September 2011 TelAbility/WATCH Newsletter
telability logo
The Wake Area 
Telehealth Collaborative
Helping Children with Special Needs
CALENDAR OF EVENTS

Sept 9th, 2011

1:00-2:30pm

FREE TelAbility/WATCH Multipoint Training:
Dealing with Difficult Families, Part I
Please see complete article to the right for details

Sept 23rd, 2011

1:00-2:30pm

FREE TelAbility/WATCH Multipoint Training:
Dealing with Difficult Families, Part II
Please see complete article to the right for details

Sept 7th, 2011

10:00am-12:00pm  


AUTISM SOCIETY of NC
Newly Diagnosed Workshop
This session will provide free information about resources and services that are available to you, and how to advocate for your child. 

505 Oberlin Rd, Suite 230, Raleigh

 

Call (919) 865-5093 for more information, or visit:   

http://www.autismsociety-nc.org


Sept 8th AND 22nd, 2011

10:30-11:30am


AUTISM SOCIETY of NC
Parent Discussion Group:
Problem Solving Around Challenging Behaviors

Dr. Marcus, former Clinical Director of Chapel Hill TEACCH. will lead a discussion centered on applying structured teaching to preempt and reduce challenging behaviors.  Parents are encouraged to share workable solutions addressing a variety of challenging behaviors they encounter.

Event will take place in the ground floor conference room at Chapel Hill TEACCH Center located in the UNC Autism Building. 

Due to the popularity of this group, please register in advance by calling Ruth Thomson at (919) 966-4699 or emailing her at ruth_thomson@med.unc.edu

There is no charge. 

Sept 10th, 2011

8:30am-2:00pm


ECAC IEP INSTITUTE 

ECAC, the Orange County SEPTA & the Family Advocacy Network team up to bring you this event.  Learn about each section of the IEP and how they work together to create a meaningful program that supports your child.  Learn about the IEP process, how to prepare effectively, tips and strategies for effective meetings.

 REGISTRATION DEADLINE:

Noon September 7th

Location:  Orange United Methodist Church

1220 Martin Luther King Jr. Blvd, Chapel Hill

Contact:  ECAC 1-800-962-6817 Margarete Campbell (X317) or Mary LaCorte (X310)

 

Sept 10th, 2011

10-11:30am 

NC PARENT CONSULTANTS:
Tips on Discipline
Come discuss ways to respond to misbehavior and increase your child's cooperation
September 10, 2011
10-11:30am
7009 Harps Mill Rd, Raleigh 27615
FREE
Visit:  http://www.ncparentconsultants.com for more information

Sept 14th, 2011

9:00-11:00am  


FAMILY SUPPORT NETWORK

Coffee Connection

Coffee, tea, and connections occurs the 2nd Wednesday of every month at Starbucks, 3800 Lake Boone Trail, Raleigh. 

Sept 15th, 2011

6:00-9:00pm 


TRIANGLE DOWN SYNDROME NETWORK
D.A.D.S. Monthly Meeting
Mission:  To support, through fellowship and action, the fathers and families of individuals with Down Syndrome.
Please contact the TDSN office at (919)803-0515 for more information 

Sept 15th, 2011

6:30-8:30pm  


FAMILY SUPPORT NETWORK 1915 b/c Waiver Information Meeting

 Location:  Brooks Avenue Church of Christ, 700 Brooks Avenue, Raleigh.

FSN will host a meeting for parents to get answers to questions about the 1915 b/c Waiver soon to be in effect in Wake Cty.  Guest speaker will be Julia Adams, Asst Director of Government Relations of the ARC of North Carolina.  If your child currently receives CAP services or Medicaid, you will find this meeting very informative.

For more information, please contact FSN at (919)662-4600, ext 257 

Sept 17th, 2011

10:00am-12:00pm 


TDSN G.R.A.N.D.S. MEETING 

Speakers:  Blythe Crissman, MS, CGC, and Katie Sheets, MS from the Dept of Pediatrics Division of Medical Genetics at Duke University Medical Center.

Please join our GRANDS group for a fruitful discussion about communicating a diagnosis of DS while giving a unique opportunity to share experiences and suggestions.
Please call Lana Calloway for location, information or to RSVP at (919)844-0005 

Sept 17th, 2011

10:30am


SPECIAL BLESSINGS:

Family Fun Day! 

Meeting at Historic Oak View Park in Raleigh for a tour of this beautiful piece of history.

 

Call (919) 366-9589, or visit:

 

www.specialblessingsinc.net

for more information.

Sept 20th, 2011

6:30-9:00pm 


TRIANGLE DOWN SYNDROME NETWORK
Mom's Night Out
The meal is potluck, just bring an appetizer, side dish or dessert to share.
**Babies are always welcome**
Please contact the TDSN office at (919)803-0515 for more information 

Sept 24th, 2011

9:30am  


KIDS TOGETHER PLAYGROUND 

at Marla Dorrel Park

1.4 Mile Walk to Benefit Kids Together and the Playground 

Registration begins at 9:30am, walk begins at 10:00am.  $15 per family, $5 per individual.  

Take the 1.4 mile walk along the greenway.  The course is wheelchair and stroller friendly, as is Kids Together Playground. 

 Refreshments, fitness activities, medals and prizes await participants at the walk's end.  Awards for coolest shoes, funniest hat and snazziest wheels.  Do your decorating at home or stop by our decorating table prior to the walk.  Awards ceremony at 11:00am, entertainment at 11:15.

 

Rain date, Sunday Sept 25 1:30pm.  

To find out more visit:  www.kidstogethercary.org.


Sept 25th, 2011

6:00-8:00pm   


NORTH CAROLINA TRIANGLE APRAXIA NETWORK 

Support Meeting

The Aspen Center, 4328 Bland Rd, Raleigh.

 Guest Speaker:   

Lisa Smith, MACCC/SLP,  

Director of The Aspen Center

The presentation will cover the importance of early intervention and the need for multidisciplinary and multi-modality approaches.  Information on the preschool program designed originally for children with Apraxia of Speech will be provided.  Lisa will discuss the dynamic of school for increased opportunities and share information about the benefits of social skills groups.

Childcare/activities will be provided.

Please visit:

www.apraxia-kids-nc.webs.com for more information.  


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 September 2011
WE ARE NOW ON FACEBOOK...
YES, we have joined FACEBOOK! 

Please visit our site at the link below and let us know what you think! 

 

In creating this page, we hope to offer yet another avenue through which to collaborate, share information and resources, and stay connected!

 

"LIKE" us and not only stay up to date on the latest news, events, and workshops relating to children with both physical and developmental disabilities, but post and share your own!  Whether it is an upcoming event, an interesting article, or a question which needs answering... Share away!

 
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Did you Know...

All of TelAbility's free multipoint video trainings are archived, and can be viewed any time on our website, telability.org under the "RESOURCES", then "EDUCATION" tabs.  Simply click on the session you wish to view.

TelAbility/WATCH Upcoming Free Multipoint Trainings...  SEPTEMBER - a 2 Part Series
Side Note: 

If you are not yet on our listserv, but wish to be added in order to keep informed about upcoming trainings and events, please email sorourke@med.unc.edu


WORKING WITH DIFFICULT FAMILIES 

Presented by Nancy Brake, Parent Education Facilitator in Child Welfare Department of Wake County Human Services.

  

PART I
September 9th, 2011, 1:00-2:30pm    

Part I of this series will help define family-centered practice and aid in the understanding of some of its basic principles.  You will gain insight in to barriers in thinking that may block successful relationship building.

PART II       

****REGISTRATION NOT OPEN YET - AN INVITATION TO REGISTER WILL GO OUT ON OUR LISTSERV CLOSER TO THE DATE***

September 23rd, 2011, 1:00-2:30pm
Part II of this series will take scenarios offered at the end of the first session and use them to illustrate family-centered principles.  You will see family-centered practice in action and understand why other approaches may have failed.

Following are the Host Locations for this Series: 

Smart Start - 4901 Waters Edge Dr, Ste 101, Raleigh 
Tammy Lynn Center - 739 Chappell Dr., Raleigh
Raleigh CDSA - 319 Chapanoke Road, Raleigh
Wilmington CDSA - 311 Burnt Mill Road, Wilmington
Pediatric Therapy Associates - 1120 SE Cary Pkwy, Ste 200, Cary 
 

This series is open to both professionals and parents. IT Credits will be offered. If you are interested in attending this session at one of our host sites, please email sorourke@med.unc.edu  and include your host site preference. 

 

A Review of Our August Presentation: 

A Comprehensive Approach to Neuromuscular Disorders...

Presented by Dr. Joshua Alexander, MD   


Thank you to Dr. Alexander for presenting a fantastic workshop on lower motor neuron muscular disorders.  If you were not able to attend the video conference training on August 5 then I highly encourage you to watch it in the archived footage at our website, http://www.telability.org/resources/education.pl.    The presentation can be found under the "Featured Materials" tab.  Even if you don't have a child or work with a child who has low tone due to a lower motor neuron disorder,  it was very interesting to learn about many different causes of low muscle tone. 
Dr. Alexander did a great job of explaining complicated anatomy & physiology in a clear and interesting manner so that we could all understand.  He explained the difference between upper motor neuron impairments that stem from the brain or spinal cord (cerebral palsy or spinal cord injuries) and lower motor neuron impairments that originate in the area where the nerves leave the spinal cord & progress down to the muscles. He described four different areas that could be affected (anterior horn cell, nerve, nerve/muscle junction and muscle fiber) that would contribute to low muscle tone. After understanding how low tone can occur, he discussed important considerations in treating & managing lower motor neuron disorders in children. 
Thank you to all the host sites for opening up your conference rooms-Abilitations Child Therapy & Wellness Center, Wake County Smart Start, Tammy Lynn Center, Raleigh CDSA & Wilmington CDSA.   Feedback from some of the participants included, "Great topic! I learned a lot!", "Wonderful knowledge given", "A lot of good information given-good salient review of different LMN disorders." 
 You can find Dr. Alexander's power point handout on the TelAbility website at http://www.telability.org/resources/handouts.pl.  The presentation is the first listed. 
 
Noteworthy...

Sensory-Friendly Entertainment Coming to Broadway  

By Shaun Heasley, August 17, 2011    

Autism-friendly screenings have become a staple at movie theaters in recent years. Now a nonprofit group is taking the concept to Broadway. 

 

The Theatre Development Fund - which works to make theater accessible to all - said Wednesday it will host an autism-friendly performance of Disney's "The Lion King" Oct. 2 at Broadway's Minskoff Theatre as part of a pilot initiative.
The special show will feature adjustments to accommodate sensory issues that audience members may have. Specifically, the cast is working to minimize surprise noises and the use of strobe lights.

 

During the performance, the theater will be staffed by autism experts and feature designated "quiet areas" for anyone who needs a break, organizers said.

 

What's more, the group is offering a downloadable social story to prepare theatergoers for the experience.
The autism-friendly performance will mark a first for Broadway.

 

"Our goal is to be as inclusive as possible, welcoming families with children and adults on the autism spectrum," said Lisa Carling, director of accessibility programs at the Theatre Development Fund. "No judgments - just united support in making the theater experience as enjoyable as possible for its audience."

 

Tickets for the show are nearly sold out after word spread through New York-area schools and autism groups. If successful, however, there could be more to come, organizers said.

 

Written for Disability Scoop
http://www.disabilityscoop.com/2011/08/17/sensory-friendly-broadway/13762/
  
Parent Resources...

The listings below are intended for informational purposes only.  TelAbility does not endorse any agency or organization.

  

Carolina Mobility & Seating 

http://www.carolinamobility.com/

Specializing in pediatric mobility and seating.  Carolina Mobility and Seating serves Eastern and Central North Carolina.  They supply manual and power wheelchairs, positioning strollers, seating and positioning systems, standing aids, walking aids, bath and toiletry, and many other items.  

They are also a certified repair center with professionally trained technicians and an extensive parts inventory. 

 

Level Four Pediatric Cranial Designs

http://www.levelfour.us.com/

A full service orthotic and prosthetic clinic, literally treating children from head to toe; including use of the Starscanner for cranial remolding orthoses.  For more information, please visit their website at http://www.levelfour.us.com/.

 

SmartEd Services

TAP*it technology

SmartEd works with schools providing classroom technology designed to provide accessibility to all students.  TAP*it allows for a stimulating learning environment using multiple senses no matter the ability level of the student.  Please click here for more information about this remarkable technology.

  

Social Skills Resources for Parents and Teachers

brought to you through Project Enlightenment

For a comprehensive list of resources available, please click here, or visit Project Enlightenment's website.

  

Shining Stars Pediatric Therapy Services

Move to Learn Program

Move to Learn is a drop off program instructed by a licensed Occupational Therapist and is a language based group for children between the ages of 2 and 4.  Focusing on the principles of sensory integration, each themed session will address motor, language, sensory, cognitive, social and emotional skills through music, movement, and hands on activities.  For compete details and dates, please click here.

  

Capitol City Speech Therapy

http://www.capitolcityspeechtherapy.com/

Mom's Morning Out

Need to get some grocery shopping done?  Capitol City Speech Therapy is here to help!

Capitol City Speech Therapy will be offering a Mom's Morning Out on Fridays from 9:00 - 11:00.  Bring your kids between the ages of 18 months and five years to our office on 141 Main Street, Fuquay Varina ready for two hours of crafts, story times, games and tons of fun.  Be sure to pack any diapers or a change of clothes that your child may need.  A charge of $20.00 per child will be accepted upon arrival with discounts available for multiple children ($15.00 for the second child, $10.00 for the third child, etc). 

Space is limited to eight children per Friday so please call ahead for reservations!

For more information, please click here.  

 

Exceptional Children's Assistance Center

http://ecac-parentcenter.org/  

ECAC is a private non-profit parent organization committed to improving the lives and education of ALL children through a special emphasis on children with disabilities.

  

Parent Education Programs include:

The NC Parent Training and Information (PTI)

The NC Parent Information and Resource Center (PIRC)

The NC Family-to-Family Health Information Center (HIC)

NC State Improvement Project

Behavior and Reading Improvement Center (BRIC)

Bridging the Gap

For more information, please visit ECAC's website at the link above.

Giving to TelAbility...

telability logoYou can recognize a child you serve, or a professional you admire by making a donation to TelAbility/WATCH on their behalf.

Send your gift, along with a few words about the child or professional to:

TelAbility

1101 Weaver Dairy Road, Suite 202

Chapel Hill, NC 27514

Checks can be made out to the UNC Department of Physical Medicine and Rehabilitation.  Include "TelAbility" in the memo line.

Thank you!