water or weed
-Add solar panels
-Support the wildlife and plant life by providing more habitat, dwellings, structures, and recognition.
This website provides helpful hints for small businesses going green.  I hope this helps.  By doing these things and include them in our long range plans, maybe even grant writing will be easier. "

Thanks for the tip, Mary!  If anyone else has green tips or tips for managing these challenging economic time, send them my way! 
Marbles Family Fun Night 
for kids with special needs and their families!
Through a community wide collaborative, the museum will be open at the following dates and times specifically for children with special needs and their families. 
Thursday, April 16  5:30-8:00 pm
Thursday, July 9  5:30-8:00 pm
Thursday, October 8  5:30-8:00 pm
Tuesday, December 15  5:30-8:00 pm
You can find out more information about Family Fun Night and the Marble's exhibit's on the Marbles website.   
Marbles Kids' Museum is located at 201 E. Hargett Street, Raleigh. 

proudly partnering with:
Triangle Down Syndrome Network
Wake County Cerebral Palsy Support Group
Wake County LICC (Local Inter-Agency Coordinating Council)
Wake County SEPTA (Special Education PTA)

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