The WATCH Spring
Professional Development Videoconference
Series
-Autism Resources
Panel, Friday, May 2nd, 1:00-3:00
Join us to meet with several
representatives from local agencies as they
discuss the services they provide for children
with autism and their families. Some of the
agencies represented will include: The Mariposa
School, The Raleigh CDSA, Southeast Family
Services, Meredith College, and The NC Autism
Society. Videoconference locations are yet to be
determined. Please contact Juliellen Simpson-Vos
at jsimpvos@med.unc.edu to
register for this free session or to let us know
if your site would like to be a host
location.
-Take Time for Yourself:
Caring for the Caregiver, Friday, May 15th from
1:00-3:00
You spend so much time and energy taking care
of others. Come and learn how to take time
to care for yourself. Cara
O'Connell-Edwards, Ph.D and Assistant Professor in
the Department of Physical Medicine and Rehab at
UNC-CH will lead this refreshing and engaging
discussion. Contact Juliellen at jsimpvos@med.unc.edu to
register. We will need 3 video-conference
host locations.
-Using Assistive Technology to Spark
Communication, Literacy and Learning, Tuesday, May
20th form 2:00-4:00
This session, led by Gretchen Hanser, OTR/L,
and Karen Casey, SLP, will introduce participants
to the many ways assistive technology can meet the
developmental needs of children with
disabilities. This session will include
early intervention professionals from the
Greenville and Wilmington area, as well. Two
WATCH host sites are needed. Please
contact Juliellen at jsimpvos@med.unc.edu to be
a host site or to register.
- Caring for Premature Infants,
Friday, May 30th from 1:00-3:00
Join Dr. Nathalie Maitre, a NICU
Fellow at UNC-CH, two families, and the Wake
Med. Hospital to Home Intervention Team for a
comprehensive look at caring for premature
infants. Host sites for this session are yet to be
determined. Contact Juliellen at jsimpvos@med.unc.edu if
your agency would like to be a host site or to
register for this free session.
-Using the GMFM Assessment Tool,
Friday, June 6th from 1:00-3:00
See full description to the right in the
newsletter. Register with Juliellen at jsimpvos@med.unc.edu
to attend or be a host location.
-Cranial Sacral
Therapy, Friday June 13th,
1:00-3:00
Learn more about this therapy
approach from Tad Wanveer, LMBT, CST-D and
founder of the Cary Center CST. Host
sites yet to be determined. Contact
Juliellen at jsimpvos@med.unc.edu to
register.
-Save the Date: Friday,
June 20th from 1:00-3:00 for a session on Fetal
Alcohol Syndrom and it's Effects on Young
Children. Details to
come. |
WATCH
Numbers for February and
March
WATCH Members
were busy again during the months of February
and March, utilizing a number of WATCH
resources for a variety of purposes.
Videoconferencing was
utilized 5 times
in February and March.
Twice for videoclinics,
twice for educational purposes and
once for networking
purposes.
53 people
participated in these sessions. Evaluations
show the average satisfaction level scored
a 4.75 out of 5.0 and comfort level scored a 4.5
out of 5.0. Those involved in the
educational sessions all strongly agreed that the
sessions provided them with new knowledge
applicable to their work. The total mileage savings for these
5 videoconferences comes to
$1141.00!
The WATCH listserv was
also often used successfully to answer WATCH
Member questions and provide feedback for
future WATCH sessions. Questions
included:
-
information
on aquatics programs for children with
special needs
-
locating mental
health providers for children with specialized
concerns;
-
information sharing
about local support groups
-
requests for input
on Emergency Preparedness resources for children
with special needs
Thanks to you ALL for
your questions, input, timely responses, and
useful resources. YOU all are the reason
WATCH
works! |
Wake
County Services and Resources for Children
Birth-Five Webpage
We now have 42
programs included in the Services and
Resources webpage.
Is your agency one of
them?
For more information or to obtain
an enrollment form contact Juliellen
at jsimpvos@med.unc.edu.
|
WATCH
Program
Updates Community
Partnerships, Inc. will be
offering two Social and Sensory Summer PlayGroups
for Children Ages 3-6. The Raleigh Group
will be held every Wednesday, beginning June 18th
through August 13th from 9:30-11:00 at Hillyer
Memorial Church. The Wake Forest Group will
be held every Thursday, beginning June 19th
through August 14th from 10:00-11:30 at Hope
Lutheran Church. The cost before May
1st is $320.00. After May 1 it increases to
$350. Call 919.781.3616 ext.
235 to register or with
questions.
Developmental Therapy Associates
(DTA) is offering summer group
programs at both the Durham and Cary clinic
sites. In Cary, there will be two sessions
of Finger Fun a fine motor group
for preschoolers and a social
skills group for rising K and first
graders to develop turn taking and cooperative
play.
In Durham, there will be several
social skills groups for
children ages five to seven; another group for
adolescent teen girls and a third group for ages
seven to ten. Please contact DTA for additional
information: The Cary number
is 465-3966 and in Durham call
493-7002.
The
staff at TenderHealth Care has
created a team to walk for The March of
Dimes. They will be walking in support of
healthy babies on Saturday, April 19th. If
you'd like to support their efforts you can make a
donation by clicking this link. Many thanks!
Learning
Together, Inc. was selected as a location
by the Carolina RailHawks Soccer Team to have 2 of
their players serve during the off season.
RailHawks, Chris McClellan and Caleb Norkus worked
along side LT teachers, helping the children
achieve their goals. LT's Executive
Director, Nell Barnes said, " It's a wondering
enrichment for our program to have young, talented
athletes who want to invest their time and energy
working with the children!"
Learning
Together has also been chosen as a host
site for the launch of Ravenscroft's School First
Rung/Ethics and Leaderships Development Program
Nonprofit Internship. This summer internship
helps to serve unmet needs in the community and
encourages students to consider careers in the
nonprofit sector. Rising senior, Amand
Piltzer, will spend the summer working with the
children, aiding the Community and Child Mental
Health programs, and serving on committee
assignments.
White Plains Child Care
Center is pleased to welcome Terri
Fowler as their new Center Director.
Terri graduated from East Carolina
with a Bachelor degree in B-K Education and
received her Master's degree in B-K from
UNC-Greensboro. She worked
previously with WPCC from 2000-2003 before taking
a few years off to be home with her
children |
Upcoming
Events:
April 8th from
10:00-12:00
Wake County LICC Meeting and Summer Resource
Fair at Project Enlightenment
April 11th from
8:30-4:00
Wake AHEC- Finding the Right Communication
Strategy for Children on the Autism
Spectrum
April 18th from 9:00-11:00
Videoclinics at PTA
May 2nd from 1:00-3:00
WATCH Videoconference Autism
Resource Panel
May 9th from 8:30-4:00
Wake AHEC-Uses of Storytelling in Helping
Families with Young Children
May 16th from 1:00-3:00
WATCH Caring for the Caregiving
Videoconference Session
May 20th from 2:00-4:00
WATCH Assistive Technologies and
Augmentative Communication Videconference
Session
May 30th from 1:00-3:00
WATCH Caring for Premature Infants
Videoconference Session
June 6th from 1:00-3:00
WATCH CAN Child Videoconference
Session
For more information on any of these session
and for more professional development
opportunities check out the TelAbility
calendar. |
Visit Our
Sponsor
Many thanks to the John Rex
Endowment for their continued support of the
WATCH Program into
2010! |
|
Hello WATCH
Members!
As usual, there is A LOT of
news and information in this
newsletter. WATCH has always been
about finding easy and effective ways to
collaborate and share news. In a fun turn
of events over the past few months, TelAbility
and the WATCH Project as been the
subject of notable news.
In early February, TelAbility was mentioned
in the StarNewsOnline, a Wilmington area
publication, that ran a story on the rise and success of
telemedicine programs. Later that month,
we were also contacted by the John Rex
Endowment, our WATCH Project sponsor,
to be included as a feature program in their
Annual Progress Report. The theme of the
report being "collaboration". Several
WATCH Members, including T.R.
Goins at Pediatric Therapy
Associates and Katie
Miley at Tammy Lynn
Center helped in developing
and writing that story. We thank them
for their help! A copy of the John Rex
Annual Report, with the WATCH Story,
will be sent to all WATCH Sites within
the next month.
While it's nice to be recognized, what's
even better is that the recognition is a result
of everyone's efforts to make WATCH
work. So, once again we thank
you for your feedback, your
participation and your passion for this
work. It's the fuel that runs this
machine!
Happy reading, happy Spring!
Juliellen | |
Comments on the FDA's
Announcement about Botox
Some of you may be wondering
about the recent concerns regarding the use of
Botox in children with cerebral palsy.
Below are two links that can provide you with
more information:
From the United Cerebral
Palsy's Research and
Educational Foundation
|
"The Power of
K"
Videoconference
Review, Juliellen
Simpson-Vos, M.Ed
On Friday, March 28th, the
WATCH Project hosted a videoconference
session led by Eva Phillips and Amy Smith from
the NC Department of Public Instruction
on "The Power of K" Position
Paper. As the parent of a 5 year old,
about to start year round kindergarten on July
14th (!), I was particularly interested and
excited in this topic.
While my husband and I were visiting
kindergarten classrooms, I asked my daughter
what she wanted me to look for. In great
earnestness, my daughter said. "Mommy, make sure
it has dress ups!" You can imagine how
pleased we all were to find out, just last week,
that the school to which she was accepted
was the one that had a dress up area! Why
is that so important and what does it have to do
with The Power of K? What I love
about the position paper is that paints a
picture of a kindergarten environment in which I
can see my daughter both thriving and
enjoying.
The position paper provides a philosophical
and research based framework for developmentally
appropriate and inclusive kindergarten
classrooms. The session participants,
including educators from Project
Enlightenment, White Plains Children's Center,
and staff from Wake County Preschool
Services, spent a lively two hours
discussing the merits of the position paper, as
well as the challenges to putting it's message
into practice in all preschool and kindergarten
classrooms across the state. The position
paper aptly describes the multiple demands,
placed both on kindergarten educators and
children alike, in this age of testing and
accountability. Teachers are trapped
between what research says is best practice and
what "scripted curriculums" require. They
are faced with the challenges of children who
seem to know more (and are exposed to much
more) than the 5 years olds of our
generation, and yet who develop in the same
way. In order to provide these children
with all they need to thrive and succeed in
school, kindergarten classrooms require a long
list of mind-boggling resources including:
dedicated and knowledgeable educators and
administrators; support for children with
special needs; intentional interactions and
purposeful planning,;a variety of relevant
learning experiences;and authentic
assessments.
Amy and Eva spoke about the strategic,
grass roots efforts being made to spread the
word throughout North Carolina, to parents,
educators and administrators, alike.
A cohort of 36 kindergarten teachers
across NC are currently involved in a leadership
initiative to ensure classrooms are ready to
embrace children's diversity, individuality,
curiosity, sensitivities, and potential.
The position paper has been endorsed by the NC
State Board of Education and several educational
advocacy groups, who are also sharing it's
message and charge.
I now charge YOU with
reading the position paper (just click this link!).
When you are done, print it or bookmark the link
and pass it on to a parent, educator or EI
professional. Spread the word!
That's how change works, you
know! |
WATCH
Book
Review-by Beth
Arch, OTR/L, Raleigh CDSA
The Reflux
Book,
written by
Elizabeth Pulsifer
Anderson
The Reflux Book by Beth
Pulsifer-Anderson is a parent friendly guide to
navigating what can be a frustrating and
stressful experience for the entire family. With
over 17 years experience helping families learn
about and cope with children who are diagnosed
with gastroesophageal reflux, the author
emphasizes the importance of including medical
personnel on the treatment team while outlining
both basic and more complex concepts in a clear
and easily understood
fashion.
The
first section of the book discusses basic
concepts that are useful to caregivers and
professionals alike. These
topics include a chapter titled "Reflux 101"
which in layman's terms reviews normal digestion
and the causes of reflux and answers common
initial questions such as will my child outgrow
this condition? Other chapters go on to discuss
symptoms, diagnosing reflux, treatment options,
feeding techniques and medications. A
particular strength of this fifrst section are
the chapters devoted to family support,
discussing issues such as intensive care
parenting, parenting challenges and sleep
issues.
The author does a nice job of
incorporating true life stories and parent
commentary to support her views and
observations.
The
second section of the book focuses on more
advanced concepts faced while managing reflux,
particularly in severe cases or while treating
older children. This
section does an especially nice job of
explaining complex medical tests in an easily
understood manner. Other
topics include surgical and alternative
medicine approaches used in the management
of reflux. By offering knowledge, caregivers are
empowered to advocate for their child as they
navigate what can become a complicated medical
system.
Finally, at the end of the book is a
comprehensive list of resources for
professionals and parents including books,
websites, and national organizations. The
author herself is executive director of the
Pediatric Adolescent Gastroesophageal Reflux
Association and welcomes specific questions or
concerns through the website she manages,
www.reflux.org. As a pediatric
occupational therapist, I found the diagrams and
parent examples most helpful. After
reading through the medical management options I
feel better prepared to answer parent's
questions and help guide their search for
answers or assistance. I would
recommend this book to parents and professional
alike as a nice addition to their "toolbox" of
resources. |
Bridging the Social
Synapse
WATCH
Videoconference Review, by Nora Roehm, Community
Parnerships
Ms.
Rintoul's March 7th videoconference session was
designed as a follow up to her
presentation delivered on February 15th as
part of the Wake AHEC Mental Health
Series. A large number of the
videoconference participants were unable to
attend her original presentation, so the session
began with a brief overview. This was
actually very helpful for all participants, as
those who had attended her original presentation
benefited from the review. The discussion
revolved around examining attachment from a
neurobiological perspective. She discussed
the brain in terms of having three levels, brain
stem-controls basic survival skills such as
breathing, etc. /limbic system-processes sensory
information & is the "seat" of emotions /
cortex-controls higher level thinking &
problem solving skills. She suggested we,
as humans, communicate with infants & young
children on a limbic level. Because the
cortex of infants is not developed they relate
to the world through their limbic system by the
sensory information they take in. As
adults we interact with babies in ways that are
processed through the limbic system-use high
pitch speech, rock them, sing to them, use
exaggerated facial expressions, etc. This
was a very interesting way of looking at how
attachment occurs in the brain.
One of the fascinating ideas she talked
about was new research on something called
Mirror Neurons. This refers to some
research done with brain scans where one subject
watched another subject perform a task. It
turned out that the parts of the brain used to
perform the task were active in the subject who
was only watching. So the brain was being
stimulated even though it was not actually
performing the task itself. She stated
"some believe this is the biological basis for
imitation and empathy". It certainly makes
a compelling argument for using inclusive
environments!
Ms. Rintoul then discussed how secure
attachments lead to health development.
She laid out the concepts of the "secure base"
and "safe haven". The "secure base" is the
caregiver who is tuned into the child's emotions
and can act as a "cheerleader" to help the child
explore the world around him/her. The
"safe haven" concept refers to the ability for
the caregiver to be emotionally available to the
child and act as a "comfort zone" when the child
is upset. These two qualities help
facilitate secure attachments.
She ended the session by talking about
positive emotion and how it can foster
"flexibility, creativity, receptiveness to
others & learning" in young children (and
adults). However, negative emotion in a
child leads to survival behaviors such as
withdrawal, aggression, and defiance. She
stated when looking at problem behavior in
children it is important to deal with the
underlying emotion. It will be much more
effective in trying to solve the behavior
problem if you can deal with the emotions the
child is experiencing.
In the end, she quoted Ms. Jeree
Pawl-"How you are is as important as what you
do." This was an encouragement to us all
to continue to be genuine in our relationship
with the children we serve. This was an
excellent topic to discuss. The format of
the videoconference was wonderful in that it was
a smaller and more relaxed environment where we
could share our thoughts and questions.
|
Abstracts of Interest (March 2008),
Compiled by Dr. Alexander
The follow two abstracts come
from evidence-based articles about children with
special needs. These two topics were
chosen for this newsletter based upon recent
WATCH list serv questions and
discussions. Please let us know about
other research or literature reviews you'd like
to see in WATCH
Newsletters.
Systematic Review of Hyperbaric Oxygen
Therapy for Cerebral Palsy: The State of the
Evidence
Developmental Medicine and Child
Neurology, December 2007, Volume 49, pages
942-947
A systematic review of the evidence
was conducted on the benefits and adverse
effects of hyperbaric oxygen treatment (HBOT)
for cerebral palsy (CP). Studies of any HBOT
regimen in patients with CP were included except
for case reports and case series. Electronic
databases (e.g. MEDLINE, EMBASE), professional
society databases, and reference lists were
searched to identify studies. Study quality was
assessed using predefined criteria relevant to
the study design. Two randomized controlled
trials and four observational studies were
identified. Best evidence came from a randomized
controlled trial which found that HBOT at 1.75
atmospheres (atm) and 1.3atm of room air
resulted in similar improvements in motor
function (5-6%). Other outcomes also indicated
no difference between the HBOT and room air.
Observational studies reported improvements in
motor function to a similar degree. Other
evidence was insufficient to clarify the
benefits and/or adverse effects of HBOT for CP.
Both HBOT and pressurized room air resulted in
improvements in motor function compared with
baseline. Similar improvements were seen in the
observational studies. Children undergoing HBOT
were reported to experience adverse events,
including seizures and the need for ear pressure
equalization tube placement, but the incidence
was unclear. Future research is needed to
determine the efficacy of pressurized room air
or non-pressurized oxygen in equivalent amounts
by mask, compared with standard
treatments.
Therapeutic Effects of
Yoga for Children: A Systematic Review of
the Literature.
Pediatric Physical
Therapy. 20(1): 66-80, Spring
2008
Purpose:
We completed a systematic review of the
literature on the effect of yoga on quality of
life and physical outcome measures in the
pediatric population. We explored various
databases and inlcuded case-control and pilot
studies, cohort and randomized controlled trials
that examined yoga as an exercise intervention
for children.
Summary of Key
Points: Using the Sackett levels
of evidence, this article reviews the literature
on yoga as a complementary mind-body movement
therapy. We address the research through
three practice patterns according to the Guide
to Physical Therapist Practice and provide
considerations for the inclusion of yoga into
clinical practice.
Statement of
Conclusions and Recommendations for Clinical
Practice: The evidence shows
physiological benefits of yoga for the pediatric
population that may benefit children through the
rehabilitation process, but larger clinical
trials, including specific measures of quality
of life are necessary to provide definitive
evidence.
|
CanChild is coming!
Well, at least virtually! Remember back in July
when several of you attended the Standardized
Tests videconference and commented that you'd
love to talk with the developers of the GMFM
Assessment? Well here's your
chance!!
Mark your calendar for Friday, June 6th from
1-3pm for
an international video conference
program with Dianne Russel and Peter Rosenbaum
from CanChild Center for Childhood Disability
Research at McMaster University in Ontario,
Canada. Dianne and Peter will be
talking with us (from
Canada!) about the GMFM
and about their knowledge translation programs.
If you are not familiar with CanChild you might
want to visit their web site at
http://www.canchild.ca . It's full of great
information relevant for children and
families.
Later in the spring we will be
asking for those interested to register and to
submit topics or questions you would like
included in the discussion about the GMFM.
Thanks to all of you who participated in the
video conference on measurement last July for
suggesting that we set this up. It should be a
great program. |
Two Times the Fun!
April
18th Family Fun
Night
The Wake County Association for
the Education of Young Children invites you to
Family Fun Night at Marbles Kids Museum in
Raleigh (201 East Hargett Street). There will be
food, fun, door prizes and local resources
available. Cost is $5 for Wake AEYC Members and
their families. Cost for non-members and their
families is $10. Student fee is $5 with a photo
ID. Come and join us!
May
1st Family Fun Night for
kids with special needs and their
families!
Through a community wide collaborative, the
museum will be open one (1) evening a month
specifically for children with special needs and
their families.
The first 2 are scheduled for
Thur., May 1 and Mon. June 2 5:30-8:00 pm at
Marbles Kids' Museum, 201 E. Hargett Street,
Raleigh. Cost is $5 per person or $20 per
family.
For more information call The Arc
of Wake County at 832-2660 x100 or visit
www.marbleskidsmuseum.org
proudly partnering with: Triangle Down
Syndrome Network Wake County Cerebral Palsy
Support Group Wake County LICC (Local
Inter-Agency Coordinating Council) Wake
County SEPTA (Special Education PTA)
|
FPG
Autism Study
Toddlers Needed for Research
Study
Families of toddlers living within 100
miles of Chapel Hill are needed to participate
in an early intervention research study. The
intervention was studied in an earlier pilot
research project. Participants will include
parents and their toddlers under age 25 months
who have difficulty with social communication as
compared with other areas of development such as
gross motor. Parents will play an active role in
the home-based intervention which targets
nonverbal social-communication development, a
difficulty for toddlers who may show early risk
for autism. One goal of the intervention is to
build a foundation upon which verbal language
can develop. A diagnosis of autism is not
required and there is no cost to families. The
intervention is not intended to replace other
intervention the family may receive. Referrals
will be assessed for eligibility and eligible
participants will be accepted on a first come -
first served basis.
The Principal Investigator for this
project is Samuel L. Odom, Ph.D., Director of
the Frank Porter Graham Child Development
Institute. To refer potential participants, or to
find out more about this study, please
contact Martha_Lee@unc.edu. (Phone: 919-962-3982).
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