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This area provides selected resources that we feel will be of interest and/or service to the TelAbility community. Although our own expert staff did not develop these resources, TelAbility has reviewed them prior to their being added to this area. You can search this area to find materials on topics of interest to you and, as always, we welcome your assistance in suggesting other resources that you've found to be helpful or that you believe should be added. Send us feedback.

 
 

AAP Clinical Report on Assistive Technology

 

Source:

American Academy of Pediatrics
  

Description:

Prescribing Assistive Technology Systems: Focus on Children With Impaired Communication.
  
Download:Adobe Acrobat
  
 

Assessing the Health-Related Needs of Youth with Disabilities

 

Source:

NC Office on Disability and Health
  

Description:

This pamphlet summarizes findings from focus groups of people with disabilities and chronic health conditions making the transition to adulthood. (Spring 2000)
  
Download:Adobe Acrobat
  
 

Autism on the Seas

 

Source:

Autism on the Seas
  

Description:

?Autism on the Seas? provides cruising vacation options for Adults and Families dealing with Autism and related Disabilities.
  
Download:Program (com)
  
 

CAP/C Case Management

 

Source:

Woody's Mom, Inc.
  

Description:

The .pdf file below may be helpful in understanding some of the new benefits and services now offered to CAP/C recipients.
The generic version can be found on DMA's website at:http://www.dhhs.state.nc.us/dma
  
Download:File (woodysmom.org)
Download:Adobe Acrobat
  
 

CSHS Durable Medical Equipment Funding Guidelines 2005

 

Source:

NC Children's Special Health Services
  

Description:

An 18-page document listing policies, procedures, and resources to obtain funding to purchase DME (durable medical equipment) for children with special needs in North Carolina
  
Download:Microsoft Word
  
 

Caring for Your Child's Gastrostomy

 

Source:

UNC Hospitals
  

Description:

A video from the Carolina Center for Special Surgery for Children. This guide describes the ins and outs of caring for your child's g-tube and offers trouble shooting advice to improve gastrostomy feeding.
  
Download:Multimedia (wmv)
  
 

Caring for Your Child's Gastrostomy: Spanish Version

 

Source:

UNC Hospitals
  

Description:

Un video del centro de Carolina para la cirugia especial para los ni?os. Esta guia describe como cuidar para su g-tubo de child's y ofrece consejo de la investigacion de averias para mejorar la alimentacion del gastrostomy.
  
Download:Multimedia (wmv)
  
 

Deaflinx

 

Source:

Deaflinx
  

Description:

Deaf Linx is designed to be a one-stop shop for legal deaf cultural resources, American Sign Language (ASL) resources, deaf education, and deaf services. Health care, government assistance, real estate access, insurance, and travel also may create issues that uniquely affect deaf people and their families. There are many resources available here to help you find the information and programs that can greatly improve the deaf community, as well to help deaf individuals and their friends and family navigate all of the concerns that may arise in these areas. Whether you were born deaf, suffer from degenerative hearing, or are the parent or loved one of a deaf child, Deaf Linx has valuable information to help you find the information you are looking for.
  
Download:File (deaflinx.com/)
  
 

Decision Tree for Funding Positioning and Mobility Devices and Orthotics

 

Source:

Karen Haas, LPT
  

Description:

A step-by-step outline to help you determine which funding source to use for durable medical equipment.
  
Download:Microsoft Word
  
 

Disaster Preparedness for People With Disabilities

 

Source:

American Red Cross
  

Description:

Is it hurricaine season again? This 48-page booklet is designed for use by anyone who has a disability or who works with, lives with, or assists a person with a disability. Has information on possible disaster effects, assessing personal needs and abilities, suggestions about forming a personal support network, and fill-in-the-blank checklists. A good resource for young adults moving out of the house as they make the transition to adulthood.
  
Download:Adobe Acrobat
  
 

Early Infant Assessment Redefined

 

Source:

Pathways Awareness Foundation
  

Description:

Established in 1988, the Pathways Awareness Foundation is a not-for-profit organization dedicated to education for and about children with movement difficulties and physical challenges. The activities of the Foundation are based upon the expertise of the Pathways Medical Round Table, which is comprised of leading physicians, clinicians and lay advisors who are sensitive to the medical and emotional needs of the physically challenged, their families and/or caregivers. If you would like more information about the Pathways Awareness Foundation or services available in your area, please call toll free 1-800-955-CHILD or write to Pathways Awareness Foundation, 150 N. Michigan Ave., Suite 2100, Chicago, Illinois 60601
  
Download:Multimedia (ram)
  
 

Emergency Medical Information Form

 

Source:

American Academy of Pediatrics and American College of Emergency Physicians
  

Description:

A standardized 2 page form that, when completed by parents and/or their physician, lists the most important and helpful information needed by emergency medical personnel caring for a child with special needs. Copies of this form should be available at the child's home, daycare, and/or school and should be updated regularly.
  
Download:Adobe Acrobat
  
 

Esta Bien Mi Bebe?

 

Source:

Pathways Foundation
  

Description:

Spanish Version : Establecida en el ano 1988, la Fundacion de Entendimiento "El Sendero" es una organizacion no gubernamental dedicada a la educacion de y sobre los ni?os con dificultades del movimiento y retos fisicos. Las actividades de la fundacion estan basados en el juicio de la Mesa Redonda Medica "El Sendero", la cual esta compuesta de medicos, clinicos y consejeros publicos sobresalientes quienes estan sensibles a las necesidades medicas y emocionales de las personas con retos fisicos, sus familias y los que les cuidan. Su usted desea mas informacion acerca de la Fundacion de Entendimiento "El Sendero" o sobre los servicios disponibles en su area, por favor llame, sin tarifa, al 1-800-955-CHILD o escriba a Pathways Awareness Foundation, 150 N. Michigan Ave., Suite 2100, Chicago, Illinois 60601. ?Mi Bebe Esta Bien? esta posible en parte a traves de la fundacion de Entendimiento "El Sendero" y una subvencion del Ronald McDonald Children's Charities.
  
Download:Multimedia (ram)
  
 

Focus Group Report

 

Source:

The TelAbility Project
  

Description:

This may be found elsewhere on the site as well.
  
Download:Adobe Acrobat
  
 

Growing Up with Spina Bifida

 

Source:

NC Office on Disability and Health
  

Description:

This report summarizes the major findings of the recent NC spina bifida research study, "Quality of Life and Secondary Conditions in Individuals with Spina Bifida". Helpful for parents and teenagers with spina bifida who are making the transition to adulthhood.
  
Download:File (fpg.unc.edu/~ncodh)
Download:Adobe Acrobat
  
 

Guidelines for Prior Approval of Pediatric Mobility Systems by the North Carolina Children's Special Health Services Program

 

Source:

North Carolina Department of Health and Human Services, Division of Public Health, Women's and Children's Health Section
  

Description:

North Carolina Department of Health and Human Services, Division of Public Health, Women's and Children's Health Section - Guidelines for Prior Approval of Pediatric Mobility Systems by the North Carolina Children's Special Health Services Program
  
Download:Adobe Acrobat
  
 

How to Access CAP-MR/DD

 

Source:

North Carolina Council on Developmental Disabilities
  

Description:

A 48-page guide to North Carolina's Community Alternatives Program (CAP) for persons with mental retardation and developmental disabilities. Uses everyday terms to provide a description of the program and step by step instructions about how to apply for funds.
  
Download:File (nc-ddc.org/)
Download:Adobe Acrobat
  
 

Is My Baby OK?

 

Source:

Pathways Awareness Foundation
  

Description:

Established in 1988, the Pathways Awareness Foundation is a not-for-profit organization dedicated to education for and about children with movement difficulties and physical challenges. The activities of the Foundation are based upon the expertise of the Pathways Medical Round Table, which is comprised of leading physicians, clinicians and lay advisors who are sensitive to the medical and emotional needs of the physically challenged, their families and/or caregivers. If you would like more information about the Pathways Awareness Foundation or services available in your area, please call toll free 1-800-955-CHILD or write to Pathways Awareness Foundation, 150 N. Michigan Ave., Suite 2100, Chicago, Illinois 60601. Is My Baby OK? was made possible in part by the Pathways Awareness Foundation and a grant from the Ronald McDonald Children's Charities
  
Download:Multimedia (ram)
  
 

Latex Precaution List

 

Source:

The Spina Bifida Association of America
  

Description:

To help you learn more about how to prevent latex (natural rubber) allergies, this list describes latex containing products frequently found in the community and in the hospital and provides latex-free alternatives.
  
Download:File (sbaa.org/)
Download:Adobe Acrobat
  
 

NC Health Choice physician certification form

 

Source:

North Carolina Health Choice for Children
  

Description:

Children in the NC Health Choice Program meeting the legislative definition for special needs services must now be identified with this Physician Certification Form, signed by the diagnosing physician, if they need services above the core service package covered by the State Employee?s Health Plan. If you have more questions about this program , click on the link below or call 1-800-737-3028
  
Download:File (dhhs.state.nc.us/dma/cpcont.htm)
Download:Adobe Acrobat
  
 

North Carolina Children's Special Health Services Program - Covered DME list

 

Source:

North Carolina Department of Health and Human Services, Division of Public Health, Women's and Children's Health Section
  

Description:

North Carolina Department of Health and Human Services, Division of Public Health, Women's and Children's Health Section - Covered DME list
  
Download:Adobe Acrobat
  
 

North Carolina Recreation Resource Guide

 

Source:

NC Office on Disability and Health
  

Description:

This guide includes a listing of inclusive recreation facilities and opportunities in North Carolina for young adults with disabilities making the transition to adulthood. Resources include community, state, and regional recreation resources as well as national adapted sports and recreation organizations.
  
Download:File (fpg.unc.edu/~ncodh/index.htm)
Download:Adobe Acrobat
  
 

Obsessive-Compulsive Disorder: A Real Illness

 

Source:

National Institute of Mental Health
  

Description:

An easy to read handout on OCD from the National Institute of MentalHealth.
  
Download:Adobe Acrobat
  
 

Partners in Health Care

 

Source:

NC Office on Disability and Health
  

Description:

A one page handout providing tips on communicating with your health care provider. Good information for teenagers with disabilities making the transition to adult services.
  
Download:File (fpg.unc.edu/~ncodh/)
Download:Microsoft Word
  
 

Pediatric Gastrostomy Tubes and Appliances

 

Source:

Lynne Farber, RN, PNP - UNC Pediatric Surgery Department
  

Description:

An 18-page online manual with diagrams and pictures that teaches parents and providers all about pediatric g-tubes and g-buttons. Includes sections on surgical techniques, feeding instructions, oral care, and solutions to commonly encountered problems.
  
Download:Adobe Acrobat
  
 

Public Funding Options for Positioning and Mobility Devices

 

Source:

Karen Haas, MPH, PT
  

Description:

A quick reference guide for most information contained in the formal CSHS Guidelines packet on securing funds for durable medical equipment (DME) from public agencies.
  
Download:Microsoft Word
  
 

Sensory Processing: Strategies to Increase Engagement

 

Source:

Linn Wakeford, M.S., OTR/L
  

Description:

Included in this handout are some basic strategies to support engagement and participation for children (or adults!) with different patterns of sensory processing problems. General strategies and some specific examples are provided, along with the goal of intervention for each pattern, to help you think about how to provide support for individual children you may know.
  
Download:Adobe Acrobat
  
 

The Reflux Recorder

 

Source:

BabyGERD.com
  

Description:

A checklist of symptoms that are typical in children with gastroesophageal reflux disease (GERD).
  
Download:Program (com)
Download:Adobe Acrobat
  
 

Wake County LICC (Local Interagency Coordinating Council)

 

Source:

Wake County LICC
  

Description:

The Wake County LICC is a collaborative partnership among parents, caregivers, public agencies (such as the CDSA, Wake County Human Services and Wake County Public Schools), private and non-profit organizations, and interested community members to promote a coordinated and effective Early Intervention System in Wake County. The LICC wants and needs input from families. Please call 919-856-5847 or email wake.licc@gmail.com for more information.
  
Download:Adobe Acrobat
  
 

Your Smile

 

Source:

HMS School
  

Description:

Your Smile: Dental Care for Children with Cerebral Palsy. This video addresses dental care interventions that can help to maintain healthy mouths and bodies of children with cerebral palsy. Featuring advice from dentists and other health care providers. This video is being made available to you through the collaborative efforts of HMS School for Children with Cerebral Palsy located in Philadelphia, Pennsylvania and the Education and Training Division of Proctor and Gamble.
  
Download:Multimedia (ram)
  
 

 
     
 

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