March 2011 TelAbility/WATCH Newsletter
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The Wake Area 
Telehealth Collaborative
Helping Children with Special Needs

Mar 5th, 2011


CARE Project Workshop
For parents of children with hearing loss.  This workshop discusses the many challenges and emotions families encounter after a hearing loss diagnosis.   The CARE Project brings both professionals and families together aiming to improve care and understanding.
Lunch and childcare are provided.
For more information contact Jude Williams at (919) 707-5633 or

Mar 5th, 2011


Need to talk about sex, death, divorce or another hard topic with a child? This "Parents on the Go" coffee forum is hosted by NC Parent Consultants, and is open to parents with children of all ages.
Cost:  $10.00 per person (at the door)
4904 Waters Edge Drive, Ste 151, Raleigh, NC 27606
How to Enroll:
Call 919-336-5407, or click here to be directed to NC Parent Consultants' website to enroll now.

Mar 9th, 2011


The Coffee Connection
Hosted by the Family Support Network of Wake County
Enjoy coffee, tea, and connections the 2nd Wednesday of every month between the hours of 9am and 11am at Starbucks, 3800 Lake Boone Trail, Raleigh.  For more information, please click here

Mar 11th, 2011


Support Group Meeting
Raleigh Christian Community Churcn, 7000 Destiny Dr., Raleigh.  Modular Building M401-403
Special Guest Dr. Glen Peterson, DC will discuss the importance of chiropractic care for individuals and the benefits for children with special needs.
Register by March 3rd if you plan on attending. 
For more information or to regfister, please call Roxanne at (919) 366-9589, Mary at (919) 873-1631, or email

Mar 12th, 2011


8th Annual
Prestonwood Country Club's Grand Ballroom
The night will include silent and live auctions, dinner and dancing.  All funds go towards Down Syndrome research.
For more information, or to purchase tickets online please visit Anna's Angels website

Mar 17th, 2011


Wake County Schools
Broughton High School
723 Saint Mary's Street
Raleigh 276505
Special Education information night for parents of children from Early Intervention through High School.  Sessions will include types of special education placement most appropriate for each child at all levels, and sessions for parents of children transitioning from Early Intervention to Preschool Services, as well as Preschool services transitioning to Kindergarten.
Registration begins at 6:30pm, sessions at 7pm.  For more information, please email Leslie Welch at

March 18th, 2011


FREE TelAbility/WATCH Multipoint Training:
Please see complete article to the right for details

Mar 18-19, 2011

This year's conference is a two day event featuring autism experts and authors Brenda Smith Myles and Dr. Stphen Shore.  The event will be held at the Hilton University Place Hotel in Charlotte.  For full details, please click here

Mar 19th, 2011


A necessary part of education, but does not have to cause familoy stress. This "Parents on the Go" coffee forum is hosted by NC Parent Consultants, and is open to parents with children of all ages.
Cost:  $10.00 per person (at the door)
4904 Waters Edge Drive, Ste 151, Raleigh, NC 27606
How to Enroll:
Call 919-336-5407, or click here to be directed to NC Parent Consultants' website to enroll now.

Mar 19th, 2011


Playgroup Meets
Science Museum, Raleigh.
Meet at the Science Musem in Raleigh by 10:15am.  Tour of the museum begins at 10:30am
Please RSVP no later than March 17th to Roxanne at (919) 366-9589, Mary at (919) 873-1731, or email
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 March 2011





TelAbility's 3rd Annual Run, Walk & Roll website is online!  Please visit to register for the event, start a team, sponsor a participant or make a donation.
Hope to see you at the event on May 14th, 2011 at Koka Booth Amphitheatre in Cary!
Duke Cord Blood Study Presentation...

by Nora Roehm, M.Ed., Program Coordinator TelAbility/WATCH


TelAbility had the privilege of hosting Duke researchers, Dr. Joanne Kurtzberg, Dr. Jessica Sun, & physical therapist Laura Case for a presentation on their current study using Cord Blood infusions in children with cerebral palsy to improve physical skills. 

They presented data for over 100 participants information on how cord blood has been used in treating genetic disorders and cancers in children for 10-20 years.  The first cord blood infusion was successfully performed in 1988 by a doctor in France to treat a young man with Franconi's anemia.  That patient was still alive & healthy after 18 years. 

We also learned that cord blood is currently being used to treat children with cancer & other genetic conditions such as Hurler's Syndrome.  However, when children use cord blood from a donor they must have intensive chemotherapy to ensure their body will not reject the donor's cord blood. 

The current study is being conducted at Duke with children 12 months to 6 years of age diagnosed with spastic cerebral palsy and who have had their own umbilical cord blood collected & banked upon their birth.  There are other criteria evaluated once the family contacts Dr. Sun. 

Here is what one participant, Jennifer Wells, a WCPSS Physical Therapist, had to say about the presentation:

"The TelAbility/WATCH Professional Development Videoconference Session on Cord blood usage afforded me an opportunity to hear researchers speak about an interesting treatment opportunity for children with Cerebral palsy."

"The presenters were quite knowledgeable and along with sharing about this research, they were able to field questions from the audience."

"I truly appreciate the effort that went into organizing and scheduling a conference like this as even though it was only about an hour in length, it was definitely convenient to be able to go to a location close to where I work and not have to drive to Duke Medical Center to hear these presenters."


"I was not aware that Cord blood could be utilized in this way and this has sparked my interest in this subject for not only children with Cerebral Palsy, but also how it may be of benefit to children with other types of disabilities."


We want to thank Dr. Kurtzberg, Dr. Sun and Laura Case for taking the time to inform and educate our community about this cutting edge study.  For more information on this study please contact Dr. Jessica Sun at
Did you Know...

All of TelAbility's free multipoint video trainings can be viewed online from our archives.  While you must be present at one of our training sites to receive credit hours, you can view them for informational purposes at:, and choose a title from the drop down menu.

TelAbility/WATCH Upcoming Free Multipoint Training...

Understanding Sensory Processing 

March 18th, 2011 1:00-2:30pm  

We are pleased to announce our next TelAbility videoconference offering on Friday March 18, 2011 from 1:00 pm-2:30 pm.   Ms. Dawn Solomon, OTR/L  will present the first in a three part series on Understanding Sensory Processing.   This first session will describe the underpinnings of sensory processing and how it affects our daily lives.  All of the sensory systems will be described in order to get a good foundation for understanding what happens when one or more systems are not functioning appropriately.

Dawn's second session in April will focus on the various sensory processing dysfunctions, what they look like and how to identify them in young children.  And the third session in May will offer activity suggestions to help children with various sensory processing difficulties. 
The following sites are hosting March's event:
The Raleigh CDSA:  319 Chapanoake Rd., Raleigh
The Wilington CDSA:  3311 Burnt Mill Dr., Wilmington
Smart Start:  1121 Situs Court, Ste 250, Raleigh
Abilitations:  11030 Raven Ridge Rd., Ste 101, Raleigh

This presentation is open to both professionals and parents. If you are interested in attending this session at one of our host sites, please email including your host site preference.

gency Profile...

The Raleigh Children's Developmental Services Agency (CDSA) 

by Marcia Mandel, Ph.D., Director, Children's Developmental Services Agency


The Raleigh Children's Developmental Services Agency (CDSA) is the lead agency for early intervention services provided through the North Carolina Infant Toddler Program (NC ITP) for children ages birth to three in Wake County who are at risk for, or who have developmental delays. The NC ITP is responsible for administering services under the federal law titled the Individual's with Disabilities Education Act. The Raleigh CDSA provides services locally, through its staff and a network of community based early intervention service providers, to help meet developmental outcomes for children and families in Wake County. The agency has a long history of providing services to young children in Wake County, beginning in 1973 as the Developmental Evaluation Center.


All children referred to, and enrolled in the Infant Toddler Program receive service coordination.  Early Intervention Service Coordinators (EISCs) support the family through a variety of activities, including: Ensuring the family understands their rights under the NC ITP, and developing an intervention plan (IFSP) which takes into account the family's resources and needs in supporting their child's development.  We then assist the family in accessing those supports, monitor those services, and help the family navigate the transition process from the program when services are no longer needed or the child turns three.


The CDSA evaluation team provides evaluations for the children referred to, and enrolled in the program, and consultation to service coordinators, CDSA service providers, and families. They participate in the development of the IFSP and are available for consultation throughout participation in the program. The members of the evaluation team include a pediatrician, audiologist, psychologist, speech language pathologist, clinical social worker, educational diagnostician, occupational therapist, and physical therapist. These initial evaluations determine eligibility for Infant Toddler Program services and provide assessments of the family's concerns, priorities, and resources; evaluation of the child's cognitive development, communication skills, fine and gross motor skills, adaptive skills, vision and hearing, and social and emotional development, as well as a review of medical information related to the child's development.  Each child's development is then closely monitored, and they may be referred for further evaluation as the child's developmental needs change.


Anyone can make a referral to the CDSA, and the process continues through direct contact with the family to ensure that they are in agreement. 

Children are frequently referred to the CDSA by their pediatricians, parents, and professionals with community agencies. 


We encourage anyone who has concerns about a child's development to make a referral to the Raleigh CDSA by calling 662-4600. 

...Bowling Tournament - April 9th from 10am to 2pm!

Hosted by Abilitations Children's Therapy to benefit the Sassafras All Children's Playground

Please click on the following link for complete details Bowl-a-Thon, and here for a copy of the sponsor sheet.


To register your team, please call (919) 844-6611, or email, or  There is a minimum pledge to play, but the goal is to raise as much money per team to benefit the playground.

Top teams will receive prizes!

Parent Resources...

The listings below are intended for informational purposes only.  TelAbility does not endorse any agency or organization.


Friday Night Friends 

Friday Night Friends is a free respite care program for families with special needs children at Newhope Church in Durham.  Elizabeth Gersuk is a fourth year resident with the dept of physical medicine and rehabilitation at UNC, and the founder of Friday Night Friends.  It is open to kids with special needs and their siblings.  The next Friday Night Friends is March 27, 2011.  For more information, please email


Parent Counseling at No Cost! 

The staff at NC Parent Consultants has joined with others to provide counseling for families with children birth through kindergarten at Project Enlightenment in Raleigh.  The services are paid for by Wake County Schools.

Qualifying risk factors related to income, family and/or child needs are necessary to access parent counseling services.  For more information visit Project Enlightenment's website at, or call (919) 856-7800


Social Skills Resources for Parents and Teachers

brought to you through Project Enlightenment

For a comprehensive list of resources available, please click here, or visit Project Enlightenment's website.


Advanced Seating and Mobility, Inc. 

Advanced Seating & Mobility, (ASM) is a Raleigh-based, locally operated durable medical equipment company serving eastern and central North Carolina.  Built on caring for and providing quality service and products to our customers, we specialize in accessibility products including a full range of mobility and rehab equipment from basic to highly complex, as well as custom home modifications. ASM has a team of RESNA-Certified Seating Specialists and Reimbursement Specialists in order to support your equipment and insurance/funding needs.

For detailed information on ASM and the equipment they carry, please visit their website at:


Shining Stars Pediatric Therapy Services

Move to Learn Program

Move to Learn is a drop off program instructed by a licensed Occupational Therapist and is a language based group for children between the ages of 2 and 4.  Focusing on the principles of sensory integration, each themed session will address motor, language, sensory, cognitive, social and emotional skills through music, movement, and hands on activities.  For compete details and dates, please click here.


Capitol City Speech Therapy

Mom's Morning Out

Need to get some grocery shopping done?  Capitol City Speech Therapy is here to help!

Capitol City Speech Therapy will be offering a Mom's Morning Out on Fridays from 9:00 - 11:00.  Bring your kids between the ages of 18 months and five years to our office on 141 Main Street, Fuquay Varina ready for two hours of crafts, story times, games and tons of fun.  Be sure to pack any diapers or a change of clothes that your child may need.  A charge of $20.00 per child will be accepted upon arrival with discounts available for multiple children ($15.00 for the second child, $10.00 for the third child, etc). 

Space is limited to eight children per Friday so please call ahead for reservations!

For more information, please click here.  


Exceptional Children's Assistance Center  

ECAC is a private non-profit parent organization committed to improving the lives and education of ALL children through a special emphasis on children with disabilities.


Parent Education Programs include:

The NC Parent Training and Information (PTI)

The NC Parent Information and Resource Center (PIRC)

The NC Family-to-Family Health Information Center (HIC)

NC State Improvement Project

Behavior and Reading Improvement Center (BRIC)

Bridging the Gap

For more information, please visit ECAC's website at the link above.

Noteworthy Article...

Language and the Brain: 

What Makes Us Human

February, 2011 Brain Briefings, published by the Society for Neuroscience. 


No other species on the planet uses language or writing - a mystery that remains unsolved even after thousands of years of research. Now neuroscientists are taking advantage of powerful new ways to peer into the brain to provide remarkable insights into this unique human ability.

Do you trip over your words, struggle to listen to a dinner companion in a noisy restaurant, or find it difficult to understand a foreign accent on TV? Help may be on the way. Using powerful new research tools, scientists have begun to unravel the long-standing mystery of how the human brain processes and understands speech.

In some ways, language is one of the oldest topics in human history, fascinating everyone from ancient philosophers to modern computer programmers. This is because language helps make us human. Although other animals communicate with one another, we are the only species to use complex speech and to record our messages through writing.

Giving to TelAbility...

telability logoAs we begin this New Year, you can recognize a child you serve, or a professional you admire by making a donation to TelAbility/WATCH on their behalf.

Send your gift, along with a few words about the child or professional to:


1101 Weaver Dairy Road, Suite 202

Chapel Hill, NC 27514

Checks can be made out to the UNC Department of Physical Medicine and Rehabilitation.  Include "TelAbility" in the memo line.

Thank you!