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A FEW WORDS FROM 2011 RWR PARTICIPANTS
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RACHEL PACK
TEAM TRISTAN ROCK STAR
Our entire family looks forward to race day! It is a magical time and we are honored to be a part of it.
Dr. Alexander is an excellent doctor and an amazing person.
He has been a blessing and an asset to my family and the special needs community.
We are already counting down to next year's race day!
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CHRIS HRNICEK
WCPSS PT
The TelAbility Run, Walk & Roll was a great event - well organized and held in a beautiful setting! The path around the lake was paved and perfect for the walking event.
It was great to see the enthusiasm of everyone who was participating for such a worthy cause!
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July 8th, 2011
10-11:30am
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FREE TelAbility/WATCH Multipoint Training:
DEALING WITH BEHAVIORAL ISSUES IN CHILDREN
Please see complete article to the right for details
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July 9th, 2011
10:00am-12:00pm
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TDSN Support Meeting
Future Planning: Financial, Special Needs Trusts, Wills...
White Plains United Methodist Church, 313 SE Maynard Rd, Cary.
Sean Godwin and Bill Weidner of The Piedmont Carolinas Group will speak on planning for the care of your child with special needs.
The support meeting is open to any family of children with special needs and is not limited to members of the Triangle Down Syndrome Network, and the information will not be specific to Down Syndrome.
For more information, please contact TDSN at (919) 803-0515
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July 13th, 2011
9:00-11:00am
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Coffee Connection
sponsored by the Family Support Network of Wake County.
The 2nd Wednesday of every month at Starbucks, 3800 Lake Boone Trail, Raleigh. You are welcome to come for all or part of the time.
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July 15th, 2011
8:30am-12:00pm
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Compression Bracing 101
A Complimentary Informal SPIO Presentation
Presented by Darla Hunt at Pediatric Therapy Associates, 1120 SE Cary Parkway, #200, Cary.
This is a free presentation and will cover the history of SPIO, the various types of SPIO systems and indications for their use. You will become familiar with various diagnoses which respond positively to the use of flexible compression and gain knowledge of the combined use of different dynamic orthotic systems to improve functional motor control.
Please contact Brian Gentry at (919) 562-9941 or bgentry@pedtherapy.com for more information or to RSVP.
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July 15th, 2011
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The Charlotte Knights Autism Awareness Night
The Knights, a triple A affiliate of the Chicago White Sox will play the Louisville Bats, an affiliate of the Cincinnati Reds at the Knights stadium in Rock Hill.
The Autism Society of NC and the SC Autism Society will provide information to fans, and special seating will be available.
Tickets for the game will be available soon through the team website.
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July 17th, 2011
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Serena's Song Hot Air Balloon Rides - Raleigh
The world's first wheelchair accessible hot air balloon will return to Raleigh July 14th through July 17th. Serena's Song will offer free tethered rides to individuals with disabilities at Spring Forest Road Park, located at 4203 Spring Forest Rd off of Capital Blvd.
Rides will be given from 6am-9am and from 5:30pm-8:30pm, weather permitting. They will be provided on a first-come, first-serve basis with a priority given to children who use wheelchairs or have mobility impairments. A clown will also be on hand to entertain families waiting to ride.
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July 21st, 2011
5-8:00pm | | |
Family Fun Night for Kids with Special Needs
Marbles Kids Museum
201 East Hargett St, Raleigh
An evening of museum adventure for kids 12 and under with special needs, and their families. This after-hours event will allow the kids to experience the museum in a more calm, less crowded environment.
The event is free.
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July 22ND, 2011
1-2:30pm
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FREE TelAbility/WATCH Multipoint Training:
PROVIDING THERAPY IN NATURAL ENVIRONMENTS
Please see complete article to the right for details
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| THE 2011 RUN, WALK & ROLL IN PICTURES... | | |
Pictures by Melissa Hayes,
Double Exposure Photography
CLICK HERE TO VIEW OUR 2011 RWR ALBUM
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A Note from Dr. Alexander...
| |  2011 RUN, WALK & ROLL
Dear Run, Walk, and Rollers,
I'm not sure who coined the phrase "Third time's the Charm", but that would be an apt description of last month's 3rd Annual Run, Walk and Roll.
Okay, I'll admit that those who had to make their way up the hill during the first leg of the 5K run might not have been thinking "Why, this is quite charming!" as their legs and hearts propelled them up the steep incline.
But "charming" is certainly a word I'd use to describe the wonderful walk we shared around the lake on a beautiful spring day. It's a word I'd use to convey the vibe I felt watching parents and children playing together on the green amphitheatre lawn. It's a word I'd use to describe the feeling of togetherness that was evident everywhere as children, family members and area professionals met with each other to share and enjoy being a part of our greater community.
I heard may "Ooohs", "Ahhs", and giggles as attendees were charmed by the imaginative costumes that teams wore in support of their child or organization. I saw tired runners charmed by the applause of the volunteers and family members who lined the road back into the park. Even the most fatigued participants picked up their pace as they felt strengthened by the crowd. And there were many who were charmed as they listened to Chris Hendricks share his music and his example on stage.
It's not common that a venue can be large and charming at the same time, but that's the feedback we got on our move to the roomier (and no less charming) Koka Booth Amphitheatre. The response was so positive from vendors and participants that we'll work to return there again next year.
And what about next year? TelAbility's grant support to develop and maintain the Wake Area Telehealth Collaborative Helping children with special needs (WATCH) has ended, but, thanks in part to the funds raised at this year's RWR, we will continue our programming as we search for other financial support. And the 4th Annual Run, Walk and Roll? We're already taking stock of the lessons learned from our success this year and will use them to have an even better event in 2012.
Hope to See You There.
Joshua Alexander, MD
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| Did you Know... | | |
All of TelAbility's free multipoint video trainings are archived, and can be viewed any time on our website, telability.org under the "RESOURCES", then "EDUCATION" tabs. Simply click on the session you wish to view. |
TelAbility/WATCH Upcoming Free Multipoint Trainings... JULY
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Dealing with Behavioral Issues in Children
July 8th, 2011 10-11:30am
Below is an outline of our next training on dealing with behavioral issues in children, taking place on July 8th from 10-11:30.
Dr. Kristen Wynns from Wynns Family Psychology will be presenting a workshop on dealing with behavior issues in children. She will discuss how to handle behavior issues in typical children as well as children with special needs. She will introduce her five steps to taking back control with children. Participants are encouraged to bring issues they would like to discuss.
Following are the host locations:
Smart Start - 4901 Waters Edge Dr, Ste 101, Raleigh **THIS IS A NEW ADDRESS FOR SMART START**
Tammy Lynn Center - 739 Chappell Dr., Raleigh
TelAbility Office in Chapel Hill - 1101 Weaver Dairy Rd, Ste 202, Chapel Hill
This presentation is open to both professionals and parents. If you are interested in attending this session at one of our host sites, please email sorourke@med.unc.edu and include your host site preference.
Providing Therapy in Natural Environments
July 22th, 2011 1-2:30pm
Below is an outline of our 22nd July training on Providing Therapy in Natural Environments, taking place on July 22th from 1-2:30pm.
THIS WORKSHOP IS NOT YET OPEN FOR REGISTRATION. AN INVITATION TO REGISTER WILL GO OUT VIA THE WATCH LISTSERV WHEN REGISTRATION OPENS
Nora Roehm, developmental therapist & TelAbility program coordinator, will lead a discussion & give ideas on how to provide therapy in natural settings.
Topics addressed will include a description of "Natural Environments" per Part C of the IDEA, how to include siblings or peers in the session, and how to be a facilitator in development & collaboration with parents or caregivers.
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| Noteworthy Web Resource... | | |
Assistive Tech Web Resource: Tots 'n Tech
http://tnt.asu.edu/home
The Tots 'n Tech Research Institute is an inter-university collaboration between Thomas Jefferson University, Philadelphia and Arizona State University, Tempe. Tots 'n Tech's mission is to provide up-to-date information and resources about adaptations, including assistive technology, to use with infants and toddlers for states, Early Intervention providers of all disciplines, and families across the country. In order to achieve this mission, Tots 'nTech provides technical assistance to states to help them enhance the use of adaptations with infants and toddlers and conducts a national research program about use of adaptations and assistive technology.
It began as a research institute to carry out various studies to identify the prevalence and use of assistive technology with infants and toddlers. Over a 5 year period, Tots 'n Tech conducted numerous national studies with states, providers, and families to identify the how assistive tech was used, the types of devices used, and the timing of use. Tots 'n Tech also studied successful states to identify what characteristics supported families and providers in their use of assistive tech with infants and toddlers and developed a self-assessment instrument for states, programs, and agencies to use to identify areas in which to place resources or activities in order to optimize assistive tech use with infants and toddlers. They are continuing their research emphasis but are now working with states to measure the outcomes of various types of professional development and other supports used to increase the use of assistive tech in Part C programs nationally.
Tots 'n Tech provides technical assistance to states, providers, and families to help support them in enhancing children's participation in activities and routines.
For more information and resources, please visit the Tot's 'n Tech website at http://tnt.asu.edu/home. |
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| Parent Resources... | | |
The listings below are intended for informational purposes only. TelAbility does not endorse any agency or organization.
Free Make & Take Classes at AC Moore in Cary
www.acmoore.com Each Wednesday from June 15th through August 31st, kids ages 4 and up can visit any AC Moore store, no reservations necessary, from 3pm-5pm and make their own age-appropriate craft to take home for free while supplies last. The Cary location is at 429 Crossroads Plaza, Cary 27518.
Level Four Pediatric Crainal Designs http://www.levelfour.us.com/ A full service orthotic and prosthetic clinic, literally treating children from head to toe; including use of the Starscanner for cranial remolding orthoses. For more information, please visit their website at http://www.levelfour.us.com/. SmartEd Services TAP*it technology SmartEd works with schools providing classroom technology designed to provide accessibility to all students. TAP*it allows for a stimulating learning environment using multiple senses no matter the ability level of the student. Please click here for more information about this remarkable technology. Social Skills Resources for Parents and Teachers brought to you through Project Enlightenment For a comprehensive list of resources available, please click here, or visit Project Enlightenment's website.
Advanced Seating and Mobility, Inc.
www.seating-mobility.com
Advanced Seating & Mobility, (ASM) is a Raleigh-based, locally operated durable medical equipment company serving eastern and central North Carolina. We specialize in accessibility products including a full range of mobility and rehab equipment from basic to highly complex, as well as custom home modifications. ASM has a team of RESNA-Certified Seating Specialists and Reimbursement Specialists in order to support your equipment and insurance/funding needs.
For detailed information on ASM and the equipment they carry, please visit their website at: www.seating-mobility.com
Shining Stars Pediatric Therapy Services Move to Learn Program Move to Learn is a drop off program instructed by a licensed Occupational Therapist and is a language based group for children between the ages of 2 and 4. Focusing on the principles of sensory integration, each themed session will address motor, language, sensory, cognitive, social and emotional skills through music, movement, and hands on activities. For compete details and dates, please click here. Capitol City Speech Therapy
http://www.capitolcityspeechtherapy.com/
Mom's Morning Out!
Need to get some grocery shopping done? Capitol City Speech Therapy is here to help!
Capitol City Speech Therapy will be offering a Mom's Morning Out on Fridays from 9:00 - 11:00. Bring your kids between the ages of 18 months and five years to our office on 141 Main Street, Fuquay Varina ready for two hours of crafts, story times, games and tons of fun. Be sure to pack any diapers or a change of clothes that your child may need. A charge of $20.00 per child will be accepted upon arrival with discounts available for multiple children ($15.00 for the second child, $10.00 for the third child, etc).
Space is limited to eight children per Friday so please call ahead for reservations!
For more information, please click here.
Exceptional Children's Assistance Center
http://ecac-parentcenter.org/
ECAC is a private non-profit parent organization committed to improving the lives and education of ALL children through a special emphasis on children with disabilities.
Parent Education Programs include:
The NC Parent Training and Information (PTI)
The NC Parent Information and Resource Center (PIRC)
The NC Family-to-Family Health Information Center (HIC)
NC State Improvement Project
Behavior and Reading Improvement Center (BRIC)
Bridging the Gap
For more information, please visit ECAC's website at the link above.
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| Giving to TelAbility... | | |
 You can recognize a child you serve, or a professional you admire by making a donation to TelAbility/WATCH on their behalf.
Send your gift, along with a few words about the child or professional to:
TelAbility
1101 Weaver Dairy Road, Suite 202
Chapel Hill, NC 27514
Checks can be made out to the UNC Department of Physical Medicine and Rehabilitation. Include "TelAbility" in the memo line.
Thank you!
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